Frontal Fibrosing Alopecia Discussions (350)

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FFA and skin problem

Hi everyone I wonder if some of you also have different skin since the ffa startet? My skin is rough and my derm now thinks (after two skin…

Started by Charlotte

40 Sep 13, 2019
Reply by Demixl

Steriod Shot Reaction

Have any of you who received steroid shots experience a bad reaction? I received just one round of "low dose" shots along my forehead about…

Started by FFAbulous

2 Sep 6, 2019
Reply by Proud Dad

Finasteride case study success FFA

Came across this case study from Nov2015, which you may have already seen. i have just started Finasteride but not this dose so will discus…

Started by Jacqui

9 Sep 3, 2019
Reply by DragonandFox

Need Opinions Please - Awaiting Biopsy Results

Hi All, I am anxiously awaiting my biopsy results, though I'm fairly certain it will come back positive for FFA. That said, I would love a…

Started by number21

5 Sep 1, 2019
Reply by illustr8r

Lichen planus

Hi all, Quick question .. so since being diagnosed with the dreaded FFA I have now developed either vulval lichen sclerosis or lichen planu…

Started by Lu

9 Jul 4, 2019
Reply by SandyA

FFA Returned

I was diagnosed with FFA in September of 2016. I was treated with steroid injections in my scalp along with a topical steroid. My hairline…

Started by Tina S

14 Apr 19, 2019
Reply by HeatherG

Joining FFA Clinical Research Study

Yesterday, I had my first appointment with Dr. Olsen at Duke University. My biopsy came back as LPP and she confirmed FFA during the visit.…

Started by ammie

25 Apr 19, 2019
Reply by HeatherG

Newly diagnosed in Colorado

Hello.  I've been reading this discussion board for a week, since I was diagnosed with FFA on Feb. 12th.  I'm 54 years old and lost my eyeb…

Started by Kikibob

50 Mar 18, 2019
Reply by julie

Autoimmune diet

Hi all, Just wondering from those who have tried / are following the AI diet, did you notice any difference in symptoms (like burning, itch…

Started by Lu

4 Mar 18, 2019
Reply by Toby

Coimbra protocol

Does anyone of you follow the Coimbra protocol? This treatment seems to work for many autoimmune diseases.

Started by Jack_86

4 Mar 11, 2019
Reply by Mike Staffieri RHN

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