Comment

Comment by Will Be Healed on January 6, 2015 at 3:46pm

Thanks for sharing the information on the autoimmune diet. Does it mention anything about coffee? I am not sure if it is bad or good for you when you have this condition. I have changed my diet to include most of what you have listed below, and drink coffee everyday, so I am wondering if I cut it out, which will be hard for me, will there be some positive reactions with the FFA.

Comment by Classical Anne in NC mountains on January 6, 2015 at 1:30pm

Thanks again for clarifying.  My genes [and possibly environment] are so bad in this area that I have no less than 8 autoimmune diseases, most of them for 15 - 20 years so far.  My diet is restricted by some of these and/or by the massive amount of medications I take for them.  Which is why I have refused any systemic meds for FFA, but also already feel limited enough in diet.  I am trying to 'clean up' parts of my diet, but I know better than to think I could stick to further restrictions for life.  But I do believe the leaky gut syndrome is at the root of our problems, and fully support anyone's aim to tackle it with diet.  In my case, it will just be more moderately modified.

Comment by Sas Holland on January 6, 2015 at 1:19pm

well yes Anne and Sad, I was confused too at first, you read so many different things about diets and health on the internet. But these books really made so much sense to me and ~I have read many testimonials from people with (other) autoimmune diseases who felt so much better and had less flares of no flares at all anymore, that I am willing to try this.

I look at my FFA more as an autoimmune disease now and not specifis as a hair disease.

The Autoimmune Protocol is based on that there are 3 things that contribute to autoimmune diseases:

1: bad luck with your genes

2:environmental issues like toxics around us

3-the food you eat, this can cause a leaky gut

You can not do anything about he first two, but we can  change our diet.

oh and the meat has to be range-fed by the way

After a while you can add some foods again like eggs and nuts for an instance , and wait and see whether you don't have  a reaction on those  but mostly it is indeed for ever.

I hope I can try this for at least some months and see how I feel then.

Comment by Sad in chicago on January 6, 2015 at 12:37pm

The diet is interesting, but meat is very inflammatory I thought, so I am confused about what is ok and what is not.  I think sticking to low carbs and no sugar and eating as clean as you can, which you are doing with the exception to the meat, is the way to go.  Good luck!

Comment by Classical Anne in NC mountains on January 6, 2015 at 12:30pm

Thanks, Sas, for the new info, and especially the reference studies.  Do let us know after a couple weeks just how hard it may be to stick to the diet.  And is it forever?!

Comment by Sas Holland on January 6, 2015 at 4:52am

Hi everyone,

I just started the AutoImmune Protocol diet (AIP, which is a stronger variant of the Paleo diet) 5 days ago.

I have read so much on the internet and in books about it and I am very positive to give this a try because it will get to the root of the problem (leaky gut which seems to be the cause of all autoimmune diseases) and not just trying to fight the symptoms.

My derm wanted me to start on Cyclosporine A. But I feel it's very unhealthy for the rest of your body, so I don't want to try that at this time in my live. Maybe if the diet does not work at all and my FFA starts to really get active again and really starts to show I will change my mind about it. But for now It just doesn't feel good to put this  strong medicine in my body.

. This means I cannot have the test stemcell transplant also (even though my FFA is in remission now) , which is a pity. They only want to to that transplant if I am on Cyclosporine.

It is a big adjustment for me especially breakfasts, this AIP diet, since I cannot eat eggs, dairy (this means also no butter and ghee) , legumes, potato, tomato, sweet pepper(paprika), grains and pseudograins, nuts and seeds or refined sugar.

I am also not a fish eater, I just hate it. So its basicly just eating meat, moderate poultry and fruit and vegetables.

It's a elementation diet so after a while I can try to eat eggs and nuts and seeds and ghee and perhaps pseudograins again, one after another.

I remember some of you are on special diets as well, but forgot who.

I have read The autoimmune Approach by Sarah Ballantyne and The Autoimmune Epidemic by Donna Jackson Nakazawa.

Comment by Debs on January 5, 2015 at 4:01am

I have just ordered some Moducare too on Amazon in the UK, I only use herbs and suppliments now so this is something I am excited to try. It will be good for my overall health and if it helps the FFA then fantastic. It looks like a well researched product.

Comment by Will Be Healed on December 31, 2014 at 5:20pm

By the way, my eye brows have thinned, but show some re growth too. I forgot to answer that question.

Comment by Will Be Healed on December 31, 2014 at 4:29pm

I will tell you that as your body is adjusting to the Moducare, you will feel tired for about 2 weeks. I wish you success in growing hair back!

Comment by Sad in chicago on December 31, 2014 at 4:25pm

Moducare on the way.....what can it hurt?  Happy to see some success with something! 

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