Xeljanz (Tofacitinib Citrate): My experience on the trial

I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.

I thought it would be nice for everyone if I documented my progress on here. 

Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.

The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results. 

I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.

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AW:  Other discussions on Xeljanz / Tofacitinib

https://alopeciaworld.com/main/search/search?q=Tofacitinib

 

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Replies to This Discussion

Permalink Reply by Sabri on August 10, 2015 at 4:28am
Hi Sami you should be able to buy over the counter in Istanbul.
Permalink Reply by sami on August 10, 2015 at 4:31am

thanks Sabri for reply

can we contact by whats up

+966555170120

Permalink Reply by Sabri on August 10, 2015 at 6:29am
Permalink Reply by Jckah on August 10, 2015 at 3:51pm
One month on Xeljanz, a lot of vellus hair growth and now I'm starting to get some patches of color. I've got a few small bottom lashes and the eyebrows are slowly coming in too. I don't think there's any abnormal shedding, blood work is normal, and everything seems to be going well! I got in touch with Phizer to apply for the hardship program, because I'm responding so well I decided I'd like to continue on the Xeljanz for a few more months.
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Permalink Reply by AU1989 on August 10, 2015 at 6:42pm
Congratulations very happy for you. We sound similar. Im 5 weeks on xeljanz and im AU. See attached photo
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Permalink Reply by Jckah on August 10, 2015 at 7:08pm
Exciting! yours looks more filled in than mine, I hope mine looks like that by next week :D
Permalink Reply by AU1989 on August 10, 2015 at 7:12pm
Anything looks great. Yours will continue to fill in. Best wishes. Mines alot fuller than the picture appears
Permalink Reply by Jckah on August 10, 2015 at 3:53pm
More of the front/top
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Permalink Reply by Steve on August 10, 2015 at 4:02pm

Yay!! So happy that this is working for you. I hope this treatment become worldwide and everyone else can get their hands on it.

I wish you all the best in you're treatment!

Permalink Reply by Jckah on August 10, 2015 at 7:09pm
Thank you so much!
Permalink Reply by katiegirl on August 10, 2015 at 8:01pm
That's how it starts! Very happy for you!
Permalink Reply by singh on August 10, 2015 at 11:08pm
Permalink Reply by singh 4 hours ago
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That's amazing!! Exciting!! :) can I ask of you was on anything prior to talking Xeljanz? And if you would be open to stay on a maintenance dose?
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