Frontal Fibrosing Alopecia Discussions (350)

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Looking for a reputable dermotologist

I've been gradually loosing hair from my forehead and temples. I have inquired about my hair loss and received the same "It's probably stre…

Started by PWood

8 Dec 5, 2015
Reply by Mariah

FFA Comparison Chart & Research

It's been a while since I've posted here. The google doc Chart was down for a few weeks for anyone who was interested in adding their stats…

Started by DragonandFox

3 Nov 16, 2015
Reply by Wyobalance

Can you guys tell me what you think?

I've had a pretty terrible experience at my last two visits at my derm. I've been losing hair now about 4 years and my hair line has defini…

Started by momto1

26 Nov 15, 2015
Reply by Wyobalance

Anyone diagnosed with LPP being treated with pioglitazone aka Actos?

My dermatologist and I recently discussed switching treatment from my course of erythromycin and hydroxychloroquine (Plaquenil).  She says…

Started by Katy M.

2 Nov 15, 2015
Reply by MnM

FFA, Hormones and Menopause

When I was first diagnosed with FFA 5 years ago, my Dermatologist told me that most women with FFA had gone through menopause.  My FSH was…

Started by yukonalopecia

13 Oct 29, 2015
Reply by stacywallen

Warning about bioidentical Progesterone supplementation

I wanted to provide information to anyone considering taking bioidentical progesterone.  A few months ago I indicated I was going to try th…

Started by Linda from Cincy

0 Oct 18, 2015

CARF ...interesting info

So I was reading through some recent posts in this forum and came across CARF. Decided to look it up online. There's a clinical trial For F…

Started by momto1

24 Oct 10, 2015
Reply by gmodo

New to FFA and to this forum

Hi Everyone, I'm not sure where to begin...I guess at the beginning!  I was diagnosed with FFA in April 2015 and a biopsy confirmed it a co…

Started by SJC

12 Oct 9, 2015
Reply by Joy

Getting back your 'edge'

Has any one tried using Extensions Plus Edges? It seems like a perfect for FFA.  http://www.extensions-plus.com/edges/

Started by ammie

2 Oct 6, 2015
Reply by ammie

FFA itching

I have had severe itching with my FFA, including in places where I don't have hair any more and places where I never had hair.   Is the itc…

Started by Mildred

10 Oct 3, 2015
Reply by Jacqui

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