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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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Hi Ladies,
I have today seen a great Doctor who listened and wants to send me for a second opinion to someone who specializes in Auto Immune and Dermatology.Does anyone see any Consultant in London who might be worth a visit.
I also think I may well be thinking about a a hair piece soon maybe for my fringe. I know the ladies near Birmingham see a good person how about in the South East- Any suggestions welcome.
Claire.
thank you Alice. I am happy that your eyebrows have been restored. This is really helpful information.
The Elidel cream I use on my brows is the same stuff that is used for eczema. I got some samples from my derm and they last forever. I use a small amount once a day, in the evenings. The only side effect I have noticed, and it might be from the FFA rather than the drug, is that the skin under my brows burns if I wash my face in water that is too hot.
An abstract about using Elidel for brows in FFA can be found here - http://www.docstoc.com/docs/146099490/KATOULIS-EN In the reported case, the patient was also using oral dutesteride, aka Avodart, which I have refused. I'm trying spearmint instead to lower testosterone levels.
Alice, thanks for your response. So you do not add Rogaine to your eyebrows as well? Just Elidel on the brows? I'm wondering if it's safe/appropriate to use both on my brows, maybe one in the morning, the other in the evening. Just got the Elidel samples from my Derm last week and haven't started using them yet. And forgot to tell her I had finally begun the Rogaine on my brows [which she had suggested for my scalp] so the question of interaction/conflict never came up. Anyone else have thoughts?
Love hearing about the re-growth some of y'all are seeing. Fingers and toes crossed! :-)
Thanks for sharing!
Alice,
This Elidel that you speak of is listed as treatment for eczema. Is this the same thing you use on your eyebrows?
Jen
Anne, I use both Elidel and Rogaine, but not on my scalp. I use Elidel on my brows, which are nearly back to where they were pre-FFA. I use 5% Rogaine on my scalp at night snd betamethasone diproprionate in the morning, to help with the itching. I've recently noticed that I have new hair growing right along the hairline, which I did not expect. The Rogaine (I use a generic liquid version) has really helped my hair look thicker but mostly on top. I haven't had much new growth on the sides but am able to cover that up.
Quick question. I have spent the afternoon reorganizing my scarf closet. It has given my whole wardrobe such a boost. I know that I am fortunate to still need no other accessory hair. But I'm trying to be patient and hopeful that my eyebrows can be rescued. Does anyone use BOTH Rogaine and Elidel [or similar combination] at the same time?
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