Frontal Fibrosing Alopecia Discussions (350)

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Newly diagnosed in California

I'm 62, live in California, and have just been diagnosed with FFA. I was diagnosed hypothyroid last fall and my hair loss was attributed to…

Started by Tinsel

24 Sep 21, 2016
Reply by Lisa

Just a bit of venting :-/

I was out shopping the other day and in a store with lots of natural, bright light, skylights. I saw myself in a mirror and was somewhat sh…

Started by Minter

9 Sep 17, 2016
Reply by Minter

Mycophenolate mofetil (MMF)

Hi all. I am a regular reader sometimes commenter here.   I am 45 living in Adelaide, Australia.  I was officially diagnosed last year afte…

Started by Jacqui

14 Aug 19, 2016
Reply by Lo

Another FFA Diagnosis

Hi All, I have just been diagnosed with FFA, so here I am- I am 52 years old, well into menopause and it is almost like I just woke up one…

Started by Minter

31 Aug 18, 2016
Reply by Minter

Newly "diagnosed" and struggling - CONFIRMED DIAGNOSIS

Hi there. I've been struggling with a receding hairline and hair loss for about 3 years now. I've run the gamut of testing and tried all so…

Started by CurlyK

13 Aug 16, 2016
Reply by Niece

Newly diagnosed

It's been less than a week. So many questions and emotions. I am a female who is 65 years old. I knew something was up when two years ago I…

Started by Bu US Illinois

5 Aug 5, 2016
Reply by Minter

My FFA is in remission

Hi, I went to the Dermalologist today after 7 months on finasteride and clobestasol and a paleo autoimmune diet. There is no more redness o…

Started by Robin

10 Jul 16, 2016
Reply by CurlyK

Allergies to gold linked to LPP? Have any of you been tested for this allergy?

I was patch tested recently and just got the results back. It turns out I am allergic to gold! My derm says that she has seen a link betwee…

Started by sallylwess

2 Jul 9, 2016
Reply by sallylwess

Article regarding FFA in children

I found an article in French that reports three cases of pediatric FFA, including 2 twin girls, aged 14, and a 7-year old. In the discussio…

Started by Isabel

0 Jun 28, 2016

3 FFA cases in one family

I come from a family where there are 3 FFA cases: 2 female (myself included) and 1 male. I was diagnosed in 2013, at age 42, though I had h…

Started by Isabel

15 Jun 9, 2016
Reply by MnM

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