Comment

Comment by Bloomingdalekid on August 7, 2018 at 4:46pm

Even though my FFA hasn’t progressed as far as many in this group, I, too, have taken the plunge into getting a hair replacement system.    It won’t be here until November and will post pictures at that time if anyone is interested.  I knew it was time when I caught a glimpse of myself in the mirror and unexpectedly saw just how much hair had receded - I cried.  I will NOT let this disease depress me when there are other steps that can be taken that aren’t going to effect my health - i.e. the medications with the awful side effects that I read about.  Eyesight loss?  Really?  Not for me.  

Comment by Meme on August 7, 2018 at 4:03pm

Hello everyone.

i have had FFA for Over 14 years. Last week I made the momentous decision to shave of what hair I had left and get a wig. I don't regret it for one minute. My FFA no longer runs my life instead I am in charge of it. I feel liberated. It's been a bit hot to wear the wig so I have just had my base ball hat on. I have had no stares and no comments in fact no one has taken any notice of me. I hope this helps anyone who is undecided on the next step to take. All take care. 

Comment by Donna on August 7, 2018 at 1:10am

Does anyone know how long we have FFA before burn out happens

Comment by Minter on August 1, 2018 at 9:10am

CurlyK, you look awesome! 

& to you &  illustr8r, that is great news that it has burned out!

Comment by Afraid on July 30, 2018 at 2:39pm

Curly K you look amazing!  Thank you for sharing. 

Comment by illustr8r on July 29, 2018 at 7:18pm

I don’t want to gooch myself but my hair loss has slowed significantly. I had one blip when I was traveling with a hot spot on my scalp but it didn’t lead to any hairloss *knock wood*. I do t know if it’s burned out because I still have to use Latisse to preserve my eyelashes. Maybe they are the last on the FFA list to attack-I do t know. Arm hair and leg hair is still there (but less than normal) and that’s stayed about the same. 

Castor oil has improved my hair thickness all over and my bangs even appear normal’ish from where they were headed when I was first diagnosed. Hairline has receded about 2.25 cm. I’ve had about 1/4 regrowth forward. Wish it were more but I’ll take what I can! FYI-no drugs but for Clobetasol if I get a burning itchy spot.

Comment by BubbaLu on July 29, 2018 at 6:42pm

CurlyK,

your hair looks beautiful as do you!

Comment by CurlyK on July 29, 2018 at 5:48pm

I think mine has burned out. I don’t see anymore loss, however, the natural hairline has receded beyond the ears and diffuse loss through the crown. Unfortunately I had already lost most of my hair by the time I was diagnosed. 

Check out my new profile pic! I got a new bonded hair piece yesterday! My annual gift to myself! 

Comment by Bloomingdalekid on July 29, 2018 at 1:30pm

My hairline recession seems to have slowed down, but now I am losing hair at the crown.  When I shampoo I can’t believe the hair in the drain.  It almost makes me cry.  My eyebrows are almost completely gone and after reading posts on this website I checked the hair on my arms - yep, gone too.  This disease is crazy..... and so NOT understood - only devastating to those of us suffering from it.  Doctor’s don’t understand “self esteem” issues - it’s only hair.. until it isn’t.  

Comment by Plf on July 29, 2018 at 2:57am

Hi Yash, good question..I don't think I have had any more hair loss for six months, nor can I afford to, eye brows have remained the same, .I am in hope that this is it..but apparently it is a very slow persistent disease

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