I started losing my hair about 6 years ago. It started just before my third heart surgery. The dermatologist diagnosed it as telogen effluvium. It was very scary at first but I have learned to accept it and not let it control my life. I have been very blessed with a surportive family and friends. I really look forward to meeting everyone.
I am currently trying to find a solution that is both comfortable and affordable.
Hi Dawn, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. Cheryl, co-founder
Hi Dawn! Thank you! That new pic is a wig, not regrowth. I wish! :) Yes, we are so lucky to have supportive husbands. Some husbands don't love their wives with hair, and I have the most awesome husband and i don't have hair! He doesn't care a bit, but just wants me to be happy. I love him so much! I feel very blessed to have him and my beautiful son. You should feel blessed as well. Ya know if you do have tellogen effluvium (sp?), your hair should come back eventually. That is something to celebrate! Jenn
i got my wig from loriswigs. i think the website is loriswigsite.com, something like that. it a new style called codi. when i don't have it tucked behind my ears, it looks like the jenny mccarthy new style. a modern bob sort of. do you know the style? i love it! the top is monotop to so the part looks very natural. jenn
hey dawn, your hair is really pretty and doesn't look thin at all? was your pic taken recently? you look great! does the dr. think it might be androgenic alopecia? or is he/she sure it is telogen effluvium?
You are alot braver than you think. Just taking that first step says alot!!
Thanks that pic was last year; I need to post a more recent one. I need to get some more batteries for my camera. It has thinned out alot more recently. It was super, super, super, thick and curly before now it's thinner and straight. Wierd huh?? It's mostly on the sides so the top seems to cover it up.
i read your info. on your page and noticed you mentioned you wish your family was more supportive. i think your acceptance will come easier if they accept it. you should express to them how you feel about their lack of sensitivity. i bet having a heart condition is really tough. do the females in your family (your mom and grandmother, aunts etc.) have thin hair?
I am the only one in my family with alopecia. Everyone has very thick hair.
Whenever I have tried to discuss my condition even in a positive light with family (parents and siblings) they just roll their eyes. It makes them very uncomfortable and uneasy. It really hurts. My family has never been the compassionate type. My mother has never been motherly or sensitive. All of my heart surgeries, none of my family came (except my husband and inlaws) visited until I was well and recovered. Illness and sickness seems to be a sign of weakness to them. I think it is very scary for them and they just don't know how to handle it so they avoid it. With the alopecia, they act almost embarrassed of me. I hate to sound so negative about them, but that is really how they are to say the least. That is okay. I think it has molded me into being extra caring and compassionate for others that have been broken spiritually and/or physically. I have found alot of support from people at my church and a pastor friend of mine.
Hi,
thx :)
This is an Iranian name for a 'sleeping woman'. Iran is my latest fascination. I tried to learn Iranian language a bit but it turned out to hard and too time- consuming.
Though, I am going there for my August holidays this year- can't wait.. :)
And how r u doing?
Thank you! Dawn I'm also the only one in my family with alopecia. I'm sorry that your family is not very understanding to your feelings regarding your condition. My family also had a hard time understanding how I was feeling and how this was impacting me. It will get better
it sounds like your family avoids feeling uncomfortable. some people are like that. they may not mean to hurt you but they have no idea how to deal with it. i keep thinking that your hair loss is different and will come back eventually. perhaps your body was sort of in shock after your surgeries. it sounds like you went through alot with your heart surgeries! i am happy you have a supportive husband. one more question, when you had your son, did your hair come out and then come back again? also, there are some antidepressants that can make your hair come out. i am not sure if you are aware of that, but it may be something to investigate. talk to you soon, jenn
Hi Dawn! Glad to meet you and see you here on the site! We all are in the same situations that vary a bit more but the support and kindred spirits I have found here are wonderful!!!!
Hi Dawn, I read your profile. I am not shocked that your family isn't accepting of it yet. How long have you said you had alopecia? My parents never "accepted" it at first. They never came to one doctor's appt with me. I am not sure why. I will never know to this day why my parents just said, so your hair is falling out. I don't know if it was that they didn't accept weakness or just didn't want to accept something was wrong. I was devastated that my parents wouldn't ask me what was going on or seemed remotely concerned. I went from age 12 to 16 alone, literally. Because of how they treated me I didn't feel that it was ok to tell anyone what was going on. I can get more into depth with that later. I found when I was 16 I was dating a very accepting and nurturing guy. He knew something wasn't right and asked questions. Even made it known that he was there for me and started coming to all my doctors appts and holding my hand when I got injections.
Hi Dawn
thankyou so much for your welcome I have only had AA for just over thre weeks and my daughter shaved the little bit of remaining hair i had left on Sunday. I have been so fortunate that my husband and children have been amazing. Two of my grandchildren wrote me the most beautiful poem I will share sometime It certainly helps to know we are not alone cheers
helen
Hi Dawn.
Thanks for welcoming me. I was just diagnosed yesterday even though I figured it out myself. I only have a few spots and my doc prescribed some cream so I am just learning.
Thanks for the comment Dawn. Most of the pictures are of me before my hair fell out. My profile picture is me with my wig on. I just received a new wig I ordered on Monday so I plan on posting some more pictures with my new wig on. Congrats on building your house. That sounds like a lot of hard work but a lot of fun too!!
Thanks for taking the time and sending a greeting! I will be getting to know more about this site, and learning more about you all great people in the next few days, glad to know I am not alone!
Hi Dawn- The two wigs I have are both Rene of Paris wigs. One is called the Jennifer and the other is called the Erika. I have AU...no hair on my body at all. In May I finally shaved the two patches of hair I had left on my head off. It was hard to finally shave the little hair I had left off, but at the same time I am glad I did it.
My husband and I love to travel! We just moved from Austin to Houston in February. We miss Austin a lot...it is a great place! We really love Chicago and we just recently went to San Fransisco a month or two ago. I think we may try to go to Boston in a couple of months. My husband is a huge baseball fan so we were thinking about going to see a Red Sox's game!
Fabulously thanks! I have had my two wigs for 3 months now! And the photos on my page are all of my wigs apart from the one with the statue of Jesus and one other where my hair is tied back really tight. So I am really pleased with them, think they look pretty good and by now have pretty much gotten used to them as well.
Man, sounds like you have been through a bit of a rough time. I hope you are doing well at the moment, and that the house building is going smoothly - very brave I reckon!
You look great in your photo, and I can imagine it must be weird to change from really think hair to thin and straight. But you look great and people that didn't know you before would never know that that wasn't the hair you always had.
Dawn,
Thanks for welcoming me. Its nice to know there is someone else in Georgia having similar problems. My doctor tells me its not too rare, but i haven't met anyone else with it until I joined here. What is Waynesville close to?
hi the black one is a lhasa apso and hes jack the brother of izzy the one i lost, sorry to hear you have lost yours i understand the pain you will be feeling right now, but think of the good times your doggie had with you x
Hi Dawn-
I am getting to like Houston. We moved here for my husband's job. We loved Austin too. It was hard leaving Austin and all our friends. I think we want to try to go to Boston in the next month or so. We are also thinking about going to Washington DC. My husband has not been there in about 10 years so we though tit might be fun to go to all the museums. My husband is a huge baseball fan so I know he really would enjoy going to see a Red Sox's game in Boston.
Hope you had a great weekend!
HI DAWN, THANK YOU FOR THE INVITE. I REALLY APPERICATE IT. IT ONLY GETS EASIER WITH TIME. I HAVE BEEN TO WAYNESVILLE A COUPLE OF TIMES IN MY TRAVELS. I WISH YOU HEALTH AND HAPPINESS
I also have been diagnosed with telogen effluvium. I've only been shedding for maybe 7 months and am ALOT thinner. As you can tell from my picture, I started out with fine, thin hair and didn't have much to spare. I think I may have AGA and was already slowly thinning but didn't know it - the drop in estrogen (stopping birth control) sent it into a tailspin. I know what you're going through!!
no i dont have family there. i use to drive 18 wheeles and i had a delivery not far from wanynsville, its a quaint little town. almost like monroe, ga. have a great day talk to ya soon
Great to meet ya. Yeah my hair started falling out during my third pregnancy with a boy my other 2 are girls so the doc thinks that my have triggered it plus I have hypothyroidism. I have a full head of hair again from the shots but its thin and shedding like crazy. I' ve also lost some body hair in the female region and part of an evebrow lol but life could be worse. So glad to find this site cause the past year was really rough dealing with this thinking i was the only one out here with hair loss.
Cheryl, Co-founder
May 24, 2008
LeslieAnn Butler
LeslieAnn
May 25, 2008
Cool Head
Welcome. I have family and friends in Atlanta and Roswell. I may be visiting later this year. If I do, I will let you know.
May 26, 2008
jennifer
Jun 25, 2008
Diana Hayden
Jun 25, 2008
Jessica
Jun 25, 2008
Crystal
Jun 25, 2008
jennifer
Jun 25, 2008
jen
Jun 25, 2008
Lori D.
Jun 26, 2008
merita hinnant
Jun 26, 2008
Kristen Ridenhour
Jun 26, 2008
jennifer
Jun 26, 2008
jen
Jun 27, 2008
merita hinnant
Jun 27, 2008
Dawn
Thanks that pic was last year; I need to post a more recent one. I need to get some more batteries for my camera. It has thinned out alot more recently. It was super, super, super, thick and curly before now it's thinner and straight. Wierd huh?? It's mostly on the sides so the top seems to cover it up.
Jun 27, 2008
jennifer
Jun 27, 2008
Dawn
Whenever I have tried to discuss my condition even in a positive light with family (parents and siblings) they just roll their eyes. It makes them very uncomfortable and uneasy. It really hurts. My family has never been the compassionate type. My mother has never been motherly or sensitive. All of my heart surgeries, none of my family came (except my husband and inlaws) visited until I was well and recovered. Illness and sickness seems to be a sign of weakness to them. I think it is very scary for them and they just don't know how to handle it so they avoid it. With the alopecia, they act almost embarrassed of me. I hate to sound so negative about them, but that is really how they are to say the least. That is okay. I think it has molded me into being extra caring and compassionate for others that have been broken spiritually and/or physically. I have found alot of support from people at my church and a pastor friend of mine.
Jun 27, 2008
Khabalu
thx :)
This is an Iranian name for a 'sleeping woman'. Iran is my latest fascination. I tried to learn Iranian language a bit but it turned out to hard and too time- consuming.
Though, I am going there for my August holidays this year- can't wait.. :)
And how r u doing?
Jun 27, 2008
Marisol
Jun 27, 2008
jennifer
Jun 28, 2008
Billie
Jun 28, 2008
Candace
Jun 29, 2008
Jan Pond
Jun 29, 2008
jen
Jun 30, 2008
Melissa Romanowski
Jun 30, 2008
Helen
thankyou so much for your welcome I have only had AA for just over thre weeks and my daughter shaved the little bit of remaining hair i had left on Sunday. I have been so fortunate that my husband and children have been amazing. Two of my grandchildren wrote me the most beautiful poem I will share sometime It certainly helps to know we are not alone cheers
helen
Jul 1, 2008
Tamara Dixon
Thanks for welcoming me. I was just diagnosed yesterday even though I figured it out myself. I only have a few spots and my doc prescribed some cream so I am just learning.
Thanks again
Jul 1, 2008
VanessaVandalism
omg i love alopeciaworld, everyones so nice ^-^
and no one gets bothered about having alopecia :D
Jul 1, 2008
Sarah S
Jul 2, 2008
Liliana
Jul 3, 2008
Sarah S
My husband and I love to travel! We just moved from Austin to Houston in February. We miss Austin a lot...it is a great place! We really love Chicago and we just recently went to San Fransisco a month or two ago. I think we may try to go to Boston in a couple of months. My husband is a huge baseball fan so we were thinking about going to see a Red Sox's game!
Hope you are doing well!
Jul 8, 2008
KATHLEEN WEIBE BROWN
Jul 10, 2008
Kate
Man, sounds like you have been through a bit of a rough time. I hope you are doing well at the moment, and that the house building is going smoothly - very brave I reckon!
You look great in your photo, and I can imagine it must be weird to change from really think hair to thin and straight. But you look great and people that didn't know you before would never know that that wasn't the hair you always had.
Best of luck with it all!
Kate x
Jul 11, 2008
Laura
Jul 11, 2008
Maggie
Thanks for welcoming me. Its nice to know there is someone else in Georgia having similar problems. My doctor tells me its not too rare, but i haven't met anyone else with it until I joined here. What is Waynesville close to?
Jul 11, 2008
Billie
Jul 11, 2008
ruth
Jul 11, 2008
ruth
Jul 11, 2008
claire
Jul 13, 2008
Maggie
Jul 13, 2008
Sarah S
I am getting to like Houston. We moved here for my husband's job. We loved Austin too. It was hard leaving Austin and all our friends. I think we want to try to go to Boston in the next month or so. We are also thinking about going to Washington DC. My husband has not been there in about 10 years so we though tit might be fun to go to all the museums. My husband is a huge baseball fan so I know he really would enjoy going to see a Red Sox's game in Boston.
Hope you had a great weekend!
Jul 13, 2008
Jaime
Jul 13, 2008
Bec.
Jul 14, 2008
KATHLEEN WEIBE BROWN
Jul 15, 2008
susan
Jul 15, 2008
Laurie
I also have been diagnosed with telogen effluvium. I've only been shedding for maybe 7 months and am ALOT thinner. As you can tell from my picture, I started out with fine, thin hair and didn't have much to spare. I think I may have AGA and was already slowly thinning but didn't know it - the drop in estrogen (stopping birth control) sent it into a tailspin. I know what you're going through!!
Jul 15, 2008
KATHLEEN WEIBE BROWN
Jul 15, 2008
Max
=D
Jul 18, 2008
Jessica
Great to meet ya. Yeah my hair started falling out during my third pregnancy with a boy my other 2 are girls so the doc thinks that my have triggered it plus I have hypothyroidism. I have a full head of hair again from the shots but its thin and shedding like crazy. I' ve also lost some body hair in the female region and part of an evebrow lol but life could be worse. So glad to find this site cause the past year was really rough dealing with this thinking i was the only one out here with hair loss.
Jul 18, 2008