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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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AW: Other discussions on Xeljanz / Tofacitinib
https://alopeciaworld.com/main/search/search?q=Tofacitinib
Replies to This Discussion
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Permalink Reply by singh on
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https://www.google.co.uk/amp/health.economictimes.indiatimes.com/am...
Just so people can see where i got the information from and hope this brings some positivity back on xeljanz. People can get generic xeljanz right now in I India but please becareful so if you was to buy in India I would suggest getting some and getting it tested by pfizer first.
Kind regards
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Thanks Singh. This gives us hope thay we dont have to wait for long time.
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Welcome, and yes I just hope the treatment for alopecia comes sooner than later.
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Hi Singh. Just wondering are you taking xeljanz urself?
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Hi, no at the moment I am not. Was on it briefly for 3 months but wasn't on a consistent dose to tell if it worked or not. However it is now approved in the UK so I am working on obtaining xeljanz to see if it will work on me and to see if it's sustainable.
If I do purchase or get xeljanz I will keep everyone posted.
Kind regards
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Hi Singh
Could you tell me where in Turkey you buy it.
And would it be possible to message me
Denise
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Hi Everyone-
I've had AU from 8yo-15yo, AA to 15yo-28yo, and back to AU for 14 years now. I've been on Xeljanz for 9 months now, 3 months on 10 mg/day, 3 months alternating 15 and 20mg and 3 months on 20mg. I'm debating to stop since all I have is vellus fuzz, has anyone with AU for as long as I've had grown back cosmetically acceptable hair after staying on 20mg for a longer time?
Would appreciate feedback, as I don't want to spend the next year chasing hair but I also don't want to come this far if there are others out there that have had good results and are similar to me.
Thank you all,
Stacy
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I know someone who had great results with high dose of xeljanz after 30 years AU.
great results means cosmetic. he doesn't have full thick hair everywhere but more than enough to rock a solid haircut.
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we changed dosage a few times man... just popping them and track results while monitoring bloodwork. we all different a number is irrelevant.
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