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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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The skin where I have lost my hair is pale and does not tan. I have read that skin which is scarred is more prone to skin cancer so I wear a hat when I go out. Also when the skin on my face tans, the white stripe on my forehead looks more noticeable x
Catherine, I have no idea why your Dr suggested sunburn as a trigger. I live in Adelaide Australia where the sun blazes for months. If sunburn was a trigger then there would be a significant statistical variation in the incidence of ffa in this city and that is simply not the case. Enjoy Morocco.
Catherine, I am very careful with sun exposure and don't think I've ever had a sunburn on my face in my life. I don't think it has anything to do with my ffa. It's interesting that the doctor suggested that a sunburn might have something to do with ffa. I've often wondered if it has something to do with the ingredients in sunscreen since I've always been diligent about applying on my face right up to my hairline. Have fun in Morocco. I'm totally jealous!
Hi ladies,
I wanted to ask you about being in the sun with FFA. I have been very cautious ever since I was diagnosed with the condition back in November 2012. Stupidly, I got sunburnt in the summer of that year, and a leading dermatologist even suggested that this could have triggered my FFA. Is this something that has ever been suggested to you?
I am about to go to Morocco and I am a little nervous about being too exposed to the sun. I notice that my scalp gets very itchy when it is hot. I have several large scarred areas around the hairline, and my forehead is somewhat scarred in places too, with areas of pockmarks. Will these areas be extra sensitive? Should I cover up completely or is it ok to be out in the sun a little bit (with lots of sunblock of course)?
Thank you so much for any advice you can offer!
Catherine xx
Jess - thank you - it's just a matter of time and we must all be hopeful ! How did you come across this news ? x
I know I am very excited about it!!!! :)
Thank you Jess. Great news. Great hope.
I wanted to share some hopeful news with all of you!
please read:
http://www.ibtimes.co.uk/tofacitinib-citrate-arthritis-drug-that-cu...
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