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Cheryl, Co-founder

Female

Detroit, MI

United States

Profile Information:

Relationship Status:: Married
About Me:: I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world… AlopeciaWorld.com!

PS: Don't forget to check out our book:

Whole in the Mirror: From Fractured Identity to Fierce Self-Acceptance:

Available on Amazon:
https://a.co/d/6emBEMY

Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
cheryl@alopeciaworld.com

"It's Hair Loss Support At Its Best"

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Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://www.alopeciaworld.com

Comment Wall:

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Chaeri

Hi Cheryl, Nice to meet you~!!

Jan 7, 2009
JODI PLISZKA

HI CHERYL,

CONGRAT'S on a great site!
Looking forward to chatting with you. Have a
wonderful day!
GOD BLESS!
JODI

Jan 7, 2009
Vintino

Hey Cheryl! Thanks for this place! You originally sent me a comment on my birthday shortly after I sent signed up here. It was nice finding this place. I don't want to call it a site..... a place sounds more fitting for me. I have a problem with certain words and when you read rj's comments on "Sympathy" Shave you'll see what I mean.

Anyways thank you again

Jan 8, 2009
Teresa

Hello, thank you for the warm welcome on this site. ^^ I appreciate very much. It is a very good site!

Teresa

Jan 8, 2009
Helenium

Thanx for a great site! I still new to AU and I need all support I can get! Just a few people - my family and my nearest frend know about my alopcia. I hiding it for my colleauges for example. Just a few months ago I realized Bald i Beutiful. Thank You for welcoming me!

Jan 8, 2009
Dr. Laura Finlayson

Thank-you for the welcome, Cheryl. I'm sure that you have medical advisors, and are up to date on the most recent research regarding alopecia areata, but if anyone has a specific question for me I will be happy to help.
Your site looks very informative and supportive for people with AA, and I congratulate you on that.
Laura

Jan 8, 2009
Shelley

Thank you for your note -- and for this wonderful site! I am so glad to have found it!

Jan 8, 2009
Samaria

Thank you for your comment. I believe that you and rj are doing a phenomenal public service with this website. The website is beautiful and everyone coming together for a mutual supporting of each other is beautiful. You're gorgeous and Congrats on your engagement with rj. I wish you all of the joy, happiness, and wealth in all the ways that matter now and always! Blessings-Samaria

Jan 10, 2009
Helena Zalesakova

Hi Cheryl. Thank you for your welcome and for this site. It is sad there are so many people around the world with alopecia. On the other side is great that so many people with alopecia are happy and have possibility to spend any time on this site. I´m glad to wig from human hair and I´m wonder if will be discovered any reason of alopecia. I wish you power to happy life! Have a nice time. Hela

Jan 11, 2009
Helena Zalesakova

Hi Cheryl! Thank you for your welcome and for this sites! It is incredible how many people have alopecia and the similar experience. I´m wonder if will be known any reason of alopecia. I´m glad to see that so many people with alopecia live happy life! I wish you a power to be happy! Have a nice time. Hela

Jan 11, 2009
Joshua

Happy Birthday Cheryl! May many blessings come along your way! Have a wonderful time!

Jan 12, 2009
Cathy Nedd

Hello Cheryl - Thank you so much for the welcome. I look forward to getting to know you better also. I have worked with a lot of women with alopecia and have a lot of knowledge about hair alternatives. I hope that you find occasion to call upon my expertise. Again, thanks!

Jan 12, 2009
JadeKiss

Hi Cheryl! How are you today? I am curious, you have alopecia areata, does that mean you do not have total hair loss? My dermatologists are very vague when discussing Alopecia. I have not lost all my hair, and hoping there are chances it will grow back. What was your experience like?

Jan 12, 2009
Kim Jez

Hi Cheryl,
I just joined yesterday and it was so nice to see all the welcomes on my page today. I hope that I can offer some positive input to others and your website. I was very involved many years ago with a support group in Toronto and learned a lot from some children I knew with alopecia. How to develop character and be your own person! Thanks for your welcoming comments.

Jan 12, 2009
Sue

Hi Cheryl,
All I can say is that I am so happy you co-founded this site. I have been researching alopecia since I starting losing ALL of my hair (about 2 years). To just find this site now was exciting to me. I can't wait to get into all of the stories and feelings from everyone. Thanky you so much for starting this.

Sue

Jan 13, 2009
Joshua

I'm doing quite good now given a bad ending for 2008. Have a wonderful and birthday. The website is very popular, you're doing a great job!

Jan 13, 2009
rj, Co-founder

Happy birthday to the phenomenal woman of my dreams! I love you, Babe! :-)

Jan 13, 2009
Rachel H.

Happy, happy birthday to you!

Jan 13, 2009
Tracey L.

Happy Birthday Cheryl. You are a wonderful role model and a blessing for all of who have Alopecia!

Tracey

Jan 13, 2009
kastababy

Happy Birthday Cheryl! I hope whatever it is that you and RJ have planned, your birthday is a great one!

Love, YoKasta and Todd

Jan 13, 2009
May

Happy Birthday Cheryl.

Jan 13, 2009
Tanisha

wow cheryl i just wanted to tell you that i think you are so beautiful !!

Jan 14, 2009
stephanie abbott

Hey thanks cheryl for your time to greet me as a new commer to this site. my daughter has alopecia and is as sweet as a bug she starts kindergatin next year hope to get her a real wig by then have you ever heard of a 4 year old to have a real hair wig and and suggestions would be great. Thanks Stephanie

Jan 14, 2009
Ronda Neuert

Thank you for the warm welcome! I have not had much contact with other people who have Alopecia. for the past couple of years I've just been thinking that this crazy ride would come to an end and I would get my hair back. Well...That hasn't happened so... I have been just kinda muddling my way through this. Its great to have a place to go where so many others are or have experienced the same feelings, emotions that you are.

Jan 15, 2009
Dara L.Strickland

Hi Cheryl,
Thank you for making me feel welcomed. Your story is awe inspiring and gives me the courage to do what needs to be done.
dara
maranatha

Jan 17, 2009
Natalie

Thank you for the warm welcome, Cheryl. This place is amazing. :)

Jan 17, 2009
Volker

Hey thanks cheryl ...i have au at 16 j......bat is np........i am very crasy,,lol

Jan 17, 2009
becky

Thanks for the welcome, Cheryl. What a great site! Look forward to getting to know you.

Jan 17, 2009
Jusi

ahoj Cherlyl I thank thee that privitanie mile:)

Jan 18, 2009
Austin

Thanks for the welcome, Cheryl.

Jan 18, 2009
Jusi

thank,s

Jan 18, 2009
j

Thank you so much for the welcome. I hope to be able to use your site to learn more about alopecia. I am actually growing my hair right now to donate it for my sister. Do you know of any good organizations that I can donate to? My sister is an adult so I have been having trouble finding somewhere.

Jan 18, 2009
IRENE REVA

Thanks Cheryl and more thanks for founding the organization.

Hugs, I.

Jan 21, 2009
Gordon Patzer

Thank you Cheryl for your welcome as I joined Alopecia World. When I first looked at the website, I was impressed. And, now, each time I log-in I seem to discover new aspects of your great work as co-founder, and, also, the readers of Alopecia World who go the extra step to join seem to be very kind and great individuals. My best to you. -- Gordon

Jan 22, 2009
Per Kjellqvist

Hi Cheryl, and thanks for the welcome notice. This is an impressive site and it seems to be growing really fast. A great place to get and to share information about alopecia.
Per

Jan 22, 2009
Indira

thank you so much for your greets cheryl. im very glad to get the chance to get to know some strong people like you. maybe you can give some advises;)

Jan 23, 2009
Galena

It's all good Sister-I'm glad you made me a friend. This site is really wonderful -you and rj should be commended for creating AW. Alopecians are the most warm and intelligent souls I've met in a long while. Without this forum, I wouldn't begin to know where to go for support. Thank you. By the way, your page is beautiful.

Jan 24, 2009
Marta

Many Blessings to you Cheryl & RJ, for this website. I personally will be spreading the word on it.

Warm regards Marta

Jan 24, 2009
Jessica

hi thank you very much! hope you have a great weekend.
P.S Congratulations <3

Jan 24, 2009
danadanadanadana

Hi and thanks for commenting on my page, it was completely unexpected. In fact, I was stunned to see I'd gotten so many greetings from people. Thanks for the site!

Jan 24, 2009
Imbi

Thank you for the birthday wish :)

Jan 26, 2009
Katya

cheryl,thanks so much for making me feel welcome to this great site!!!!!
By the way you have a wonderful smile,very inspiring, it made me smile back.

Jan 26, 2009
Amanda

Hi.
Thanks for the welcome. I had no idea a site like this existed and I've been struggling with alopeica for 2 years now. I only joined yesterday and already it's been an inspiration to see how warm and welcoming everyone is. Thanks again.

Jan 26, 2009
Kimberly

Hi Cheryl,

I feel very fortunate to have found this site. The support & welcome's have been tremendous, and I thank you!!! You & RJ have done a superb job & really nice to have an outlet to others who know how we are feeling & share our stories. Kendall & I look forward to getting to know you! Oh, congratulations on your engagement! I pray for a supportive man to find Kendall someday! :)

Jan 26, 2009
James

Thank you kindly Cheryl. I also thank you for co-creating this site with RJ. What a great idea. I honestly have never met anyone nor spoke with anyone with alopecia until last week when i joined this support group. I was feeling a little wierd but not so much anymore. Thanks again!

Jan 26, 2009
carli

i was suprised to see a alopecia world site and when i did i signed up right away and people ive never met have welcomed me just like the naaf conferences ive been to ur site looks like a very positive environment and im proud to be apart of the alopecia world community.

Jan 27, 2009
MillwallBen

Cheers Cheryl, it's a great comunity. It's good to meet people in the same boat. Some how the world feels a little brighter today.

Jan 28, 2009
Michelle

Thank you for the welcome, I have had au since 1994 about the same time as you! I thank you for creating this site. I will spend time in the next few weeks getting to know it better.

Jan 29, 2009
Maya

Hi Cheryl, Thank you for the warm welcome..you've done a FANTASTIC job...keep up the good work

Jan 30, 2009
Louise

Thanks for the welcome!

Jan 31, 2009

25 members like this