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Alopecia/Hair Loss caused by Topamax

Hi, I recently tried Xeljanz for my diffuse alopecia, but it did not work for me and my doctor told me to stop using it. My next step is t…

Started by dnp224 in Symptoms, treatment options, research

0 Jan 14, 2020

New Clinical Trial - PF-06651600

Anyone taking part or heard of the Pfizer Clinical trial in phase 2B/3?  I have alopecia and it got really bad over the last year - likely…

Started by AM in Symptoms, treatment options, research

12 Jan 12, 2020
Reply by mtran2000

XELJANZERS! How Many of Us on Xeljanz Now? Where Are You Located?

Yesterday in a Costco parking lot I met my first fellow Xeljanzer (my made-up term) IN PERSON! I saw this pretty bald girl, ran up to her a…

Started by Xeljanzmiracle in Symptoms, treatment options, research

36 Jan 11, 2020
Reply by Apple

Where can we find a group in the Tacoma Washington area for a childrens support group.

I have a friend who wants to start a non profit for wigs children in the Tacoma area and I told her I would ask around and see if there was…

Started by Alo-mom in Wigs, eyebrows, hair pieces, fashion

2 Jan 10, 2020
Reply by Alo-mom

frontal fibrosing alopecia Has anyone tried stem cell therapy???

My dr. is suggesting Stem Cell has anyone tried it?

Started by PBsunshine1 in Symptoms, treatment options, research

2 Jan 8, 2020
Reply by Danielle

Xeljanz in Mexico? Where can we buy it? How Much per Month?

I read awhile back that someone on here has gone to Mexico and purchased Xeljanz, but don't remember who? Can you tell us where in Mexico y…

Started by Xeljanzmiracle in Symptoms, treatment options, research

1 Jan 7, 2020
Reply by Apple

Hair In My Brush

Hello All, My daughter was diagnosed at the age of 10 with alopecia. As parents we want to fix everything wrong with our kids, but this was…

Started by Tesha in Acceptance and coping

1 Jan 5, 2020
Reply by Alo-mom

Lace front wig:)

Have anyone tried the lace front wigs? If so how do you like them?

Started by denise anthony in Wigs, eyebrows, hair pieces, fashion

40 Jan 5, 2020
Reply by youarebeautiful

My LPP Journey

I found out that I had LPP after suffering with scalp itchiness and a series of soft, mushy lines across the top of my scalp for 5 months. …

Started by cyclek in Symptoms, treatment options, research

5 Jan 2, 2020
Reply by Virginia

Xeljanz coverage denied

Are there any Xeljanz users whose insurance has suddenly denied coverage of their meds? Some insurance providers, including Blue Cross Blue…

Started by Anisha in Symptoms, treatment options, research

5 Jan 2, 2020
Reply by Nor75

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