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Cheryl, Co-founder

Female

Detroit, MI

United States

Profile Information:

Relationship Status:: Married
About Me:: I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world… AlopeciaWorld.com!

PS: Don't forget to check out our book:

Whole in the Mirror: From Fractured Identity to Fierce Self-Acceptance:

Available on Amazon:
https://a.co/d/6emBEMY

Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
cheryl@alopeciaworld.com

"It's Hair Loss Support At Its Best"

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Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://www.alopeciaworld.com

Comment Wall:

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Shannon

AwesoMe IDea!!!! Hopefully it will help us all keep in touch better!!!

Mar 18, 2008
Shannon

i am great... mom is good iam about to make her a profile so she can get on here... thought she would like to keep in touch with you guys too!!! ... How is everything in your world??? hope it is great,.. Yes we are going to the conference it is only like 3 hours from us so thats exciting... plus Jill is getting married that weekend in ky so we are gonna take a detour there!!!

Mar 18, 2008
Vi

Has anyone found any great alternatives to wearing a wig? I live in a colder climate and work professionally, so I have to keep my head covered at times. Thanks. Vi

Mar 18, 2008
Matt

Thanks! :)

Mar 18, 2008
Angell

Thank you for the wonderful, warm welcome. I am starting to find peace here already.....Angell

Mar 18, 2008
JeffreySF

Thanks Cheryl, I'm sure I will enjoy the Group.

Mar 18, 2008
Sarah McIntosh

Thanks,for welcoming me.To be honest I honest I have to admit that it's comforting to see so many beautiful bald woman.I haven't ever really ever had much contact with anyone with Alopecia to the same degree as me and now there's a support group filled with men and woman just like me.

Mar 18, 2008
JeffreySF

Thanks for passing on the word Cheryl. And thanks again for the Group

Mar 18, 2008
Jennifer

did you and rj start this site up yourselves?
great job and thankyou.... its wonderful to chat and exchange stories with people who are going through the same thing..... we should all feel blessed that you have created a site like this to come to.....its like having a second home... :) your an angel!

Mar 18, 2008
Tanya

Hi Cheryl! I'm still shy about being non-anonymous, but I wish the alopecia groups on Facebook will hear about AlopeciaWorld! Great job you and RJ :)

Mar 19, 2008
Yvonne~Yhoney

Thanks for all of your hard work getting these forums together for us to spread love and acceptance for one another... You both are beautiful spirits sent from GOD!

Mar 19, 2008
sandra

Thanks for the welcome

Mar 19, 2008
Martina Wright

bravo on this site - it has been a godsend for me at this stage in my life. Thanks for your greeting - and thanks for welcoming my mum to the site too! It means alot to her. (Lynette Wright) Again - Awesome job with this site!!!

Mar 19, 2008
Angela Jackman

it is a fantastic site - we have already set up an Australian group as I know there are SO many people that would benefit from this site - well done!! there really is no point me even thinking of doing an Australian site this a far superior to anything I could have done.... I have invited my members to get involved - the more the merrier!! I am VERY OK with my alopecia but this website has given me even more strength!
Keep in touch
ANGELA

Mar 19, 2008
Orbit

Cheryl, thanks for creating such a positive environment for those of us living with alopeica! :-D

Mar 19, 2008
JeffreySF

Hi Cheryl, Just wanted to say hello and thanks again for the site.

Jeff

Mar 19, 2008
Madisonsmom

Hey Cheryl, Thanks for the welcome!! I'm still trying to learn my way around! Looks like a great site!!

Sharon

Mar 19, 2008
Laura Zinger

HA! Yes, I do Cheryl! You can read more about that here if you want: http://baldiegirl.com/content/

I'm trying to start a funny website for women who have Alopecia! I just learned about Alopecia World tonight and I think it's awesome!

Mar 19, 2008
Laura Zinger

Cheryl! You launched last Friday?! that's incredible! Thank you for setting this up! It's amazing!

This summer I'm going to add a lot more to the website: video and web reviews, and I would love to post up an ad or something for Alopecia world on the website for people to access for free. You can email me at info@baldiegirl.com. It's probably easier to talk that way then through the comments!

Mar 19, 2008
Joshua

Hi Cheryl, yeah...Dotty just show up everywhere...she the "bestest" friend you can ever have....she's truly a selfless person...!

take care

jt

Mar 19, 2008
helga

Thanks- and I`m so happy to find the AW!

Mar 20, 2008
Nicole

Hi Cheryl!
Thanks for welcoming me! I love this website....it is great to have a site like this where we can all learn from each other and find comfort in relating to one another.

You are engaged to!! That's great! When are you getting married?

Mar 20, 2008
Nicole

Oh great! I will be sure to post my wedding pictures as well! I am getting married May 16th...in less than 2 months!!! I am so excited!!

Mar 20, 2008
carrie

Hi. Thank you for the warm welcome. It is a great site you have here. As a parent of an alopecia child I have worked hard to make people in the community aware of what alopecia is and how it can effect those with it.

Mar 20, 2008
Tracey & Tammie

Thank you for making me feel so... welcomed!

Mar 20, 2008
Emily

Cheryl, thank you so much for your comment on my blog. It really resonated with me and my experience. This is the best thing about this site - knowing that there are people out there who can truly relate and understand...thanks.

Mar 20, 2008
Laura Zinger

Cheryl! Have fun out of town, and I'll talk to you later!

Mar 21, 2008
Mary

Thanks for the warm welcome. I feel much less alone already! Keep up the great work!

Mar 21, 2008
Catharina

Hej! I really like what you do and have done! Myself I am very close to go without a wig.I really do not feel free when I have it on.I will soon send a foto without a wig. Love from Catharina

Mar 21, 2008
Babe

thanks for the welcomeing! i was really nervous about joining but im excited to meet nice new people!:)

Mar 21, 2008
claire taylor

Thanks for the welcome, its like facebook for for baldies lol!!!
Think i will enjoy this,
Ive not posted any pics yet without my wig but next week I am being filmed for an NHS website that shows short films on different conditions im doing alopecia my friend is the producer and when she asked me if she could interview me I jumped at the chance, I will also be gettin filmed having a wig fitted so I will go bare argggghhhhh, bit scared im not bothered about strangers seeing me its friends and family, there is only Dave who has seen me without my wig in the last 6 years or so.
Would love to make lots of new friends on here and here different stories xxx

Mar 21, 2008
Bonnie Lowry Cox

Hi Cheryl! I missed you at last year's conference, didn't go, maybe this year..... This is a great site created!

Mar 21, 2008
Bonnie Lowry Cox

One of your pics is my hair!!

Mar 21, 2008
Synnöve Pettersson

Hi, I hope you will have a happy eastern. It´s really fun to be a member of this site. I never have my wig on, my children used for school (spex, theatre and so on). Hope you will be my friend.

Mar 21, 2008
rj, Co-founder

Hi, Kissame. I haven't been by your lovely page in quite some time, but know that it's not forgotten. Thank you being my partner in work, love, and life. It's such a privilege and honor to love and be loved by you. Love, rj :-)

Mar 22, 2008
Alina

Many thanks !

Mar 23, 2008
Alina

Hi,
I`m completely bald since 2006.Here doesn`t exist any support for people with alopecia.
So,I`m happy talk to you.

Mar 23, 2008
Courtney

thank you!
I'm so glad I was told about this page. I have a few friends on facebook with Alopecia but around where I live I haven't met many people and there are no support groups.
hope to talk soon
snort.xox

Mar 23, 2008
Sara

Of course I am going to Kentucky! I cannot wait... getting all of my arrangements taken care of in the next few weeks!
How are you?

Mar 24, 2008
Sarah McIntosh

No,I actually was raised in Montreal,Quebec.When I was 17 I moved to Nanaimo,BC,and after about a year I went back home,and about 2 and a half years ago I moved to Edmonton.

Mar 24, 2008
Sarah McIntosh

When I was a lot younger about 14 I think I went to a support group once.Is it possible you were the one running the group.It was at the children's hospital.I thought you looked familiar to.

Mar 24, 2008
Carol

Thanx for inviting me to this wonderful group! I was skeptic at first, past support groups have deterred me from joining new ones, but so far so good! I'm happy to see this site is slightly more Canadian oriented, we are so hard to find otherwise (might have something to do with the cold weather). Keep up the good work!

Mar 24, 2008
Sarah McIntosh

Yeah I lived in pointe st charles.I thought it was you but I wasn't sure.

Mar 24, 2008
LeslieAnn Butler

Thank you! I've been writing this book for four years and finally it's about to be born!
LeslieAnn

Mar 24, 2008
Hayley Burton

just discovered that article about me and don on alopecia and love! X

Mar 25, 2008
JimB

Hi, Cheryl, thanks for the welcome ..... I just hope I do not offen some of you ..... I have the tend to see things differently that a lot of other people. I look beyound the outside of a person and see what is inside of them.

I like to ask "what", "when", and/or "why", and sometimes "what if".

These like quick questions, and the answers you receive, tend to tell a lot about peopele, becasue they, sometimes, have to stop, think, look deep within their self, then answer. When a person has to do this it makes them think a lot about things, bad and good, but it makes them think. Sometimes they wonder.

Thank you again for the welcome .....

JimB

Mar 25, 2008
Ashley

My link on my page should be working now. I fixed it, i hadn't realized it was messed up. Hope you are having a good day =)

Mar 25, 2008
Courtney

thanks for the welcome =)

Mar 25, 2008
Rebecca

Hi, Cheryl.
Thanks for the welcome! I'm sure I will enjoy the time I will spend here. This is until now and what I've seen, the best Alopecia community I've ever seen :)

Rebecca

Mar 25, 2008
Sarah McIntosh

I actually went with my friend.But my dad did come to a wig demonstration.I thought it was you to I just wasn't a hundred percent.I am doing well .I feel very lucky and blessed.I can see you still always have a smile.Thats what I remenbered about you was your smile.

Mar 25, 2008

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