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Comment by RAPUNZEL on January 22, 2015 at 1:13pm

Other than "official" diagnosis how do we know if we have FFA?  Are eyebrows always lost with this condition?  I have loss above my ears that is creeping upwards.  My bang area is affected also.  The back of my hair used to be affected but it has thickened up since being on Rogaine.  I haven't been diagnosed with anything officially but have assumed it's Androgenetic Alopecia as I haven't lost eyebrows at all.  Would like to hear anyones thoughts on this.

Comment by Jen on January 13, 2015 at 9:14pm

Thank you MJ.

I always have great intentions where my diet is concerned.

Comment by Maddy, California, U.S. on January 13, 2015 at 7:22pm

My existing hair has DEFINITELY thickened up using Rogaine...which helps to cover up the thinning areas in the front and sides. My hair stylist (of 20+ years), noticed it immediately when it started thickening up. I do have to say though that it took somewhere between 2-3 months of once a day use for me to really start noticing the difference. I had resigned myself to wearing a custom hair piece that I had made and have yet to wear it because my hair thickened up enough to cover the areas....at least for now (glad I have the hairpiece though as a back-up).

Comment by Annie on January 13, 2015 at 5:20pm

Sad in Chicago, You're correct that we can't grow hair where it has already scarred over, but I have thickened up the surrounding hair considerably.  My plan is to hang on to as much hair as possible until someone figures out a way to stop our bodies from attacking our hair follicles.  I also believe that using a topical on my hairline as well as taking oral Plaquenil is helping slow the progress of my ffa.  It has definitely lessened pain in the areas that are affected by the ffa.  It was too painful to push my sunglasses up on my head a year ago, and now I do it without even thinking. 

Comment by MJ on January 13, 2015 at 5:11pm

I use the foam nightly and I find it is pretty easy to use. I hated the liquid as it was a drippy mess. Jen, now that I am working full time I am less restrictive, but I restrict gluten (wheat), dairy, processed foods, and refined sugar. Drink green smoothies with fruit, greens, flax and/or chia. Only drink water green tea and occasional red wine. Take biotin forte with zinc, turmeric supplements, slow release iron, and plaquinil. Try to eat lots of salmon and limit animal protein too. Having said all that, I am going to pick up a pizza for dinner. Lol! Had a healthy meal planned but my 12 yr old was in need of math help before dance class...so I am foregoing the time to cook.

Comment by Sad in chicago on January 13, 2015 at 1:38pm

I was told by my dermatologist that NOTHING has been proven to help FFA.  So I stopped doing everything in terms of medications, rogaine, etc.  But it sounds like some of you are actually having success with Rogaine.....not replacement hair but maintenance and thicker with what is left.  Am I correct?

Comment by Annie on January 13, 2015 at 10:40am

MJ, I use the men's 5% generic foam Rogaine once a day in the morning & apply my topical at night.  My doctor said that the foam can be used once a day, but the liquid needs to be applied twice a day, so I've never purchased the liquid.  I agree that it's difficult to keep the foam out of my hair, but I have noticed that when I take my time and separate my hair into rows I can apply it mostly to my scalp.  I find that the best time for me to apply the foam is right after a shampoo while my hair is still wet.  I follow up with a leave-in conditioner before blow drying to combat the drying effects of the alcohol in the Rogaine. 

Comment by Jen on January 12, 2015 at 11:31pm

Hi MJ,

Can you please describe your new diet and tell us what supplements you take?

Thank you kindly.

Jen

Comment by Annie on January 12, 2015 at 5:39pm

I use Rogaine on my entire head & eyebrows. 

Comment by MJ on January 12, 2015 at 4:36pm

Annie,
I am curious. Are you using rogaine all over you head or just in the hairline? I just put it on the hairline. Incidentally, the rest my hair is healthier than when I started this journey but I attributed that to my new diet and supplements.
MJ

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