Frontal Fibrosing Alopecia Discussions (350)

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FFA Flare Ups -Anyone?

I was first diagnosed with FFA in September 2016 during a routine skin check. I had previously noticed a few stray hairs on my clothing, bu…

Started by Tina S

2 Mar 4, 2019
Reply by Tina S

Do you have these symptoms?

Hello, everyone. I'm a new group member who has been lurking and learning tons for the past few weeks. Thank you for the straight scoop on…

Started by RoxyT

1 Feb 23, 2019
Reply by Plf

Integrated Hair Systems in Toronto?

Having recently looked into the Lucinda Ellery method of hair replacement, I am looking for something similar in Toronto. As there are only…

Started by DW

3 Feb 22, 2019
Reply by Louise

Question on wig customisation

Ladies As traditional hair toppers don’t include sideburns cover, have any of you customised a wig and turned it into a topper keeping the…

Started by Deborahhartshorn

6 Feb 7, 2019
Reply by Anonymous

Possible causes?

Hi All I'm Lara, 38 years old and I was diagnosed with FFA in September this year after noticing what appeared to be male pattern baldness…

Started by Lara79

57 Feb 5, 2019
Reply by Nora1986

Thinking of giving up treatments and going to a full wig

Hi everyone I was diagnosed with FFA just over a year ago.  I have lost a lot of hair mostly on the temples and the front.  I have also exp…

Started by LeeKath

27 Jan 27, 2019
Reply by Jan

Lucinda Ellery intralace system

Yesterday I booked an appointment for the end of the month to have an intralace system made at Lucinda Ellery.  I have so many concerns/que…

Started by DW

8 Jan 24, 2019
Reply by Kandy15

LPP & FFA

Hello everyone, I am new to this site. I just found it yesterday.  I am 61 years old and was diagnosed with LPP about 3 years ago.  The der…

Started by Kandy15

13 Jan 18, 2019
Reply by 2Dachshunds

Treat Autoimmune for FFA

Hi, I want to share that I met with an autoimmune specialist today.  She seemed to really know her stuff and has specialized in treating v…

Started by Sha

4 Jan 16, 2019
Reply by Sha

Question on scalp itching

Hi all! I was recently, 12/31/18, diagnosed with Graham Little Syndrome.  I don’t fully understand the itching component of FFA. My sense i…

Started by Jennifer

2 Jan 13, 2019
Reply by Jennifer

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