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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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Replies to This Discussion
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Permalink Reply by Frida Rupert on
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Thanks Shad- stick with it- this med needs patience and the right dose to work. The fact you have hairs sprouting is great, I do think it will thicken up. I am so so grateful for this med, and also for this forum for giving me the information I needed to get my result. I am very hopeful for non- responders that something that works for them will be available soon.
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I really hope anything in the pipeline comes out soon- I would be so happy to see those who haven’t had good luck with this med have an option.
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Thank you Nicole- it took awhile to get going but I am so thankful that I’ve responded and got the info necessary to get the dose/time frame right. Also my doctor - he went above and beyond for me and I love him for it. In someways I feel like I’ve been given a second chance at the life I had before- though it is bittersweet - I feel very very sad for those who don’t respond and am hoping there is an answer for them soon, I feel like I know that feeling of despair and don’t want anyone to feel like that.
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Permalink Reply by ChrisPowers on
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You look fantastic.
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Thanks so much Chris. Hope you are well.
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Beautiful growth frida. Love to see success stories! While I had regrowth I never got my lashes back like you did! Looks amazing! Enjoy your new hair!
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i feel so lucky to have responded as I have. Hopefully if something new is released it might be something that will bring your lashes back. I do use lumigan/careprost/latisse on the brows and lashes and I do think that helped. It’s great you have your hair back though! Wonderful to hear of others success.
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