Replies to This Discussion

Permalink Reply by Shay and my girl Kaleigh :) on August 26, 2009 at 4:02pm

thats a great idea! We are not starting school of course (2 yr old) but I did decide to not send her back to daycare since her pedi thinks that her fever a couple months ago is what caused her new spots. Last year when she was in daycare, she stayed sick ALL the time so I'm hoping keeping her home will help with that. Great topic, can't wait to see what others say :)

Permalink Reply by Monique (Mom) on August 26, 2009 at 8:30pm

oh wow! Well, my baby is only 16 months and I worry about this more than anything else. I am an elementary school teacher and am much more aware now of others making fun of others. Just know...kids will make fun of other kids no matter if they have hair or not. They will find something. I am trying to teach my baby how to be self assured and how to not take "crap" from others. Please share your stories so I can learn from you guys.

Permalink Reply by Sara and William on August 26, 2009 at 11:45pm

Things went pretty smoothly for us. Boo wore his wig for the first 2 hours, then got sick of it and put it in his locker. He hasn't said anything about anyone getting weird about it, and ...Best news ever, his teacher knows what alopecia is! She had a close friend growing up who had alopecia, so she has actually seen the development and been around (at least second hand) for the emotional backwash issues. I think we're going to have a good year.

Permalink Reply by Shay and my girl Kaleigh :) on August 27, 2009 at 9:29am

thats wonderful that his teacher gets it!

Permalink Reply by Lisa Leppert on August 27, 2009 at 6:01am

My 3 yr old (4 in Sept) goes to a part-time pre-k program three days a week. She started last year. She loves it and the kids are great. They don't treat her any differently. I know that elementary school may be another story; but I am hopeful things won't change much. We have another year for that. I have a good relationship with our school and most of the teachers. I start each year talking to the class and the parents of the students. That seems to help alot. This way if the kids do have questions and don't want to ask me or the teachers; when they go home the parents have a little background they can handle those questions.

Permalink Reply by Ellie on September 13, 2009 at 6:58pm

My daughter has a great teacher as well (her husband have AU) and she knows how to talk to the kids. Being that she is 4 1/2 she really hasn't had issues yet. We did put a wig on her on friday as we were leaving school and the other kids that saw her thought it was cool. I am trying to see if Jeff from CAP can come into the school and talk to the kids. We will see. I keep you posted.

Permalink Reply by Lillian (Tracy-mom) on September 16, 2009 at 3:30pm

Lillian started fourth grade a couple of weeks ago. She still has most of her hair and her spots are all hidden. However, she is having a bit of problems with her best friend at school who is wanting to hang a boy that we have had problems with in the past. . She's always had difficulty getting in with the other girls at the school which always confuses me because she is pretty outgoing. It just goes to show it doesn't really matter what you look like. There is always issues for some kids. I just hope that this stress doesn't cause any relapse in her alopecia or her school work.

Permalink Reply by Cindy on September 18, 2009 at 2:09pm

Annie, your daughter sounds so confident and strong..I am glad she is having a good year so far.. My daughter Samantha has returned to school with a short cut. And her brows are coming in. The kids have been so nice to Sam. They have expressed how excited they are for her, but at the same time the lack of hair does not matter to her friends. They all give her compliments and it makes her feel good. Sam is also a strong girl and she does not mind sharing with her friends and answering their questions. For a 7 yr old she is very confident in who she is and does not see her self any different then a child with hair and she is RIGHT! Appearances aren't always everything, It is the person inside that matters..

Permalink Reply by Ellie on October 7, 2009 at 8:59pm

Hello all,
I have a few things that have started to come up.
First: My Daughter Haley has been making a lot of comments about hair lately. Things like "I like your hair" That lady has alot of hair" Your hair is so soft" general observations but I can't help but think that there is something behind it.

Second: Tonight while making dinner Haley told me that a boy in her class called her a boy today at school. It broke my heart but she didn't seem to know whey the boy would say that.
Should I talk to the teacher or just let it go? It wasn't that bad of an offence.

Permalink Reply by Cindy on October 8, 2009 at 4:00pm

Ellie, I can relate to your thoughts about your daughters comments about hair. Samantha is on this phase of liking to comb my hair and it made me feel bad all the time and I'd cry. Samantha and I talked about it and she is so comfortable with herself that her own lack of hair was not a thought. She just wanted to do my hair and I sit with a feeling of guilt. I think Haley is just being observant of others and isn't even thinking of herself. As far as the boy . It does not sound like he was trying to be mean. Have you thought about talking to the parent of the boy. He just may need to understand Haley's situation. Sam was in K when she was loosing her hair. The kids really did not care about it. Now, the kids are telling her they can see her brows coming in or comment on how long her hair is growing and say they are happy for her...My point is the kids at this young age are just observing their world.

Permalink Reply by Ellie on October 8, 2009 at 8:08pm

Yeah, Haley is making obsevations about things that she sees. Every now and again she tells me that she want hair like some person and it is a knife to the heart. I am glad that I have a place to come to talk about these things.

I know that the boy wasn't being mean. I actually spoke with him today and he seems to be a sweet boy. I understand that the norm is that little girls have long hair.This is her seconfd year in this class and the kids are great to her. I really hope that it stays that way.

Thank You
Ellie

Permalink Reply by Joan Ward on October 31, 2009 at 12:24pm

This is the hardest thing I've ever had to face - my beautiful boy 15 years old losing all his hair within a couple of weeks right before he started junior year of high school! It was so shocking and heartbreaking to realize how sensitive they are at that age with just a pimple! And I've been obsessed ever since. Over a year now, rubbing creams and potions on him, cleaning like crazy, trying to eat everything organic, giving him vitamins and plant steroids, getting shots in his eyebrows, and driving 2 hours to a chiropractor to get desensitization treatments for allergies...now taking sulphasalazine (a systemic anti-imflammatory)...What I am most concerned about now (besides hoping for a miracle that he gets his hair back) is that I don't cripple him with my thoughts - feeling sorry for him, hovering over him, being overprotective of him...it is so hard to be a mother and not be able to FIX THIS!

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