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Comment by Will Be Healed on December 31, 2014 at 4:20pm

Right above my forehead and on the right side at my temple is where my hair grew back. Not at the normal level, but some growth. I was starting to get three bald spots above my forehead and they have grown back. I too was told that nothing would grow my hair back, but when I took Moducare it started to grow. My sides are still a problem. Not a lot of progress there, but I will take what I can get, especially when I was told it would only continue to fall out with no hair growth.

Comment by Classical Anne in NC mountains on December 31, 2014 at 4:15pm

There's no doubt that high stress can trigger FFA hair loss, but it is not a cause.  As an autoimmune disorder, the possibility of FFA [or dozens of other autoimmune disorders] is already lurking in your body.  But stress can definitely set it in motion, or cause flare ups and worsening.  I am sorry that your job is very high stress.  Because FFA is reputed to eventually burn out on its own, and has predetermined boundaries on your scalp, I doubt that continuous stress would make you lose more hair than otherwise; but it may simply accelerate the loss, so that yours may burn out quicker.  That could be a mixed blessing.  Some days I wish my loss would hurry up and burn out, so that I know positively what I'll be left with, and go ahead and make my decisions re: wigs, hairpieces, etc. 

I think the idea of a socio-economic factor is pretty much being ruled out now.  It seems more likely that women in a certain social/economic level are more likely to pursue medical avenues of relief.

Thanks for the detailed info on Moducare!

Comment by Sad in chicago on December 31, 2014 at 4:09pm

I looked it up, interesting.  So once again, the autoimmune system seems to be involved.  We have all noted this as a possible issue.  Is your hair really growing ba ck?  My dermatoligist told me nothing would grow it back.....some meds might help the rest from falling out though.  Regarding socio economic, I am caucasian, middle class, past menopause, but I have heard of several younger women such as yourself, including the other patient my doctor was referring to, in the discussion.  Thanks for the info

Comment by Will Be Healed on December 31, 2014 at 3:37pm

The Moducare I take is by Thorne Research. The capsules are plant based sterols and Sterolins. I take one capsule three times daily. The hardest part is taking them on an empty stomach. You are suppose to take them 30 minutes before eating or 2 hours after eating. I take one right when I get up, then right before lunch or dinner and one before I go to sleep.

As for my diet, I eat either 2 hard boiled eggs or natural oatmeal with fruit for breakfast. For lunch either a salad with grilled chicken or ground turkey with mixed vegis. For dinner protein with vegis.

I am curious as to the socio-economic factor you mentioned. I have a very high stress job and also juggle a home life with two small kids, which can also be stressful. I wonder if high degrees of stress caused or contribute to FFA.

Comment by Sad in chicago on December 31, 2014 at 3:09pm

Welcome.  

Yes, what is moducare?  Also interesting to hear about diet.  Now that a new year is coming, and we all need to diet anyway!, this might be a good idea.  Thanks joining and I look forward to hearing more about your progress.  Have you lost your eyebrows too?  My dermatolgist also said there is a socio-economic similiarity for FFA sufferers.  Interesting.

Best wishes for the New Year for all.

Comment by Classical Anne in NC mountains on December 31, 2014 at 2:59pm

Dear "Will be Healed",

Welcome to the FFA forum!  You will find friends, compassion, and support here.

Your story is interesting, though you have my sympathy for the FFA diagnosis. 

Rather than send email to the whole group, as you did, you will get better responses and conversation if you just post on this discussion forum.  If you are signed in, then scroll down to the "Comment Wall" and enter your message in the small comment window.  Then click on "Add Comment" just below the window.

I am interested in the daily supplement you mention, moducare.  I am not familiar with it and don't believe I've ever seen it mentioned on this site.  Can you give any further details: dosage, form, generic?  You may have added something useful and important to this discussion.

Best Wishes!

Comment by Marilyn on December 24, 2014 at 5:28pm

Very interesting re: prolactin levels-seems there is much connectivity with FFA-I too want to wish you all a peaceful, joyful Merry Christmas!!

Comment by Polly UK on December 24, 2014 at 4:57pm

Merry Christmas and a happy new year everyone!

I was diagnosed last week with dry eyes which the GP said was one of the symptoms of Sjogren's Syndrome another autoimmune disease. He knew I had FFA and a bout of episcleritis in August/September. This is all very interesting and something to discuss with my derm at my 6 monthly appt in January. I have been taking Hydroxychloroquine for 15 months but only 1x200mg tablet since July and one antihistamine tablet daily to help with the irritation on my scalp. I wonder if it's possible to have a test to check prolactin levels?

Comment by Liz on December 24, 2014 at 4:37pm

Merry Christmas to you all.

Thank you for the information about the eye problem and the prolactin levels, both very interesting and relevant to my history.

Have a peaceful New year everyone.

xx

Comment by Debs on December 24, 2014 at 12:21pm

Merry Christmas to you all and a healthy New Year.

Linda, thank you for this info, I have problems with the eye condition episcleritis since June this year. Will check out your info. X

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