Comment

Comment by Evie and mom Gail on November 30, 2010 at 9:01pm

Hi Cathie,
I know this is an old post but we are new to the site and I am just looking through the conversation now. My 5 year old got alopecia universalis when she was only 10 months old and we traced it back to some vaccinations she got at the time. We understand from the specialist that anything that upsets the immune system can start it off (not cause it but start the symptoms) after feeling guilty for a while, we realized that any other incident could have started it- a virus or other challenge to the immune system. I think your daughter's peanut allergy must be the same immune situation where the immune system started attacking the hair. I'm glad to hear that she is fine with it. Evie doesn't wear a wig, or a hat indoors and mostly it is ok- with moments of sadness. Good luck to you and Emma.

Comment by Evie and mom Gail on November 27, 2010 at 10:48am

Hi parents. Is anyone in the Ottawa or Montreal area? Our 5 year old daughter would love to meet another child with alopecia, especially a girl. I don't think there is any group here, but would happily set up a meeting or play date.

Comment by cindy Babs on November 16, 2010 at 12:48pm

Never mind.figured out how to join the groups. My daughter had had au for a little over a year. I still struggle everyday. It is much better than in the beginning. I am soon proud of her. She lost her hair in a week during final exams June '09. O wish it had happened to me instead of her but we are dealing with what has been dealt - she obviously more than me. Psychologically its a brutal condition. I know it Will get better.this site has helped me realize we are not alone. The support I get from reading the blogs is wonderful. Thank u all for that. : )

Comment by Matt (Mikayla's Dad) on November 16, 2010 at 12:42pm

You just click on "Join" up in the upper right hand corner of this page. It's right under the "Discussions" and "Groups" tabs.

Comment by cindy Babs on November 16, 2010 at 12:36pm

How do I join parents of children group? I Just joined away today!

Comment by Lesa M - Jess's mummy on November 11, 2010 at 6:51am

Hi all, my 8 year old daughter Jessica was diagnosed with AA a month ago now, she has lost nearly all her beautiful thick long dark hair. Which is heartbreaking to see.. She however is getting on with things amazingly, although now her class friends are making the odd comments, her confidence has dipped slightly.. I am finding it very difficult to deal with as a mum. Cry my eyes out when she goes to bed, then I feel guilty as she is not ill. viscious circle I'm in really... The annoying thing is we are seeing a dermatologist on next monday after waiting 5 weeks for an appointnment.. So don't know why this is happening to her?

Comment by Sarah Eisenhardt on November 11, 2010 at 6:13am

Tara and Sadia Please read this discussion I posted and let me know what you think.

http://www.alopeciaworld.net/forum/topics/autoimune-disease-in-fami...

Comment by Tara- mother of Presley on November 10, 2010 at 6:52pm

We are experiencing the same thing. We are going with the theory that it is allergy related. We just don't know what allergy.

Comment by Saida Z. (Ariana's mom) on November 10, 2010 at 5:30pm

My daughters grew hair all summer she almost had a full head but now that she is back to school and it's fall it started to fall out, Alopecia has a mind of it's own

Comment by Cindy Dyson on November 9, 2010 at 8:29pm

thank goodness my daughter hair is coming back

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