25

Cheryl, Co-founder

Female

Detroit, MI

United States

Profile Information:

Relationship Status:: Married
About Me:: I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world… AlopeciaWorld.com!

PS: Don't forget to check out our book:

Whole in the Mirror: From Fractured Identity to Fierce Self-Acceptance:

Available on Amazon:
https://a.co/d/6emBEMY

Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
cheryl@alopeciaworld.com

"It's Hair Loss Support At Its Best"

----------
Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://www.alopeciaworld.com

Comment Wall:

Load Previous Comments

rj, Co-founder

I LOVE this woman! :-)

May 7, 2008
Tori

Thanks for the encouragement!! -- Still feel very naked -- I'm trying to make myself sit outside on my back deck and sun my head (God it is sooooooooo white!! hahah) But the Warmth feels so goooooood!! What a great looking couple!! ----------- Tori

May 7, 2008
Roxana

Thank you!

May 7, 2008
Liz

Thanks for the comment! Everything is going great. She's kicking as I type!

May 8, 2008
Amy

Thanks for the warm welcome!! I finally feel like i'm in the right place :)

May 8, 2008
carly

thank you!=]

May 8, 2008
Mandy

Thanks Cheryl! This website is fabulous! I'm excited! :o)

May 15, 2008
Donna Evans

Oh thanks! It’s identical to my hair color. It’s weird because it’s a Revlon wig. Nothing special ordered. I wanted to tell you that my crazy husband shaved my head last night. We got a laugh because when I put my stalking hat on it stuck to my head like Velcro. It was pretty hilarious. I’m thankful I don’t have to go in public like this but it feels much better. It looks very clean. We also had a laugh because the first shaving to just get it short enough for another shorter go around made me look like a drunk person tried to give me a Mohawk. My cat had her eyes glued to me this morning when she’d usually be snoozing while I was getting ready for work. Anyway, I wouldn’t have gotten the nerve to do this if I hadn’t seen you and all of the other pretty ladies on here with shaved or naturally bald heads.

May 15, 2008
merita hinnant

glad to be here; glad to meet u; hope to talk to again soon;

May 15, 2008
Steve

Hi Cheryl! I already like the people on here so much! They're so warm and inviting!

Hope you're having a great week!!

-Steve

May 15, 2008
Tony

Thank you for the warm welcome Cheryl!

May 16, 2008
3mee

Thanks for the warm welcome. Makes me feels like home sweet home :D

May 16, 2008
Drew

Thank you for the welcoming, I am really glad I found this place. You and RJ are def a blessing to all of us and I'm so glad you started this site for all of us out here so that we can support each other. Thanks again.

May 16, 2008
Karen Delaney

Hi Cheryl, thank you very much for the welcome...Karen

May 16, 2008
Yvonne Coleman Burney

Hi Cheryl,
Good to see you again and thanks for the loving welcome. Take care

May 16, 2008
Tina

Hi Cheryl! Thanks for the welcome! I absolutely LOVE it here! Everybody is so great!! I feel so much better now knowing that I am not alone.

May 17, 2008
George Blackwood

CHERYL!!!!

I seem to have far fewer sweat glands than others....according to a doc I know...ectodermal dysplasia? Prob related to alopecia, though I don't know how. Not sure; but I tend to heat up in temps where other distance runners would still be comfortable, so my shirt usually comes off fairly early in races in order for me not to overheat and "blow up" (I've gotten very interested in marathon running (but race all distances)). So I'm a running advertisment for alopecia universalis (though race organizers insist that I keep my shorts on on pain of expulsion!).

Congrats on the engagement! He sounds like a really nice guy.

George

May 17, 2008
Kira

Thanks

May 19, 2008
Stephanie

Thanks for the warm welcome, Cheryl. I can't believe I just discovered this site. And you and RJ are both from Montreal -- fantastic! It's a wonderful thing you've started here!

May 19, 2008
Mandy

Cheryl this website is SO great. Thanks so much for all the work you do to keep this going for everyone. You are truly changing people's lives. Thank you!

May 19, 2008
Zoey

Well Hello there! Thank you soo much for making this wonderful Website!
I am soo glad I found it!!!
You guys are great!!!

May 20, 2008
Kelly

Hi Cheryl, thank you for the welcome. I am amazed so far at the response I have received in just one day. I am looking forward to getting to know many more in the days ahead. This is such a good thing you are doing and such a vital part of coping and recovery. Thank you!

May 20, 2008
Bob Hershberger

Cheryl..Hello..Im writing about a new member named Erin..Under new members from Miami Florida..She says she has been using "Endroncrine Booster" and swears that is what keeps her hair there..I was wondering,Have you ever heard of such a thing,and if so,is it worth a look..Sorry to bother you..I know you must be swamped..Thanks again for being a co-founder of this site..Its long over-due,so good for you..Bob

May 21, 2008
Yvonne~Yhoney

Cheryl,
I just want to say Thank You for having the vision of putting this website together...I see how much this site has grown since I signed up, the numbers will hit 900 soon! :) Keep doing your thing, pushing self acceptance and positive energy! Thank You so much for giving us a place to call home. ;)
~Yvonne

May 21, 2008
Joel

Thank you for the warm greeting! What a nice site.

May 21, 2008
Rachel

Hey!! I see you are coming to the conference, its gonna be great to meet you! When are you getting there?

May 21, 2008
Emma

Thank you for the greeting my only wish is that i had known about this when i found my first bald patch this time round as this loss has been the hardest for me to deal with.

May 21, 2008
George Blackwood

Hey Cheryl

No conference for me; I'm in a pre-med program; no time to shit. Altho I am competing in the Ottawa marathon this weekend.

Other than that, my grip on reality would greatly benefit from a boost of NAAF conference; how many years in a row now have I missed?

BTW, love you as always.

How's Weezy? Send her my love!

George

May 21, 2008
willow

Wow Cheryl what a beautiful site. I have 38 yrs of AU to share with others. Thank you for making that possible. Looking forward to sharing my life with you. People like you make such a difference in life.

May 21, 2008
Bob Hershberger

Hi Cheryl..Actually I was thinking of trying it,I just dont want to be the first..Huh..I guess I'l have to wait..TX..Bob

May 21, 2008
Yvonne~Yhoney

Unfortunately, I can't make the conference this year... I'm taking a trip at the beginning of next month and I don't have enough time off from work. :( I will start planning for next year's conference as soon as they send the dates.

May 21, 2008
Elline Surianello

Hi Cheryl! Thank you for the very warm welcome. You are beautiful by the way!! Please check out my YouTube channel when you get the chance and leave me a comment! Thanks! All the best - Elline Surianello, founder of LeMetric Hair Center.

May 22, 2008
Elline Surianello

oh, great! Thanks for taking the time to look at my videos...

May 22, 2008
LeslieAnn Butler

Hi Cheryl,
I'm so excited!
I just want to let you know that advance copies of my book, "If Your Hair Falls Out, Keep Dancing! are now available! To find out more and order copies, go to:

http://www.nightengalepress.biz/store/customer/product.php?productid=16203&cat=256&page=1

Hugs, LeslieAnn

May 22, 2008
samantha gordon

thanks for that,it seems like a really good site and couldnt have found me at a better time Ben come home from school in tears today due to people picking on him that is very unlike him so I have just been looking through it all and seems great x

May 23, 2008
Samantha

Hi Cheryl,
Thank you for the welcome. It feels great, already, to know that I can talk to others about this...finally!

May 23, 2008
Isabel

Hi Cheryl,
Thank you for the welcome.

May 23, 2008
Gabrielle

Hey:)
thank you so much for making me feel welcome:)
i really hope this group helps me deal with some things :D

May 24, 2008
Mike Vandebeld

Hi, nice to be so warmly welcomed...great site..by the way and very easy to use....I've already found that the contact with others like myself to be strangley comforting...(guess seein' as we're all dealin' with the same thing to one degree or another)...thanx again

May 25, 2008
Mike Vandebeld

I'm sorry Cheryl...what conference?...(and I doubt it) as I live in Canada..and the states is a long way from the Foothills in Alberta......but yeah it is kinda neat to know I'm not dealing with this alone....and that (of course), as bad as mine is, there is people out there with bigger issuses, and maybe I can help with dealin' with esteem issues, or insight as I have no prob. with esteem, (I think rather highly of myself) LOl...anyway off to work have a GREAT day.....MIkey

May 26, 2008
Imbi

Hi, thank you for good wishes and I´m sure I´m going to enjoy my time here with you:) Have a wonderful day!

May 26, 2008
Stephanie

Awwww... Cheryl - I just read the post you put up regarding 'going topless'. It still touches me that things I take for granted (example - you being a drop dead gorgeous bald black woman) still takes some reminding for you. Today at lunch you mentioned some very touching things to me regarding what you have learned from your friends. I would need a day to itemize the effect you have had and continue to have on my life. I have learned and continue to learn courage through you. Sincerity. Acceptance. Listening (one of your best qualities)... I am blessed to have you in my life and love you deeply. I believe our friendship is as deep as it is, thanks to alopecia. We have grown together through many situations brought about by alopecia, hair, assumptions people have, etc. From styling your wigs to throwing them aside to go 'topless'. You are an incredible blessing in my life and I hope my ranting has made sense. I love you Carvery. HUGE ... HUGE hug. xoxoxoxo

May 26, 2008
LORNA

Hi Cheryl, thankyou for the welcome :)

May 26, 2008
Khadijah Wright

XOXO. Yes, I will be going to the conference. I just bought my ticket. So reneging is out of the question. I can't wait to see you again and to meet your very lucky heartthrob!

May 26, 2008
Khadijah Wright

After regrowth, my hair fell again and now I am trying to experient with regrowing natural locks (I previously used perms). I am not sure if I like it as much as I like the baldness. I sort of want to shave it but this may the only time to be natural. I'll see.

May 26, 2008
Melissa

Thanks for the comment. So you're one of the founders? Great idea, this site.

I found it doing research for a paper on women's hair loss for a Women's Studies class, but it turned out to be a great resource for my self.

May 27, 2008
Barbara E. P. Cartmel

Hi Cheryl thanks for your note. You look so great without hair. You are very pretty - if I looked like that I would not wear my wig either!! I was thinking the other day what would I do if my hair came back - I have a feeling I probably would be disappointed and end up shaving my head! I said this before but the people who have aloepecia have beautiful smooth skin it is amazing. Take care, have a nice day, Barbara

May 28, 2008
Lise Marie Bordeleau

thank you ... this site is wonderful.... ty for opening it.... you are all welcoming it very pleasant...ty again...Lise Marie

May 28, 2008
claire

thanks for getting in touch nice to hear from you hope you are ok.

May 28, 2008
Will Jelliffe

Hi Cheryl!

I really like your site. Keep an eye out on Ning's blog in the next few days. Alopecia World will be featured there!

best,
Will

May 28, 2008

25 members like this