Alopecia World
www.alopeciaworld.com
Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
-----------------------------
Related Post on Alopecia World:
Replies to This Discussion
-
Permalink Reply by Christopher's_mom on
-
My son sees a dermatologist at Northwestern and communication is not bad at all. The doctor calls me personally to answer my questions.
-
-
Hi Rahul! I remember you.mentioned you started xeljanz. How has it been for you?
-
-
Folks,
For information, Xeljanz in Turkey has increased in price from 20th February this year. It is now 1995 Lira per box of 56 (as of today, it's roughly about £445 or $550).
Also, if you are going into Istanbul, the following Pharmacies are showing part of Global Blue (you can claim the KDR/VAT back, mins Global Blue's commission apparently).
- Barbaros Bulvar
- Berin
- Fulya
- Konak
- Onur
In relation to Global Blue, I must stress that this is information I obtained whilst there, I did not use the service myself, as I had already purchased.
Hope the information is useful to someone
-
Permalink Reply by Rascalx2 on
-
So, Ive been on xeljanz for 8 months, have lots of white hair growth/peach fuzz sides of head, side burns, very faint eyebrows, and eyelashes. Problem is I have been wheezing with a cough, bp is definatley elevated (which has always been perfect). Been alternating 15/20 mgs every other day ( which is when vrowth started after increasing dosage to 15/20) My diet could not be better. I fear that after all this patience I have had with meds I may have to stop taking it and lose all progress/ growth. SUCKS!
-
-
RascalX2, don't despair so soon. The cough can be lots of things like allergies or a cold. Is it a new symptom? Have you seen a doctor about the cough? My bp was always perfect before xeljanz as well. But now I have to take medicine to keep in down. I am willing to do that as long as it can be controlled. My doctor has me on Allegra also. She hopes it will decrease inflamation, but this could help your cough if it is caused by allergies. I guess what I'm trying to say is that there is no reason to think you'll have to stop taking xeljanz. Keep your chin up and be sure your doctor knows about your cough and elevated bp. Good luck my friend!
-
-
Hi,
Before starting Xeljanz, I would strongly advise getting an appointment with a Doctor in America and getting a consultation first (ideally someone like Dr Brett King), as you will need tests before commencing Xeljanz and be monitored during the taking of Xeljanz. Also you might be able to get a supply to get you started.
In relation to your questions of getting Xeljanz in Turkey, I wasn't asked to produce a prescription and I've had no problem bringing it back. In relation to the pharmacy, you could contact them before you go if you wanted. The pharmacy at Istanbul Airport for example is Gunay Eczanesi, and the e-mail address for the pharmacy at Istanbul Airport is bilgi@gunayeczanesi.com.
In relation to the bloods, yes the NHS Doctor at my Health Centre monitors my blood.
-
-
Dear Villa fan,
Thank you so much for useful information . As you know this medication is not available and not approved for Alopecia in EU and no physician accept to prescribe it.I am going to buy it in Turkey . Does the pharmacy request a prescription?
-
-
HiVilla fan,
I am surprised by the price of Xeljanz in Turkey.I searched the price of ziljanz in online Canadian pharmacies about 2100 US Dollar for 30 pills.How I can be sure the medication which I am going to buy in Turkey is not fake? I am going to Turkey next week could you please let me know can I trust this medication from Turkey?
-
Permalink Reply by JellyBeanToes on
-
There is no cure for alopecia. It's sad when people get suckered into spending lots of money on things like this. Any hair regrowth on these things is completely coincidental. If we could actually see the results of everyone who took this we'd quickly find out it just doesn't work I mean if it did we'd all be 'fixed' right. Having said that I'm still waiting for a cure & have never been part of a trial. I would like to be part of a trial though. How would I do that? Anyone?
-
-
There is no cure for lots of autoimmune illnesses, there is however effective treatments (perhaps not for everyone), as what Xeljanx has been to my Alopecia. Having seen the results of Xeljanz first hand, I feel qualified to say this I would also point to recent findings and statements by Dr Angelo Christiano, Dr Dr Brett King etc, in relation to Jak Inhibitors.
Go to the website Clinical Trials and check for Alopecia areata trials, it should list where trials are actively recuiting
-
-
Thank you for giving us hope. It is really sad when people are so pessimestic and aoread thr negative enrgy. Thats the last thing we need
-
-
I don't want to be negative or make anyone feel like there's no hope, hey what do I know! I bloody hope I'm wrong!
Disclaimer
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.
© 2025 Created by Alopecia World.
Powered by
