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Comment by Sas Holland on January 6, 2015 at 4:52am

Hi everyone,

I just started the AutoImmune Protocol diet (AIP, which is a stronger variant of the Paleo diet) 5 days ago.

I have read so much on the internet and in books about it and I am very positive to give this a try because it will get to the root of the problem (leaky gut which seems to be the cause of all autoimmune diseases) and not just trying to fight the symptoms.

My derm wanted me to start on Cyclosporine A. But I feel it's very unhealthy for the rest of your body, so I don't want to try that at this time in my live. Maybe if the diet does not work at all and my FFA starts to really get active again and really starts to show I will change my mind about it. But for now It just doesn't feel good to put this  strong medicine in my body.

. This means I cannot have the test stemcell transplant also (even though my FFA is in remission now) , which is a pity. They only want to to that transplant if I am on Cyclosporine.

It is a big adjustment for me especially breakfasts, this AIP diet, since I cannot eat eggs, dairy (this means also no butter and ghee) , legumes, potato, tomato, sweet pepper(paprika), grains and pseudograins, nuts and seeds or refined sugar.

I am also not a fish eater, I just hate it. So its basicly just eating meat, moderate poultry and fruit and vegetables.

It's a elementation diet so after a while I can try to eat eggs and nuts and seeds and ghee and perhaps pseudograins again, one after another.

I remember some of you are on special diets as well, but forgot who.

I have read The autoimmune Approach by Sarah Ballantyne and The Autoimmune Epidemic by Donna Jackson Nakazawa.

Comment by Debs on January 5, 2015 at 4:01am

I have just ordered some Moducare too on Amazon in the UK, I only use herbs and suppliments now so this is something I am excited to try. It will be good for my overall health and if it helps the FFA then fantastic. It looks like a well researched product.

Comment by Will Be Healed on December 31, 2014 at 5:20pm

By the way, my eye brows have thinned, but show some re growth too. I forgot to answer that question.

Comment by Will Be Healed on December 31, 2014 at 4:29pm

I will tell you that as your body is adjusting to the Moducare, you will feel tired for about 2 weeks. I wish you success in growing hair back!

Comment by Sad in chicago on December 31, 2014 at 4:25pm

Moducare on the way.....what can it hurt?  Happy to see some success with something! 

Comment by Will Be Healed on December 31, 2014 at 4:20pm

Right above my forehead and on the right side at my temple is where my hair grew back. Not at the normal level, but some growth. I was starting to get three bald spots above my forehead and they have grown back. I too was told that nothing would grow my hair back, but when I took Moducare it started to grow. My sides are still a problem. Not a lot of progress there, but I will take what I can get, especially when I was told it would only continue to fall out with no hair growth.

Comment by Classical Anne in NC mountains on December 31, 2014 at 4:15pm

There's no doubt that high stress can trigger FFA hair loss, but it is not a cause.  As an autoimmune disorder, the possibility of FFA [or dozens of other autoimmune disorders] is already lurking in your body.  But stress can definitely set it in motion, or cause flare ups and worsening.  I am sorry that your job is very high stress.  Because FFA is reputed to eventually burn out on its own, and has predetermined boundaries on your scalp, I doubt that continuous stress would make you lose more hair than otherwise; but it may simply accelerate the loss, so that yours may burn out quicker.  That could be a mixed blessing.  Some days I wish my loss would hurry up and burn out, so that I know positively what I'll be left with, and go ahead and make my decisions re: wigs, hairpieces, etc. 

I think the idea of a socio-economic factor is pretty much being ruled out now.  It seems more likely that women in a certain social/economic level are more likely to pursue medical avenues of relief.

Thanks for the detailed info on Moducare!

Comment by Sad in chicago on December 31, 2014 at 4:09pm

I looked it up, interesting.  So once again, the autoimmune system seems to be involved.  We have all noted this as a possible issue.  Is your hair really growing ba ck?  My dermatoligist told me nothing would grow it back.....some meds might help the rest from falling out though.  Regarding socio economic, I am caucasian, middle class, past menopause, but I have heard of several younger women such as yourself, including the other patient my doctor was referring to, in the discussion.  Thanks for the info

Comment by Will Be Healed on December 31, 2014 at 3:37pm

The Moducare I take is by Thorne Research. The capsules are plant based sterols and Sterolins. I take one capsule three times daily. The hardest part is taking them on an empty stomach. You are suppose to take them 30 minutes before eating or 2 hours after eating. I take one right when I get up, then right before lunch or dinner and one before I go to sleep.

As for my diet, I eat either 2 hard boiled eggs or natural oatmeal with fruit for breakfast. For lunch either a salad with grilled chicken or ground turkey with mixed vegis. For dinner protein with vegis.

I am curious as to the socio-economic factor you mentioned. I have a very high stress job and also juggle a home life with two small kids, which can also be stressful. I wonder if high degrees of stress caused or contribute to FFA.

Comment by Sad in chicago on December 31, 2014 at 3:09pm

Welcome.  

Yes, what is moducare?  Also interesting to hear about diet.  Now that a new year is coming, and we all need to diet anyway!, this might be a good idea.  Thanks joining and I look forward to hearing more about your progress.  Have you lost your eyebrows too?  My dermatolgist also said there is a socio-economic similiarity for FFA sufferers.  Interesting.

Best wishes for the New Year for all.

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