Xeljanz (Tofacitinib Citrate): My experience on the trial

I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.

I thought it would be nice for everyone if I documented my progress on here. 

Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.

The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results. 

I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.

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AW:  Other discussions on Xeljanz / Tofacitinib

https://alopeciaworld.com/main/search/search?q=Tofacitinib

 

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Permalink Reply by singh on January 21, 2017 at 4:02am
Great regrowth HS. Can I just ask how do you know if it's the xeljanz working for you ? As I have heard the steroid shots can cause regrowth. In other words how much growth did you get on xeljanz alone before the steroid shots ?

Kind regards
Permalink Reply by Blessing on January 21, 2017 at 6:10pm
Did you have any weight
Gain from Xeljanz and Plaquenil alone or taken together?
Permalink Reply by Jcortez05 on January 21, 2017 at 7:04pm
I've gained 20 lbs :(
Permalink Reply by Blessing on January 21, 2017 at 8:52pm
I have also. I wonder if it is the Xeljanz or the Plaquenil.
Permalink Reply by HS on January 20, 2017 at 11:15pm

here's the 4th picture I could not get to post with the others.

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Permalink Reply by Patchylatchy on January 21, 2017 at 10:41am
Congratulations!
Permalink Reply by Suzie on January 21, 2017 at 6:56pm
Has Thank you so very much for sharing! Your progress is awesome and am so happy for you! Please keep us posted with your progress and I wish you continued success. Have you thought about hair supplements, vitamins or laser therapy to add to your routine?
Permalink Reply by Jcortez05 on January 21, 2017 at 3:38pm
5 months since I shaved my head after it was thinning
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Permalink Reply by Suzie on January 21, 2017 at 6:56pm
So happy for you! Looks fantastic!!!
Permalink Reply by Jcortez05 on January 21, 2017 at 3:41pm
Another
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Permalink Reply by Merry on January 21, 2017 at 4:05pm

That is so great for just 5 months! Yours is much thicker than mine after 14 months of growth! I'm so happy for you! I hope my gets thicker and gets pigment. Congrats on your progress!

Permalink Reply by Jcortez05 on January 21, 2017 at 5:27pm
Thank you merry it grew in much thicker this time around not sure why .. the back took longer to grow back

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