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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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Yes, I just need the confidence to take the plunge! Kath, how do you attach your hairpiece? Is it a front hairpiece or a full wig? Have you tried the stick on method?
Hi Debs - you look great in your wigs and you're right; nobody could think that you're wearing supplemental hair.
I too wear a lace front hairpiece and can honestly say that it looks as if it's my own hairline. (If I get brave I might post a photo of myself in it - but I'm a good deal older than you are and the camera isn't really my friend nowadays!)
I'd say to anyone thinking of getting a wig to go to a good wig shop, get professional advice and just give it a try.
Your eyebrow tattoos and the eyeliner are very successful too.
Hi Ladies, I have just posted 2 photos of me in one of my wigs on our forum under the 'wearing wigs/hair pieces' thread. I decided to pop them on to try and help anyone that is worried about what a wig actually looks like on a real life person. The first photo is of me in very close-up wearing a wig (plus tattoed eyebrows and eyeliner) the second photo is me in a group of girlfriends - none of them are wearing wigs so you can 'contrast and compare' my wig with their natural hair and you can see there is no discernable difference. I hope if anyone thinking of trying supplemental hair this will help you in some small way. XXXX
I went to see my dermatologist this week and he has referred me to Dr Harries. My derm didn`t know about Dr Harries until I told him about his research interests, so it is only due to this group that this knowledge is getting spread around - so thanks everyone!
Thanks for the feedback. If anyone has tried using the stick on hairpieces do let me know. Your hairstyle sounds good Jules, and will hopefully mask the condition for some time. I have been carefully having my hair cut for several years, but it is now that it is hard to hide it, and I have started looking at wigs and hairpieces. I bought a nice wig from trendco, but so far have been too scared to wear it out!! I thought that maybe a front hairpiece would look less obvious. But the thought of having sticky tape on for weeks or days does seem rather nasty, so that`s why i wondered if anyone else had tried them?
Hi Jules - Dr Harries suggested I use Regaine as well as steroid and Plaquenil. Your hair do sounds good ! X
Has anyone been advised to try stick on hair pieces? I saw a guy this week who works in a wig salon, and he recommended I try a natural hair strip that would stick along the front of my hairline where my natural hair has receded. He said he could match the colour, and it would be attached by a sticky tape which could stay on for weeks on end. I am a bit concerned that it could strip off any of my residual hair left underneath unless it is really in the right place. Has anyone tried using this system?
Christiekd, thanks for the information regarding your flare-up. I also lost a family member in August and wondered if that might affect my progress. My scalp feels better this morning.
Sam, I was also nervous about shedding eyebrows with Rogaine, but decided to try it anyway. I did shed a few, but they were quickly replaced. Within a month my eyebrows were thicker than they had been in years. I should mention that my eyebrows have not been affected by the FFA yet. I've never been blessed with thick eyebrows, and they have thinned over the years. You can find instructions online that tell how you should use Rogaine on eyebrows.
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