Replies to This Discussion

Permalink Reply by sallylwess on November 14, 2016 at 11:14pm

I found it! Thank you so much for posting this. I am going to try it. I love when others share their research and experience. I am currently taking pumpkin seed oil because Dr. Donovan, the dermatologist from Canada wrote about using it in place of Finasteride recently on Instagram. Do you follow him? I know there are no magic cures, but I am trying to keep what I have and slow this loss down if I can.

Right now, I am most interesting in dealing with the facial papules as I just started getting those at my temple after having them on my chin for several months.

I wear a hair piece during the day, so I hope this doesn't make the scalp feel oily or cause problems with the hair piece. I am also wondering if you use any other treatments. Thanks again for this information. Sally

Permalink Reply by Leni on December 22, 2016 at 4:32pm

Sallylwess I do think there is a strong correlation to what we take and what we put on our skin as far as food and ingredients go. I have been doing the AIP diet for 1 1/2 months and have seen the papules appear more as I reintroduce foods. One food group one should avoid are seeds and nuts. If your papules have gotten worse since the use of pumpkin seed oil, you may want to reconsider.

Permalink Reply by Minter on November 15, 2016 at 12:34am

I have heard of emu oil, that it is super soft and the Blue Emu oil is supposed to be good for joint aches & pains, but have never tried it for anything- even though my mother has a pet emu!  I have been using tea tree oil to help with the itching/inflammation on my hairline in between the clobetasol applications, that seems to help.  I think I might look into this emu oil now :-) 

Permalink Reply by DragonandFox on November 15, 2016 at 9:07am

My Fellow FFA Sufferers.....EMU oil is a CRUEL product!  Particularly when you can get the SAME and more benefits from a CRUELTY-FREE oil such as Argan oil!  The same properties you find in EMU oil you can find in many other products that do not require killing animals.  Don't we have enough ECO issues besides contributing to killing species instead of trying to propagate and prevent more animals on the extinction list.  From what I've read and talked to several Doctor's about, there's a good possibility it's things like this that has caused us to be suffering this horrible inflammation based disease!!  Using products that contribute to destroying the environment and messing with our planet's eco system such as raising and killing ancient majestic birds such as the EMU.  Here's what you DON'T know about EMU's:

90 million years of evolution to roam over vast tracks of land, with long powerful legs & camel like feet, emus are adapted for speed, not slabs of meat and merchandise.

http://awpc.org.au/the-animals/emu/

When there are SO many alternatives that HELP us and don't include cruelty, why not choose the latter.  We're suffering ourselves so, spreading the empathy and compassion to not only other people but also other living species should be easy. 

Again, there are alternatives that can match or do better anyway!

this one is the official alternative to Emu Oil

http://www.greemu.com/

Also, this oil is fairly new on the scene Batana Oil

https://batanaoil.wordpress.com/

There's always these and particularly Argan oil is KNOWN to work well.

Argan oil

jojoba oil

Olive Oil!

I've been using Aveda's Inviati conditioners and hair serum and I see regrowth!  I didn't want to share anything until I saw my Dr but I started it over a month ago. I wanted to wait about 3 months to see the results.

Please reconsider using EMU oil.

Thank you for keeping compassion in your hearts.

Best of luck everyone.

Permalink Reply by Minter on November 16, 2016 at 4:53pm

I've reconsidered and won't use it, thank you for sharing all this info-

Permalink Reply by Kay on November 23, 2016 at 9:56pm

Are you saying you have actually seen regrowth with FFA scarred areas??

Permalink Reply by mc on December 22, 2016 at 11:09am

Anne Louise,

I live in southern NH and know no one else with FFA. Could we connect?

Christine J

Permalink Reply by Leni on November 24, 2016 at 10:28pm

If you are seeing regrowth.....tell us everything you are doing . Medications, topicals, vitamins and the exact names of the Aveda products. Also are you using any of these oils you have mentioned?

Permalink Reply by April on December 31, 2016 at 6:59pm

Hi! I did try emu oil. I used it for a while, I would say maybe 3-4 months every night. I didn't notice a difference, but sometimes hard to see the effects with this disease. I started adding essential oils to the emu oil, lavender, rosemary, thyme and cedarwood. After I started adding the EO, I did get little baby hairs coming in around my hairline. I continued using this for a year and a half. I had very little if no hair loss at this time BUT, I was pregnant and nursing during this time, so hard to say if it was helping or not. I think it was more likely the pregnancy effects. After I stopped nursing, started noticing some thinning at my hairline, despite using the oils. I stopped using it recently since I was receiving laser treatments from my derm, but going to start back with the oils. There is at least one peer reviewed study where emu oil did help with hair loss, so definitely nothing to lose. Keep us posted!