Comment

Comment by Debi on February 21, 2010 at 4:00am

I joined this site because I have discoid lupus. I've slowly been losing my hair since I was diagnosed with DLE in August 2009. I did not realize the mental aspect of losing one's hair. I'm here for support and to learn more.

Comment by Laura on January 17, 2010 at 7:10am

I joined this site to support my 30 year old sister who recently developed alopecia universalis. I'm hoping to learn more about how to help my sister effectively cope with the emotional aspects of this condition.

Comment by Rob Scoville on January 17, 2010 at 2:56am

I joined Alopecia World as another form of meeting friends. I am open minded and do understand personal struggles that some may face. I never met anyone with Alopecia in my personal life prior to joining this site.

Comment by Jean on December 31, 2009 at 8:13pm

I joined alopecia world to support my daughter, Natalie, and to educate myself. Natalie has received so much support and guidance from this site, that I thought it would be good for me to network also. I am not too computer savvy and found out I erased previous entries from this site. I will learn.

Comment by Marianne Peterson on December 31, 2009 at 10:32am

It's almost the New Year and I am hoping everyone enjoys it, but is careful out there.

I am thankful to find this website (with my daughter's help), as my 17 year old daughter has had Alopecia Totalis since she was 15. She lost her eyebrows when she was 15 and started losing her hair at 16. It grew in kind of patchy, with a lot of cortisone help, but is falling out again. She is incredibly strong, but of course, I worry about her to no end.

Hoping for the best in 2010 as we start a fresh, new decade, but I am realistic too. As long as we can cope with the disease and find outlets and support, that's the most important thing to me as a mom!

Comment by Debra P Blackman on October 27, 2009 at 1:35pm

Hello to all! My name is Debra, I am a cosmetologist & Hair Replacement Specialist. I do not have alopecia, however I see clients in the Phoenix area who do. I love helping women, teens & children feel their very best! As I have found some are more accepting to alopecia then others. Those that do not, have a hopelessness and I feel I have let them down when they leave the same way they came in. My question would be, How could I encourage those to be more accepting of their alopecia? Or What kind of Hope could I offer?

Comment by Graeme on August 25, 2009 at 1:02am

Hi all.
My now 4yr old daughter was diagnosed at 10months old. In the past couple of years, she has regrown her eyelashes, eyebrows, and has small patches of pigmented hair starting on her head again.
We believe she got a gene from me, as I occasionally get coin sized bald patches on my head, beard area, and legs. Just before her hair loss began, she suffered a bad fever lasting about a week. We figure this triggered the gene in her.
I am proud to say that she is a very smart, well adjusted, happy little girl. She is very social, and will proudly explain Alopecia to you if she you mention that she is bald.
Bald is Beautiful

Comment by Ted Michael Morgan on August 4, 2009 at 4:45pm

I came aware of alopecia about three decades ago, though I knew people who had the condition earlier. All those whom I know whom I know have the condition are men, though I am certain I have met women who have alopecia.
I used to contribute many years ago when I had money. I do not make any effort to become more involved because I confess that I find bald women attractive. That is not a defining desire I have but I like the look.

For that reason, I do not troll here. I know that would upset members. I have had one member question why I am here and she impressed me. I think that one factor in my knowing about alopecia is that knowledge emerged because of my interest in bald women. So I have to take care. I do not want to exploit other people.

I have worked to learn more about alopecia. This web group impressed me. It is outstanding. What thing that really helps is to show that being without hair is less important than our being human beings with immense potential for joy and fulfillment.

I do not visit here often. I love the internet but I spend more time reading and walking when I am well.

Comment by Mona on July 13, 2009 at 8:08pm

I joined because my husband has Alopecia. He never understood anything about it. Just that he hates the stares and comments. I think he looks great! He also has the smoothest, sexiest legs I've ever seen....I'm jealous! I would shave my head for the baldout if I could find some place that would do it in exchange for a hair donation to a worthy organization. I have approximately 16 inches and I understand that that could make a wig for someone.

Comment by Andre on July 12, 2009 at 1:16pm

Good Luck Ms Top to you and your plan of shaving your head and not caring what others think of your bald head.

Andre

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