Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

Comment Wall

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Comment by SandyA on May 7, 2015 at 10:57am

Lo, I just emailed you a copy of Debs sheet. Hope you got it.

Comment by Lo on May 7, 2015 at 7:01am
Sandy, can you send it to me as well? Lobertella@yahoo.com
Many thanks!
Comment by SandyA on May 6, 2015 at 10:50pm

I recently received the info sheet from Debs so would be happy to forward it to you.

Comment by okalopecia on May 6, 2015 at 10:46pm

Debs could you please send me a copy of the FFA fact sheet, or if anyone that has a copy that would be willing to forward. Email: ddilldine@tds.net

Comment by Donna on May 6, 2015 at 4:16pm
Has anyone experienced withdrawal symptoms in stopping clobetasol? I have been on it for over two years and it did not control the inflamation. I am concerned to stay on it but in going to every 2nd day experience low level pain om scalp and feels worse than it ever was before using the clobetasol. On reading up on-line it sounds like withdrawal can be a real problem.
Comment by Will Be Healed on April 3, 2015 at 11:31am
MJ, my homeopathic doctor recommended the moducare and I spoke to my derm doctor about it since I will be taking plaquinal after I get my last eye exam today and they confirm it is ok for me to take together. The derm said it was fine to take both.
Comment by Ann Wilson on April 3, 2015 at 6:50am

That is very interesting and something I will try!! thank you for sharing, Will be healed, and thanks for telling us the length of treatment before you saw results!

Comment by MJ on April 3, 2015 at 6:32am
I just looked up moducare. I am very interested. I wonder if this can be taken along with paquinal? Did a doctor recommend this to you?
Comment by Will Be Healed on April 2, 2015 at 11:25pm
I wanted to share some positive news on hair growth in my eye brows and lashes. I have been using natural castor oil on my brows every night and using natural olive oil on my eye lashes. The lashes that I lost grew back in about 6 months and my brows grew back (they were thinning pretty bad) in about 9 months. The brows are not as full as they once were, but now when I use the brow powder it doesn't look funny due to the patchiness. Thought I would share just in case others who haven't tris this want to try something natural with positive results. I also take moducare, so that may have something to do with it as well, but the Moducare alone didn't help with the lashes and brows.
Comment by NatalieW on March 28, 2015 at 1:52am

Thanks Maddy for your information. I an hesitant to change it when it has dealt with some of the irritation and isn't causing me any major side effects. I will discuss it more when I see him next

 

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