Comment

Comment by Tami & Taryn on October 9, 2008 at 11:53am

Hi there, I am new. My daughter was just diagnosed with Alopecia Totalis this morning. She is 20 months old and has not had hair or eye lashes since she was 9 months old. My husband and I kept thinking something would grow in and as each month went on, I got a bigger pain in my gut, and today my gut was confirmed. I want to learn about the disease but mostly I want to know how to help my daughter. I have read positive posts and sad ones. I want the very best for her and since we have an early diagnoses I am hoping to maintain only positive for her. I will admit that positive is hard for me right now, as I am very sad for my little girl. I am very sad to think of this obstacle that is going to cause her pain. I am looking for guidance on how to aid her and us with acceptance of this. Thanks.

Comment by Stacey, Olivias mom on October 6, 2008 at 8:00pm

Well its been almost a year since Olivia lost all her hair for the second time. The other day I noticed eyelashes coming back the struggle was how do I tell her not wanting her to get her hopes up that it will all come back and she will look like everyone else. So I hesitated and then one night she was laying next to me and said how itchy her eyes were I then told her it was because she had lashes coming in. She gasped and then said "oh no" . She then went on to tell me she loved her wigs and didnt want hair, well let me tell you not the response I expected!! I told her well even if it comes back it will probaly go again and we will have to find some more funky wigs she was so happy, who would have ever thought. She then told her dad that if it comes back if it doesnt she didnt care. Just goes to show how strong they are I was amazed!!

Comment by aileen arlantico on September 15, 2008 at 10:14pm

hi i'm new here. my son first diagnosed with alopecia areata last june he has bald spots on his head. i am having a terrible time with it always cried i don't know what i'm going to do i dont know how to accept this. my husband is not with me right now he's on deployment please help to understand this.

Comment by Jana Wells on September 14, 2008 at 3:41pm

I'm new here, I have a 13 year old daughter with aa, first diagnosed when she was 4 years old. It is so much more difficult for her (and me) to deal with at this age than it has been before. She has never lost all her hair, but enough that people stare and ask questions and treat her differently than they do her twin sister that does not struggle with this. This is the first year that she has wanted to try injections. We did that for the first time about 2 weeks ago. We will do one more time of injections in a couple of weeks, then hope for the best.

Comment by Heather Marie Brown on September 12, 2008 at 8:08pm

Hi, my daughter was diagnosed with Alopecia Areata when she was about 4yrs old; she's now 15. She still tends to have a hard time dealing with other children making fun of her because of her hair, so I have gotten her several wigs which have really help her. I however still get angry with the kids making fun of her and would like to slap their parents for not teaching their children how to be nice to everyone. As long as I can do anything to help my daughter feel better, I will be happy.

Comment by christine on September 10, 2008 at 7:55pm

Hi, my granddaughter has alopecia, she is 7. Her mother is having a terrible time with it and my grandaughter is feeling sad and responsible.I need for her to talk with other parents of children around the same age, so she can share, we don't know what to do.

Comment by Margie on September 9, 2008 at 2:17am

Hi All, I am new to this site (actually to any sites at all as I've never communicated over the web with anyone :) ). My son Casey (9 years old) was diagnosed with aa 1 1/2 months ago. He has already lost about 75% of his hair and it seems like it continues to go faster and faster. So far I have only shown everyone the strong side of me but inside I'm having such a hard time. I have never felt as helpless as I do watching this happen and knowing I can't do a single thing about it. It's amazing how strong kids can be and how easily parents lose it. Does it every get any easier? Will I make it through a week without crying at night? I will never let Casey see me cry or know how hard this is for me. I just can't stand the thought of anyone teasing him. He is strong but also so sensitive and internalizes everything. I am so happy to have found this site. I have spent so much time reading all of your posts and I think it will help me in see that others are making it through this thing just fine. Thanks for listening. I'm just hoping that if I get this off my chest perhaps I can start moving on and stop dwelling on it.

Comment by Carla on September 8, 2008 at 2:11pm

Hello, I'm Carla mom of Melissa age 11. Melissa was diagnosed with alopecia when she was 8 years old. She lost 30-40% of her hair within the 1st year of being diagnosed. She regrew all that loss. This year in March we found 2 spots. She has 3 total, but they appear to be growing again.
It's a rollercoaster of a ride, having a child with alopecia. But we pray, stay positive and let Melissa decide on treatments(currently none at the time).
Hugs,
Carla

Comment by Louise on August 10, 2008 at 11:17pm

My 18-year old daughter learned today she has alopecia areata. She lost a large patch of hair on top of her head, and I also believe she has the diffuse-type because I noticed her hair became very thin in the past year or so. I feel terribly guilty for not seeking help sooner. She has to go to college in 10 days. I worry about how she'll deal with this, particularly since we have no idea what to expect in the near future. Thanks for your comments & help. Lauren's Mom Louise

Comment by Anna on August 6, 2008 at 12:41pm

Hello eveyone.
I'm new to the site, but am very grateful to find out that there are so many other parents out there dealing with this. I'm from MA and was wondering if there are any other MA residents who would be interested in starting a playgroup? My girls are 6 and 3.

• ‹ Previous
• 1
• …
• 27
• 28
• 29
• 30
• 31
• 32
• Next ›
• Page