Comment

Comment by MJ on June 25, 2014 at 11:51am

Jess, thank you for sharing this! The bottom line that it apparently turns off the attack on the hair follicles gives great hope!
MJ

Comment by jess on June 25, 2014 at 10:41am

I wanted to share some hopeful news with all of you!

please read:

http://www.ibtimes.co.uk/tofacitinib-citrate-arthritis-drug-that-cu...

 

Comment by Debs on June 16, 2014 at 4:17am

Please check out "wearing wigs/hairpieces" discussion if you are in the UK. I have posted details of salons that make hair systems/pieces that members of our group have already used so we can safely recommend them.

Comment by claire on June 11, 2014 at 12:14pm

Hi Ladies,

I have today seen a great Doctor who listened and wants to send me for a second opinion to someone who specializes in Auto Immune and Dermatology.Does anyone see any Consultant in London who might be worth a visit.

I also think I may well be thinking about a a hair piece soon maybe for my fringe. I know the ladies near Birmingham see a good person how about in the South East- Any suggestions welcome.

Claire.

Comment by Jen on June 9, 2014 at 1:23pm

thank you Alice. I am happy that your eyebrows have been restored. This is really helpful information.

Comment by Alice on June 9, 2014 at 12:00pm

The Elidel cream I use on my brows is the same stuff that is used for eczema.  I got some samples from my derm and they last forever.  I use a small amount once a day, in the evenings. The only side effect I have noticed, and it might be from the FFA rather than the drug, is that the skin under my brows burns if I wash my face in water that is too hot.

An abstract about using Elidel for brows in FFA can be found here -  http://www.docstoc.com/docs/146099490/KATOULIS-EN  In the reported case, the patient was also using oral dutesteride, aka Avodart, which I have refused. I'm trying spearmint instead to lower testosterone levels.

Comment by Classical Anne in NC mountains on June 9, 2014 at 9:51am

Alice, thanks for your response.  So you do not add Rogaine to your eyebrows as well?  Just Elidel on the brows?  I'm wondering if it's safe/appropriate to use both on my brows, maybe one in the morning, the other in the evening.  Just got the Elidel samples from my Derm last week and haven't started using them yet.  And forgot to tell her I had finally begun the Rogaine on my brows [which she had suggested for my scalp] so the question of interaction/conflict never came up.  Anyone else have thoughts?

Comment by Jen S. on June 8, 2014 at 8:23pm

Love hearing about the re-growth some of y'all are seeing.  Fingers and toes crossed!  :-)

Thanks for sharing! 

Comment by Jen on June 8, 2014 at 7:51pm

Alice,

This Elidel that you speak of is listed as treatment for eczema. Is this the same thing you use on your eyebrows?

Jen

Comment by Alice on June 8, 2014 at 6:41pm

Anne, I use both Elidel and Rogaine, but not on my scalp. I use Elidel on my brows, which are nearly back to where they were pre-FFA. I use 5% Rogaine on my scalp at night snd betamethasone diproprionate in the morning, to help with the itching. I've recently noticed that I have new hair growing right along the hairline, which I did not expect. The Rogaine (I use a generic liquid version) has really helped my hair look thicker but mostly on top. I haven't had much new growth on the sides but am able to cover that up.

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