Comment

Comment by Jules UK on May 31, 2014 at 2:03pm

Thanks, C! Would you just email it back to me as an attachment please? Sorry, I should have said. There's another telephone conference on Thursday and I think we'll be discussing the pilot survey and people's responses to it.
By the way, I had a bout of cystitis this week and rather than opt for antibiotics as I've always had to before, a friend recommended Piriteze. It worked! So I'm going to take it regularly now as I think some of you do already. X

Comment by Maddy, California, U.S. on May 31, 2014 at 12:52pm

MJ, I had surgery (not real minor either) in early March and had no flare-up of my FFA. My surgeon had me take Arnica and Bromelain a few weeks prior to and after surgery (and had me stop all other supplements) to reduce the inflammatory response. It worked wonders for me.

Jean, That is interesting about your reduced capacity to fight infections. I posted a long post under the topic "Could Antibiotics be a Trigger for FFA," regarding the fact that I was recently diagnosed with Common Variable Immune Deficiency," Subclass 2 and 3 deficiency...which my doctor indicated could, at some point, make me have a reduced capacity to fight infections. So far, it hasn't, because my other two immune systems (subclass 1 and 4) have been compensating, but at some point that will probably stop. 

Comment by Celia on May 31, 2014 at 11:53am

Jules - I have completed this but have no idea how to send it on - or to whom. 

Comment by Jules UK on May 31, 2014 at 10:38am

Hi, can I just check with C, Sammi, Caro and Pam please, whether they had a message from me? I've asked you all whether you'd mind piloting our hairloss steering group survey. Please would you check your messages? Thanks so much...x

Comment by MJ on May 31, 2014 at 8:04am

Hi all, Has anyone had minor surgery without a flare up of FFA? i somehow managed to jam my big toe nail back into the nail bed. It was initially swollen ans painful but subsided. Went to foot doc amd she said probably need to have nail removed, but is ok just watching it. Well, with actvity, it is sore again. I am nervous about any even fairly minor procedure reactivating FFA.
If the goal is to avoid inflammatory response from surgery, then leaving it as is, with a sort of chronic inflammation is probably not a good option either. Any insights? MJ

Comment by Jean on May 30, 2014 at 5:20pm

Hi everyone

Reading comments from fellow sufferers has kept me sane!  We've just returned from Italy and I've been bitten to pieces by mozzies (no hair on arms or legs).  I had to get antibiotics when I got home because I seem to have a reduced capacity to fight infection.  The FFA is very slowly advancing but I'm determined that it won't take over my life.  The information on 'part wigs' has been particularly welcome so thanks to you all for your helpful and positive comments.

Love Jean

Comment by Jen on May 30, 2014 at 5:05pm

Cekia,

Thank you for creating this forum for us to use. It is much better to have contact with FFA sufferers and share coping skills. Thanks everyone for your input.

Comment by Celia on May 30, 2014 at 4:46pm

Ladies, we are approaching 2 years now of communicating on this site............................. June 2012 it began.

I believe we have all learnt from each other and have given and received wonderful support.

It would be great to hear from friends who haven't spoken for a while here.  Perhaps you have moved on somehow - that's good.

Best wishes to all.

Comment by Celia on May 30, 2014 at 12:06pm

Must have been a blip.  All that talk of Avodart !!  I lost all prompts to look at posts for a while too.  I go to an old message to get back in - strange.

Comment by Classical Anne in NC mountains on May 30, 2014 at 11:30am

Thanks, Jen.  Came thru alright.

• ‹ Previous
• 1
• …
• 279
• 280
• 281
• 282
• 283
• …
• 506
• Next ›
• Page