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Comment by Miss Mymble on November 28, 2018 at 7:37am

Just to join the choir of praise to your new fab look, Bloomingdalekid. Your hair looks stunning and you eyes looks bright, happy and a little proud (yeaaah! If that’s right, you should be!!). 

Thanks for putting yourself out here and post a picture. It’s indeed encouraging to see how natural and good it looks. Just wow.

I also agree with your statement about us being the guineapigs in the doctors(who-don’t-seem-to-have-a-clue) hands. And I like your little warning about the meds - reminding us to give it some extra thoughts before popping those pills. I don’t thing any of us take the risk lightly. It’s really a matter of pros and cons...and not knowing. Not an easy decision at all. But thanks again to show us how good we can look with this awful disease. 

Ive just written to my normal Doctor (not the dermatologist) and asked him if it’s possible for me to try LDN (Low Dose Naltrexone). Have any of you tried that? Supposedly it should be good for some auto-immune diseases (I have no idea if it will work for FFA. On this board I can see some people with other forms of Alopecia have some success with it).  I would like to try to see if it can improve this but also other health struggles I’m unfortunately dealing with these years. But yeah, I don’t know if my doctor will be willing to let me try. But if so I’ll of course let you know whether it improves something for me in regard to FFA.

I’m also debating with my self if I should try Finasteride. Have asked the dermatologist for a new appointment to discuss it and other options.

But seeing your picture, Bloomingdalekid, really makes me question again if the risk is worth it. No matter what, then it’s cool to know there’s a safe option to regain your hairline again = helper hair. :) 

As I live in the semi-dark North the heat is not something I worry about in regards to a topper (though this current summer was crazy and unusual hot). But I do worry about if a topper (like the one you have) can withstand a sauna (I do the whole winter bathing thing..swimming in the ice cold ocean and end it with sauna-sessions.bliss!). Does anyone know if it’s “safe” to do that with a topper? 

Also, the talk about the need to straighten your hair. What’s up with that? Is it difficult to find a hairpiece with curls? I love having curls so would hate to lose that as well. I know CurlyK has a gorgeous curly hairpiece (thanks for showing us) - but is it hard to come around? 

Comment by Minter on November 28, 2018 at 6:53am

Bloomingdalekid you look so beautiful!  Thank you for sharing and oh yes, as a braces kid too the comparison to getting them tightened is right on! Funny how that feeling from decades ago can come right back haha :-D

Comment by Halfbakedwho on November 28, 2018 at 4:29am

Bloomingdale kid - your comments about getting used to it (like braces) and getting the Brazilian hair straightening made me so crazy-happy! I will explain- 

I am an orthondontist’s daughter - I was also a braces guinea pig for years. So somehow that just clicked for me. My inner braces-kid was very comforted. 

And - I really loved my hair when I got it smoothed down with the Brazilian straightening - which I don’t do anymore as per my dermatologist’s advice to try to keep my hair on my head. When this is no longer an issue - when it’s « hopeless » (ha!) then I can at least get what’s left looking smooth and nice! 

Then of course... I am worried for the reasons CurlyK brought up... I too tend to be an itchy person. Could you be developping an allergy to the glue or to the latex? Maybe a switch is in order. 

Comment by CurlyK on November 27, 2018 at 9:37pm

Bloomingdalekid you look fabulous! I’m so happy you found a place to get bonded hair. They are out there ladies! 

I’ve been going through a stressful time and have been itching a lot lately in my temple area and down onto my face. Does anyone have a recommendation on how to deal with this kind of itching? I’m not worried about losing more hair as it’s mostly gone but the itching is annoying. 

CARF has a new website up. I encourage y’all to peruse it from time to time as they update with new research as it becomes available. I’ll be writing my hair story over Christmas break and putting it on their site. 

Stay strong and know you are beautiful inside and out! 

Comment by Liverette on November 27, 2018 at 8:04pm

Simply beautiful Bloomingdalekid! You just gave me so much hope. I live in Glendale CA and would love to know how and where I can have a hair piece similar to this one made. I’m willing to drive to meet your hairdresser and see if she can help me with the styling. Thank you so much for sharing your photo with us!

Comment by Donna on November 27, 2018 at 7:34pm

You look really good Bloomingdalekid .  Where did you get that piece & was it expensive?  

Comment by illustr8r on November 27, 2018 at 6:59pm

@BloomingdaleKid Wow! You look terrific! Thank you for sharing your new hair with us. Very encouraging!! Everything is a big leap with this awful disease-drugs or no drugs, wig and what kind and when...! What a journey!

FYI Got the TatBrow. It’ll take practice but it does give you eyebrow looking strokes. Goof up and it’s a bit unforgiving. I think I’d be handy with a single stroke brush instead of the 3 fork one. Navigating the eyebrow arch is a little awkward.

Comment by Bloomingdalekid on November 27, 2018 at 5:41pm

Halfbakedwho - I actually did a Brazilian Blowout of my naturally curly hair to fit in with the wavy hair in my unit.... it all blends in so naturally.  I’ve had the piece for about two weeks and initially the links hurt my head - awake or asleep - kind of like the first few days after you get braces tightened.  It disappeared after a few days.  I don’t even notice the hairpiece any longer - it does feel strange when you have to itch the top of your head - rubbing instead of scratching.  You feel the fake scalp.... but getting used to that too.  The bonding on the forehead is really new - and it’s already started to pull up - but my hairdresser said she will teach me how to handle that on my own.  For now, I sleep in it, wash my hair in the shower, I can swim with it.... it’s like my own hair.  AND, I just wake up in the morning, brush it and do very little else and it looks good.  So far, I am happy.  I do live in California, so it doesn’t get that hot here normally - will have to see how I do with it in the summer.  For now, all is good.  

Comment by Plf on November 27, 2018 at 5:20pm

Wow, Bloomingdalekid, so nice, good for you for finding a solution, good luck to everyone else 

Comment by KarenD on November 27, 2018 at 5:14pm

You look absolutely beautiful with your new look Bloomingdalekid!  Thank you so much for posting it and giving us all something positive to focus on! Can you tell us how it feels on your head?  Do you notice it continuously?  Is it hot?  Give us the details on how it is to live with your new hair!  

It truly does help to see those of you have gone the hair route looking so natural and lovely on those days when we are a bit overwhelmed with what lies ahead.  Makes it easier to imagine how life can just go on and we will all be fine!

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