Comment

Comment by Liz on August 1, 2017 at 2:43pm

Classical Anne, I have emailed you xx

Comment by Classical Anne in NC mountains on August 1, 2017 at 1:29pm

Liz, you absolutely MUST STOP the antibiotics! I'm very afraid you have Interstitial Cystitis. Look it up. Then you can email me annejmstrupp@gmail.com to talk about it. And I would suggest changing Urologists, too! There's no valid reason for them to keep prescribing antibiotic when you show no infection -- and plenty of reasons NOT to.

Comment by Liz on August 1, 2017 at 1:05pm

Classical Anne And Sallylwess, These illnesses must be related in some way. I wish that I could find a specialist who could look at everything that goes on in my body as a whole rather than being specialised in one area. I currently go to the dermatologist, urologist and ophthalmologist. I also have inflammation in my digestive tract. Classical Anne, I am permanently on antibiotics for painful bladder however when I go to the urologists they just mention urinary tract infections but I always test negative for them. When my bladder is bad it feels like I have terrible toothache there :( xx

Comment by Classical Anne in NC mountains on August 1, 2017 at 12:04pm

Sally: So this is what Mama called "an organ recital'.  I to have Hashimoto's hypothyroid, and have had Fibromyalgia for 5 decades, I am diabetic, my bowel disease is Crohn's, my most painful disease is Interstitial bladder,   All of these are considered autoimmune.  Also Raynaud's Syndrome.  The only major issue I have outside of the autoimmune collection is severe Osteoporisis.  And currently a gastric ulcer.

For those of you much younger than Sally and I, here's another of my mother's constant quotes: "Old age ain't for sissies!"  Fair warning!

But in all fairness, I still am blessed -- with nothing life-threatening, with a wonderful loving family, and with all of you as support.

Comment by sallylwess on July 31, 2017 at 6:39pm

Yes, we all have so many similarities that it really is amazing.
I'm losing hair at the nape of my neck on both sides.
I have lost about two inches of my frontal hair line.
I have lost most of the hair on my right side above the ears.
I have lost my eyebrows.
I have no hair on my arms and legs.
I have extremely dry eyes. I use Restasis and artificial tears.
I have red bumps at the eyelid where I the eyelashes grow. I use Baby Shampoo when I get these.
I have papules on my chin.
I have very dry skin. Sometimes my skin burns and other times I have have rashes of unknown origin.
I have severe IBS and Small intestine bacteria overgrowth.
I am pre-diabetic.
I have Hasomoto's Thyroid Disease.
Now, they think I have Fibromyalgia!

Enough already! Other than that, I am very healthy. That is if you don't count my heart arrhythmia and the fact that I have a pace maker.

I think when we all connect the dots we are going to be able to help the professionals also connect the dots.

I don't know what I'd do without all of you.

Comment by sallylwess on July 31, 2017 at 6:32pm

Comment by CurlyK on July 30, 2017 at 4:28pm

As I'm reading the latest posts on the comment wall, I was amazed once again at the similarities we all share.

I HAVE lost hair in the back of my head recently. Those who have followed my story know I wear a hair piece that is bonded to my scalp. Every 5-6 weeks I go have it removed, the piece is washed and my scalp is (delightfully!) scrubbed (boy, that feels good!) and then the piece is bonded once again to my scalp.

About 3 months ago the hair dresser commented on how it seemed the hair in the back of my head stopped growing. I had noticed too that I was going through a season of shedding in that area. Not sure what caused it unless it was stress once again. I've ordered my second hair piece (I need a new one about once/year) and this time they are making the cap piece bigger so it will cover more of the back area where I've lost hair.

My skin has been dry for years. The dermatologist told me to only use skin creams that come in a jar as they are more moisturizing than what comes in a tube.

For those with dry itchy eye, I highly recommend washing them morning and night with baby shampoo. Put a warm moist compress over them when you go to bed at night. This is what my opthamologist recommended and is super CHEAP too! Love it when a doctor doesn't try to sell you on a gazillion prescriptions, creams, etc. Baby shampoo. Huh! 

Comment by Anne55 on July 30, 2017 at 3:46pm

Hi all,

I wanted to comment on the dry eyes. Along with Rocesea 20 years ago ( that is healed) losing 2 inches of hairline in the last 3 years and being diagnosed with AGA I had horrible dry eyes for years. My eyes also have puffy red eye bumps at the base of my lashes. My GP ran several tests and found I'm allergic to gluten (possible Celiac, but it affects me so badly I will not put myself through the celeriac test since I have to eat gluten for 2 months). After giving up gluten and sugars as well, my eyes have become normal. Just a thought for others to keep in mind. Good luck all.
Anne

Comment by Classical Anne in NC mountains on July 30, 2017 at 2:27pm

Hi Liz.  Honestly, I haven't yet found anything that worked long term for my dry eyes.  Every time I try another brand of drops, I think "Hurrah!  At last something that works!".  But after a few days I'm waking up with my lids so crusted I can barely pry them apart.  And with eyes wide open, I can barely tolerate a ceiling fan!

And to Wyobalance, my arm and leg skin have always been dry, but never as dry as they are now.  They soak up skin lotion like a thirsty nursing newborn!

Comment by Halfbakedwho on July 30, 2017 at 2:25pm

My eyes are dry and sometimes I'm terribly thirsty. This has gotten better in the past few weeks, possibly because I changed my diet (see discussion). I also used to be a terrible Coke Zero/diet coke addict, and was drinking a lot of that crap for about 30(?) years (coke, and other diet sodas). Now I don't know what I was thinking... probably not much better than cigarettes.

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