Alopecia World
www.alopeciaworld.com
Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
-----------------------------
Related Post on Alopecia World:
Replies to This Discussion
-
Permalink Reply by Carlie on
-
Gorgeous! Your makeup is awesome too, love the eyes. Mine is coming back curly too. I hope it looks like this when it gets longer. Your beautiful Frida, inside and out.
-
-
Thats lovely Carlie ❤️. I’m just so happy to be able to wear mascara again- I missed it dearly when I had no lashes.... xx
-
-
So happy for you!
-
-
Thank you Football fan. I know tofa has been a bit disappointing for you. I think in the next year options will open up for all those who don’t respond quite as well to tofa and I have everything crossed that soon we’ll be celebrating full regrowth for you xx
-
-
Thanks New Jack - not quite as hairy as you but a great result thanks to tofa!
-
Permalink Reply by Sad_Rapunzel on
-
Well.. This is just unfair...
Dr. Bordone told me she sees no point for me to start Xeljanz and I should just wait... SO my bold spots might be or MIGHT NOT regrow again. And not in 2,3,4 months, but in 1 or 2 f*cking years...
Frida, you're magnificent! Very model type of face. And I know what I'm talking about, you should definitely try.
-
-
Then you should either try another Dr or use the time to investigate other avenues. Track your ferritin levels, stop dairy products, use a good quality probiotic. As I've written before, Dr Yaker in Texas has a better version of Rogaine that has helped my hair; not entirely but MUCH better than before. This is not a punishment from God, its a hurdle you need to try to conquer. It won't be your last and I'm guessing its not your first. You can do this!
-
-
Stopping dairy products was a start point for all my issues at the first place...
-
-
https://www.vitals.com/doctors/Dr_Nathan_Yaker.html
Are you talking about this doctor?
Do you think it will be possible to have a video consultation with him?
If you still seeing him, could you please ask for me? :(
-
-
Yes, you can Skype your first appointment. It's Dr David Yaker 972-468-8301. The original formula is 82F, he just improved the formula and I'm not sure if they changed the name. He will explain it does not cure alopecia but I've found its a superior product to Rogaine for helping hair to grow back and gentler on my scalp. I've been using it for about 1 1/2 years. And can't stress enough the importance of tracking your ferritin. Its a simple blood test your DR can order. Start doing it 2-3 times a year. Ferritin shows how much iron is in your blood steam and has a huge range for "normal". But I was on the very low end and as I brought myself up to around the 90's I have had a noticeable improvement in my hair. Its impossible to know exactly what works but if you keep a log of everything you try, you may just find a combination that helps. And add the probiotic, these are the 3 things I have found helped me most, and I've tried just about EVERYTHING! Kathy
-
-
Thank you a lot, dear Kathy...
I'd love to chat without you somewhere else, if you are open to it...
My ferritin is normal, and everything else is normal as well, except my female hormones, which is understandably having my amenorrhea in mind.
I see new hair growth, but it's so weak and those baby hairs don't cover my hairline, so it's already been impossible mission for me to make pony tale ;(
and, as I know, even almost bald females have that "hair growth", but it's never make it to thick hair...
Disclaimer
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.
© 2025 Created by Alopecia World.
Powered by
