25

Cheryl, Co-founder

Female

Detroit, MI

United States

Profile Information:

Relationship Status:: Married
About Me:: I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world… AlopeciaWorld.com!

PS: Don't forget to check out our book:

Whole in the Mirror: From Fractured Identity to Fierce Self-Acceptance:

Available on Amazon:
https://a.co/d/6emBEMY

Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
cheryl@alopeciaworld.com

"It's Hair Loss Support At Its Best"

----------
Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://www.alopeciaworld.com

Comment Wall:

Load Previous Comments

JeffreySF

Hi Cheryl,

I so missed you and RJ at the conf!!!
Please come next year it wasn't the same without you!!! Let's talk.

Just call me Legs Joline.....LOL

Hugz,

Jeffrey

Jul 2, 2009
Matt

Hi Cheryl,

You better come to Indianapolis! :) 17 in a row - wow - I have a ways to go to catch up to you.

Jul 2, 2009
Pamela Rosse

Cheryl, Thank you so very much. Mahalo Nui Loa is Hawaiian for thank you from the heart & that is exactly where my thank you comes from my heart to both you & Richard for creating this wonderful site, you are a gift from above. I have felt so lost & alone, there was nothing or no one I could turn to here in Riverside, I am my dermatologist & clinics only Alopecia Areata Universalis patient at this time. When I found this site it was a gift from God. To know one is not alone is such a wonderful feeling. You are a beautiful woman inside & out. God Bless you & yours & a huge congratulations to you & Richard, I wish you much joy & happiness. Again thank you so very very much.

Jul 2, 2009
MiNAH

nah...I'm in Florida!
right down under................
Thanks for asking
Mina

Jul 2, 2009
Pamela Rosse

Cheryl, Mahalo Nui Loa is Hawaiian for thank you from the heart & that is exactly where this thank you comes from my heart for not only your encouragement & kind complement but also for the creation of Alopecia World, you are truly a gift from Heaven above that I am so grateful to & for. You are that rare person who is an Angel her on earth. You are so beautiful on the inside & out, your lovely smile is contagious, you lead by example, again I am so grateful to you & Richard, I felt so alone until I found Alopecia World & then the proverbial sky's opened up for me as it has for so many. God Bless you both. I wish you two so much happiness & joy. Your wedding pictures were/are lovely, you were truly a beautiful bride & handsome groom. Again blessings to you both, I am & always will be eternally grateful. Have a very Happy, Fun, & Safe 4th of July.
Pam

Jul 3, 2009
Jbkny

Jul 4, 2009
traci

Thanks, Cheryl! :) Hope everything's been well~ Been enjoying your summer so far?

Jul 15, 2009
Pam Fitros

The drive back was fine, although as I rolled closer to Grand Rapids I had to unroll the van windows, crank up the rock and roll, sing along at the top of my voice and drum the beat on the outside of the door as I drove. When I got home the little Greek heaved a sigh of relief that I was safely back in the fold, and we hit the bed. I don't remember my head hitting the pillow, lol.
How did the editing / submission go?

Jul 15, 2009
Roger

I loved the Alopecia 101 video. Thanks!

Roger.

Jul 16, 2009
Denise

Hi! I have finally found a relative that has alopecia areata also! I haven't seen her in 30 or more years. Last time we were together, we were small children. Recently, I took my mother on a trip to visit her brother and sisters that live in other states. During one of those visits, my first cousin told me about her AA. We were both stunned. Both of us thought we were the only ones. Also, I wanted to share that both of us have thyroid problems (hypo). I recently found out that I do not have enough vitamin D. I am taking prescription D now and I totally feel like it is a magic pill! I feel better than I have in YEARS! I don't recommend taking a large dose, but I do recommend having your doctor check it and following his directions if you have a thyroid problem and AA. Hope this helps someone else. Both things have been such a blessing to me. I feel the Lord just knew I was in terrible need of these blessings. May HIS blessings fall on you too!

Jul 18, 2009
Susan Fisher

Hey Cheryl!! Awwww............I miss you too!!! :)) Can't wait to see you...still planning on coming to visit you and rj one day soon, I hope!!!

Jul 18, 2009
boris petrov

Thanks a lot. I hope to make good friends at the community. Greetings from Brazil.

Jul 21, 2009
natalie n.

Cheryl,
Thanks for Co-Founding this great site! It feels great to see so many supportive faces and see so many folks that look like me! I have only been a member a few days and already I feel like I am able to use my experience to help others. It feels wonderful to turn a mostly negative experience into such a positive one! My mother and I both share this condition. She had it first and it was through watching her and seeing what things worked and didn't work that helped ease my transition into this condition. I feel like I have it figured out for myself and I have so much advice to share. This is such a great site! Thanks! I've needed something like this for a while now!

Jul 21, 2009
leanne

Hi Cheryl, thanks for your welcome message, I'm looking forward to sharing thoughts on what can sometimes be quite a personal journey. Hope your day has been great!

Jul 22, 2009
Shun

Cheryl, thank you for the warm welcome to AW. I looked at the website for months before deciding to become a member. I want to thank you and your husband for your vision and boldness. Thank you so much for giving us a forum/community to share, support, accept and learn from one another. It makes living with alopecia a little bit easier knowing that we are not alone.

Jul 22, 2009
Roger

Ohhh Marty =) He loves to talk to everyone everywhere. Hope his doing fine.

Jul 23, 2009
Wendy Willeroy

Thank you very much! I am very happy to have found this site!

Jul 23, 2009
Cheryl Ann Avens

Hi Cheryl:

Wow another Cheryl. Thanks for your warm welcom. I am looking forward to spending alot of time here. It is so nice to be able to be a part of something bigger than myself. If you know what I mean!!! Thanks again!!! What a great site!!!

Jul 25, 2009
JUDITH

Thank you very much nice to see I"m not alone. also wonder if I should shave off what I have left

Jul 25, 2009
Fonda Lee Brown

thx so much cheryl

Jul 25, 2009
Audrie Townsend

Thank you very much for creating this website. I have had alopecia for almost a year now, and it is progressively getting worse. It is good to know that i am not alone, because although my friends and family are very supportive, they have not gone through what i have so they truly cannot understand. I thank you again, and appreciate the welcome.

Jul 27, 2009
Shipra Prakash

Thanks Cheryl...

Jul 28, 2009
linda carraway

I'm so glad this site is available. At 51 my life has started to unravel, I was in a car accident and fractured my hip ,4 mths after surgery they say I need a new hip.So I've been layed up since 2-4 -09,my AA has started a new cycle and my vitalago is taking over.I was wondering how many of us have hypothriodism and vitalogo .Also I'm a DES daughter,anyone else out there?? Thanks Linda

Jul 28, 2009
Barbara A Helnore

Thank you Cheryl. I know I will love this website and hearing about other people's experiences with Alopecia and how they deal with it. Even after six years of total hair loss I still have bad days where I just want to scream. I do hope I will some day come to terms with this.

Jul 28, 2009
Marcy Custer

Thanks Cheryl--I can't believe how many people have Alopecia. I am relieved to see and read that many women are comfortable going round without a wig or hat, I am hoping to learn some tips on make-up. I have had my eye brows tatooed, that was an experience. It was actually kind of cool. I am very happy I found this site.

Jul 28, 2009
Karen Petrocchi

Thanks for the welcome! I'm happy to join what appears to be such a supportive community.

Karen

Jul 28, 2009
Kelsey Cotta

I just want to thank u for the welcome and I'm glad that I'm apart of this site now,

and I want to thank the people who made this cause now I have confidence and happiness in myself which i have not felt that way about myself cause of the way I look.

Thank you again for welcoming me and the support! =)

Jul 28, 2009
Ashley Nicole

hi :) and thank you, i love this site already <3

Jul 28, 2009
sheila

thanks so much for being here

Jul 28, 2009
Hannah

Thank you for the birthday wishes and creating this website!

Jul 29, 2009
Essence

thank you!

i've only been on this site for a little less than a day
and i'm already loving it. lol. it's so supportive around here =)

Jul 30, 2009
Essence

yes i did notice. lol. i got really happy to see my picture there =D
i feel so honored i took screen shots of it. haha =X

=) thank you.

Jul 30, 2009
Susan - Jon's Mum

Thank-you for the welcome Cheryl.
It is a very supportive and community minded site. Thanks for the idea and instigating it.

Jul 30, 2009
Charlotte (Tina) Bartley

It 's o.k. but hot! I'm getting use to it!

Jul 30, 2009
Barb Petersohn

Thanks Cheryl. I just joined so I'm new at this. Your support is much appreciated. My daughters have been great, and my sister. I lost my mother in February, but I know she would be supporting me right now. Thanks again.
Barb Petersohn

Jul 30, 2009
Jacqueline

Thank you for welcoming me. Reading this site has helped me lot in understanding that my attitude to the situation is what counts. Thank you for creating it.

Jul 31, 2009
Josh Richards

Thanks for the welcome, I can feel the love already!

Jul 31, 2009
Monica LUPUS MATTERS Ellis

thanks for welcoming me to the site,i love it and our husbands love us for us and thats what makes it easy

Aug 1, 2009
Glenda Folkersen Stroh

Cheryl- Thanks for the invite, I think it is amazing that you put this site together...kudos to you!
Glenda

Aug 1, 2009
Janet Johnson

Hello Cheryl, thank you.

Aug 3, 2009
Natalie

hi cheryl, thanks for the welcome! it is great to have somewhere to learn and share this with people who really know.

Aug 3, 2009
Brittany

Thanks for the welcome Cheryl!

Aug 5, 2009
LINDA N

Hi Cheryl, Thank you

Aug 5, 2009
Deborah Gay Smith

Cheryl,
Thank you so much. It makes me feel a lot better knowing that am not the only one that has hair loss problem. Am glad I was able to find your website.:)

Aug 7, 2009
Stacy P

Cheryl- thank you for saying Hi! How awesome is this site. I can truely appreciate it because I have been Alone for 21 years and I am only 30 . I have always been blessed to hide it up until recently since my body us finally rejecting cortisone. I would love to help in anyway or become involved. So please let me know how. I am in Wheaton illinois. This truely us such an inspirational site, wow, congrats for being such a leader. :)))

Aug 7, 2009
Kris Fenchel

Thank you! After living with this for twenty years it is really nice to see others out there who understand what I am feeling.

Aug 7, 2009
Carly Petko

HI Cheryl,
Thank you for welcoming me. Everyone has already been so kind and I am feeling really good being a part of this. Thank you!

Aug 7, 2009
Fiona

Hi Cheryl,
Thanks for the welcome & for this site! Great to be able to learn and support each other :0) Fi

Aug 7, 2009
Becca

I am really glad I found this site. I actually found it by accident.. It's nice to know that your not alone...

Aug 7, 2009
Joe Diaz

thank's for the welcome cheryl. My doctor says I have aa. I'm still trying to understand what's going on. This just started around mid-July. I am 45 and never had anything like this before. Is this "normal" to happen all of a sudden.

Aug 10, 2009

25 members like this