Comment

Comment by Lo on July 7, 2015 at 7:51am

I would remnants a biopsy before any treatment begins. Many women have had success with treatment slowing down the progression... And/or inflammation. He first step is to find out exactly what it is that we have... You are beautiful and are going to be ok... You will find strength where you didn't think you had it. Please stand tall and take it one day at a time... Believe me...

Comment by LittleSadEyes on July 7, 2015 at 7:46am

Has anyone actually had success with medical treatment ceasing the progression of the hairloss/iflammation? Like has anyone actually stopped it? I'm kind of desperate to know what works best!

Comment by LoriO on July 6, 2015 at 7:47pm

Hey LittleSadEyes, I'm sorry you're going through this.  I've had a tough time coming to terms with my FFA and I'm in my 50s.  With all your symptoms, have you been checked for PCOS?  You have all the symptoms and I think if you get it under control your hair will grow back (unlike with true FFA, which is scarring).  I'm not a doctor, but I would think this would be something to investigate.

That said, if it is something more permanent, you have beautiful features and would look good no mater what your hair looked like.  And no man worth having would ever base his feelings for you on what your hair or body looked like.  It is worth waiting for that guy.  Meanwhile, love yourself, and talk to yourself as if you were talking to your best friend going through all this.   

Comment by LittleSadEyes on July 6, 2015 at 6:51pm

Maybe this will show you... :( The temples and nape are no bad. I have a bald spot on the fight hand top side of my hairline. And it seems like everyting on the right side is effected slightly worse. 

Comment by LittleSadEyes on July 6, 2015 at 6:33pm

Sad in chicago, Donna, I really appreciate your kindness. Issue is i feel like this has happened so fast. Seems like i look back at photos from the beginning on 2014, i noticed that i began to recede then, then all of a sudden by june i had lost a vast amount of hair all over. My nape began to creep up... now by the same time a year later it is just out of control. It's receding to fast now that i can see the changes each day. I wake up and i feel the cold on my nape where it had not been like that before. I have lost whole rows of lashes, my brows are receding from both ends and and look patchy in the middle now. I can even see patches of no growth on my arms. And it seems like it just sped up so fast all of a sudden. I do have the hormones of a menopausal women although i have (weird irregular) periods. It has gotten to the point where i will not leave the house. I just cry. I think about how i will end my life.

I am confused about a couple of things though. I notice around my hairline that i have tiny little vellus blonde hairs where the hairline was. I was under the impression that FFA mostly effected vellus and intermediate hairs (hence the hairline, brows, lashes etc). So would that mean that all other downy hair on the face would be effected? Like the little peach fuzz that everyone has? Mind you my peach fuzz is a little longer because i have like zero estrogen. I am 99.99% sure that i have this thing. It fits too well. I mean, my WHOLE hair is terribly terribly thin and my crown is very bad, but i chalk that up to AGA. It's the temples, nape and hairline, brows, lashes and now arms that has me convinced. I look disgusting. I try to pull bits of hair out around my face to make it look like the hairline isn't so far back but i am rapidly running out of hair in order to do this. Ontop of this i have terribly acne and oily skin. Even on my chest and neck. I know i shoulod be grateful that i still have hair, but i just feel like i am only waiting around for it to get much much worse. This in itself is agony. I am 22. I will never have a relationship. Who wants a girl who cannot have children and is totally bald on her head? There is a boy who i was falling seriously inlove with.. but i have just stopped talking to him. I won't see him. I can't bare it. He will not want me anymore. All he liked me for was my body. Well, i can't even offer that now. 

I don't want to do this. 
I can't. 
I feel like i an suffocating. 

Comment by Sad in chicago on July 6, 2015 at 1:37pm

I agree with Donna.  I would die for photos and hair like yours.  Enjoy what you have, take wonderful care of your hair and yourself and you will see that it may not become as much an issue as others have experienced, such as myself.  I will say that post menopause seems to be the timeline in which the condition worsens, and you are far from that.  Right now i cannot go anywhere without a piece and the summer is troublesome too, but I know that when I am wearing something I feel better and someday you will too.  As one of my friends keeps saying to me, "nobody got really sick, nobody died."  Very true.  Just a pain in the ass to deal with as you get older.

Comment by Donna on July 5, 2015 at 11:38pm

My heart goes out to LittleSadEyes. You are so young and beautiful. It is tough. It looks like you can still hide the hair loss and your brows look great. This could be the case for you for many years. So I would say try and enjoy how great you look now and try not to worry about the future. I think we all know it is not our appearance that really matters in life but at 65 (FFA for about 10 years) I still feel so self conscious sometimes. BUT even before the FFA I always looked back at 10 years prior and thought I should have appreciated that time more. So now I try to appreciate now so that 10 years from now I won't be looking back and thinking I should have. Hang in there friend.

Comment by LittleSadEyes on July 5, 2015 at 6:57pm

After hours and hours of research and agony, wondering why my AGA doesn't look like AGA, i came across FFA. It all fits, and i cannot breathe. It explains the very gradual hairline recession, the eyebrows and eyelash loss, why there is literally no regrowth on the recession where the hair has been lost. I believe that i have both AGA and FFA. This is common apparently in women who have FFA. I told my dad who is a doctor and he said with much concern "certainly, this is something we must at least rule out". I can tell me seemed convinced too. I now have an appointment to see another derm in 2 weeks, and in the meantime i am slowly dying inside. I am young, and i may just... lose all the hair on my head. It's bad enough that i have been told that i may never have children. I do not notice and white shiny where the recession is but apparently this isn't always noticable. I mostly notice itching especially at my nape and tender eyelids. There appear to be no pimply/lesion things. I really would like opinons. I am almost totally certain that this is what i have as it fits too well. However any input would be appreciated. I shall attach some photos. Please not that i am wearing makeuop so you can't tell what my lashes and brows look like. I shall also include some "before" photos as a comparison

Thank you

Comment by LittleSadEyes on July 5, 2015 at 6:51pm

Hi Ladies

So I first noticed my hair loss last June and since then i has lost 80% if my hair, lashes and eyebrows also badly effected. I searched for so long to find answers - not my thyroid, not anaemia, not coeliac...I had a derm tell me twice that it was telogen effluvium. She did a scalp biospy and said "9% of your hair is in telogen, no scarring, no miniaturisation". I later found out that she took these biopsies from the frontal and occipital areas. Not ideal. I went to a trichologist who looked at my hair and scalp microscopically and said "80% of you hair is either miniturized or not growing properly". I was put into spironolactone. I have also recently found out that my DHEAS is elevated, whilst my estrogen is at a menopausal level. Makes sense since i had amenorrhea for years and only this Jan started getting regular periods again (lord knows why). However my estrodiol is still terribly low. My gyno says i may have tube issues or going into premature ovarian failure. We are in the midst of doing further tests to find out.

Getting to the point, all of this confusion has been surrounding the pattern of my hairloss. For the longest time no doctor has been able to tell me why my temples, sides, hairline and nape have been so badly effected. No one could tell me why my lashes and brows are thinning terribly. Everyone says "your hairline looks normal. Women usually have wispy vellus hairs around the hairline anyway". But looking at photos and seeing the change happen to quickly now i KNOW it's happening and i now have bald spots on my top hairline, the hair around my temples is so thin you can very very easily see my scalp and my nape is kreeping up so quickly that i feel like soon i will look like a bloody monk. My eyebrows seem to be thinning from either end also. My scalp itches and i notice it gets red too. At times my eyelids become tender and i have noticed my bottom eyelids becoming kind of droopy. I look awful.

I am 22 years old.

Comment by Classical Anne in NC mountains on June 22, 2015 at 5:16pm

Yes, but my derm has been happy to supply me with samples that have lasted 18 months now, though I only use it on my eyebrows.  Ask your MD for samples, it's an outrageously expensive Rx

• ‹ Previous
• 1
• …
• 221
• 222
• 223
• 224
• 225
• …
• 506
• Next ›
• Page