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Orbit

49

Southwestern Ontario

Canada

Profile Information:

Relationship Status:: In a Relationship
About Me:: Smooth and silky! I have AU (Alopecia Universalis, I grow no hair anywhere) and have had some form of Alopecia my whole life. These days I try to live my life with purpose, kindness and compassion. I know that growing up with AU has made me a more sensitive and caring person. The fact that I am bald doesn't deter me in any way. The fact that I have no hair is just one of the reasons that I am special, I have accepted it and am happy to help others going through the same thing. I am Happily AU Naturel!

Having this condition is not really as bad as it seems, honestly. I am so used to now I don't know what I would actually do if I did grow hair! The thought of shaving my legs scares me, the extra maintenance and upkeep, oh the horror! Being soft and smooth has its benefits! I choose to mostly wear wigs and I have a lot of fun with it. I've completely embraced the my versatility and I like to be chameleon like. Day to day I am a redhead, and I wear a colour that is very close to my bio hair. I do like to spice things up with different colours and styles. Long and dark one day, short and brown another, curly and blonde, you get the idea. Sometimes it looks great, but next to my shockingly pale skin I think the red is the best. I haven't really got the nerve to wear my bald look out in public (mostly due to the fact that I have big ears!) but do so often around the house especially for strenuous exercise.

I know there are fellow alopecians on here with lots of questions about my wigs and just whats the deal with them?! No mystery, just find something that suits you and work with it. Do research, inform yourself, shop with a trusted friend, and most importantly don't get discouraged! Look outside the box and trust in yourself! You are the most important person in your life, so give yourself break! Remember that CONFIDENCE CAN BE FAKED! All you have to do is hold your head high (bald, covered, with a wig whatever) and SMILE! You'll start to beleive it and so will others! I guarantee that your positive energy will be contagious! I'm happy to answer any questions and help in any way that I can!

A bit more about me, I am a second generation Canadian Leathersmith who owns and runs my own business. I wouldn't have it any other way! I'd like to get a chance to explore more of my artistic side when I get a little spare time. I love to paint, do sculpture, work with reclaimed materials and recycle stuff into art. While I am not musical myself, I really enjoy a whole range of music from all over then world. I like to sew, and do anything that keeps my hands and brain busy. I think its important to honour our heritage (I am a mixture of Scottish, Polish and German decent). I thinks its very important to keep the dying crafts alive. My grandma taught me to crochet and my nana taught me to knit, both of which I love to do. In addition to that I have my own strange style of embroidery and beadwork. I like to doodle and scribble down poetry. I try to continuously educate myself, I'd be afraid my brain might turn to mush otherwise! All outdoor pursuits are of interest to me, specifically I most enjoy: Canoe back country camping, hiking, biking, gardening, sailing, and snowboarding. I practice Yoga and meditate often. I like to exercise to blow off stress. I enjoy walking my Portuguese Water Dog. I'm concerned about the state of our planet and try to implement "green" alternatives whenever I can. I try consume as many organic foods as possible. I'm a big fan of the "Slow Food" movement. I like to garden and love spending time in the forest. I am a vinyl junkie and have a huge LP collection - I just love the warm sound of records! I'm a pinball junkie, I admit it. I really enjoy a nice glass of red wine or single malt scotch. Friends tell me I'm just one of the guys.

~~~~~~ I am Happy, I am Healthy, I am Whole and Complete ~~~~~~
Do you have alopecia?: Alopecia universalis
Are you age 18 or older?: Yes

Comment Wall:

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jamie1

Orbit, I just wanted to thank you for your very kind comments on my second blog. You have a very sweet heart! Isn't this a wonderful site. I have gained so much comfort, strength and perspective from meeting people such as you. I enjoyed yor comments about alopecia, sometimes adding enrichment to our lives. It is a challenge, to be sure but the rewards are out there. Thank you for sharing. By the way, you are sooo pretty!

Aug 27, 2008
Roger

Cute new profilepic.

Sep 9, 2008
Roger

Youre welcome.

Sep 10, 2008
Nezz

Hi Orbit! Omg thanks so much for all your answers! You were so helpful.
I think I'm gonna go ahead and get my first synthetic wig without shaving my head first and try it out and sort of get used to the idea and then I'll make the grand decision, or do I have to be bald to wear a one with a monofilament top?
I think you've pretty much enswered everything I wanted to know, but if anything else comes up I'll ask XD
Thank yoo

Take care
xxxx

Sep 11, 2008
Nezz

By the way your wig looks amazing!

Sep 11, 2008
jamie1

Orbit, You're new wig looks beautiful. Has anyone ever told you that you have the face and the coloring of a Renoir? It's true!

Sep 12, 2008
Carmen Dayhoff

Thank you for letting me know the source of your hair pc. I have used Raquel Welch pcs before and love them. Thanks for adding me as a friend.

Sep 15, 2008
jamie1

Hello Friend Orbit, (Gosh, I sound like a Quaker with that greeting). Beautiful new Beaubeau pics. You could model those.
Isn't it nice to finally have so many new alopecian friends. I was serous abou the Renior comparison. If you ever get the chance, check out some of his works from 1880 thru 1884. Kinda spooky!

Sep 15, 2008
Lorena

Hi Orbit what a great name!, I love that red hair! and your scarves I want to learn to tie like that!..beautiful! where do you shop for them?...

Sep 16, 2008
Lee

Love the wavy hair!! So pretty!! My bf likes red hair a lot...may do the switch hehe

Sep 16, 2008
Vicktoria (Katya's mom)

Hi Orbit, your wigs looks really natural and you seem to be able to put the up without it looking odd. What kind of wigs do you wear and how do you attach them?
Thanks Vicktoria

Sep 17, 2008
Dina

You are gorgeous and I love your dog too, too cute!!

Sep 18, 2008
Amber Lounder

Your name certainly suits you
You are beautiful!! I like the scarves on you, the wigs are nice too
You give me some hope of still looking good with AA
:))

Sep 21, 2008
Dylan

heyyyy hows it going :) lol

Sep 24, 2008
Jude

Hi - I saw your picture and just wanted to say that I love that long red wig - amazing!!

Oct 1, 2008
Jude

Hi Orbit

I really like sewing, making clothes etc. I've made a few scarves since I've got alopecia. I really should get on and make some more.

Oct 2, 2008
Lacey

Orbit your soo stunning!!
just want to say hey, and i think your extremely strong and inspiring:)
Laceey.

Oct 4, 2008
Megan

Hi Orbit,

do you have any suggestions of what i can do with my daughter's look? almost all her hair is gone and the baseball caps are just not cutting it anymore. i look on line for stuff--wigs are not happening right now for us as she's only 5. what did you do as a child? the baseball caps cover her whole face--i want something where you can acutally see Paige's face. hope you're well. thanks for any advise.

Oct 4, 2008
jamie1

"Confidence can be faked..." Gosh, I knew I liked you! You have some terrific attitude!

Oct 6, 2008
Roger

Hi! Yes...we are the 100% baldies =)=)=)

Did it snow in Toronto some day ago? Crazy!

Oct 30, 2008
Carol

Hi Orbit
How are you??? I haven't heard from you in a while, hope everything is going smoothly ;)

Nov 2, 2008
LeslieAnn Butler

Hey Orbit,
You really look fabulous in the scarf. I certainly couldn't pull it off, but you can! Wow!

Nov 9, 2008
Shana and Taylor

I love the scarf on you and just be yourself!!!!

Taylor!!!

Nov 14, 2008
Shana and Taylor

Have a Great WEEK!!!

Nov 17, 2008
Shana and Taylor

It is funny how we have so much in common!!! hahaha!

Nov 17, 2008
Mukti

Hi Orbit,
I have the same scarf as you...I loved it so much that I even got the same one again! LOL...I'll have to start posting some photos of me soon with all the different ones.

Nov 18, 2008
Scott Mather

"Great smile and amazing blue eyes - what a combo! :-)"
Well, it's been over 6 months, but I just have to reply to someone who was gracious enough to give such a nice compliment. Thank you! I dropped the ball in checking back on messages here and then forgot all about it. Ah well. Am ok with the condition, which hit me at about age 50, due to extreme and repeated physical stress is the theory, but I don't know... I'm ok with it, except for not having eyelashes. That hurts (literally!). Anyway, you look great with the scarf...

Dec 14, 2008
Galvin

Merry Christmas Orbitz. Hope you have a happy holiday season and
I want to thank you for the beautiful photos. Always brighten my day.
James

Dec 22, 2008
Roger

Happy New Year Comment Graphics
Comments & Glitter Graphics for Myspace, Hi5, Orkut, Friendster

Dec 31, 2008
Maygensmom

You are beautiful! Can you share with us where you order your wigs?

Jan 9, 2009
James

Wow you certainly say alot about yourself in your profile. I'll have to adjust mine. It and you are articulate, dynamic, powerful, and beautiful. To me you look best in red. Your profile pic looks great with the southern Ontario sun softly illuminating your beautiful skin. I too like having no hair all over my body, with the exception of eye lashes and brows(which are sparse) . Having no hair is convenient and sensual.

Jan 23, 2009
James

Thank you Orbit. You know i have never met nor spoke with another person with alopecia until last week when i joined this group. It feels nice, and kind of refreshing, to finally reach out and meet others. Especially those that are near.

Jan 26, 2009
Kim Jez

Hello Orbit,
Sorry but I had to write you a comment, as I read your profile and interesting I am also of Scottish/Polish decent. I always considered this heritage very unique, as I have never met anyone else with this background. The family joke was bagpipes and kielbasa together under one roof. :))
I have a question....did you ever attended Alopecia support group meetings in the Toronto area quite a few years ago? Because you look familiar to me, or maybe it's something else...

Jan 27, 2009
Daria

Hey there! Just wanted to let you know I LOVE LOVE LOVE the curly red wig in the bio pic. You look amazing!!!!

Jan 31, 2009
GiGi

your profile made my day!

Feb 24, 2009
Meme

what kind of wig do you have...do youo have to be concious about wearing it when its windy out. ever since my hair became hard to cover, i havent been wanting to go outside all that much becuae of the wind. i so miss it. i was reading your profile, do you just do yoga on your own or do you go to a class...i want to start doing yoga, any tips?

Mar 2, 2009
Lee

Hello....my friend! How are you?

Mar 18, 2009
porcelinh

hey orbit! thank you for the friend request! you are stunning! love your red hair and you have that lovely porcelain skin to go with it! hope you had a great easter weekend. take care, holly

Apr 13, 2009
anabela pimenta

hi,Orbit! Thanks for the add.i just wanted to let you know that your profile page has been really inspiring to me and to anyone who sees it,i"m sure.You are gorgeous and the way you present yourself helps the rest of us alopecians to feel the same way.THANK YOU!!!

May 15, 2009
Roger

Hi =)

How are you doing?

May 18, 2009
Mukti

Wishing you a very happy birthday...I haven't been on here in ages! Hope all is well with you.

Jun 18, 2009
MiNAH

written so well..I think along the same lines as you..yet I choose to go bald!
The only thing is..that I cringe when I say that word"BALD"
Sometimes I cover up the word by saying sleek and shiny!
Clean look..bear and beautiful!
The list goes on and on.
It has been great looking at your photos and your fine selection of styles in wigs.

Jun 27, 2009
MiNAH

I too was so alone in the late 70s' and 80s'...with the years that took my beautiful long hair.The insecurity of self loathing..and all the blame that came along with it.The judgement, opinions and perception which was on a continual basis.Not being able to rent apartments and catching buses or cabs was impossible.When you choose to walk without a head cover, you choose the negative reaction.
However, today... the attitude is somewhat altered and it's more acceptable in society to walk without hair.
I just keep on standing tall and "SMiLING"
I recently received a freedomwig prosthesis...yet haven't much worn it due to the terrible heat and having to shave the spars hair off...which causes razor burn, if done every day.
Loved reading your info..very insightful!

Jun 27, 2009
KnittyCat

I just got through reading your bio, sounded very familiar. I, though, have become comfortable w/o the hair (as you can see in the photo). I don't have my own business but would love to, just not sure what I want to pursue. I love to cook and, also, am artsy. I learned, as a child, to knit from my 3 grade teacher and to crochet from my Nanny (grandmother) and continue both today. My father was the leatherman and also carved things out of wood (small things w/ a pocket knife). I sew, cross stitch, dabble in painting and drawing, like to take pictures (photography), but would not call myself a Photographer by no means. I understand about the pale complexion, I come from Scotch, Irish, English decent. I never met anyone w/ Alopecia of any form until 1990 (about 20 years after I lost my hair the first time). Keep up the beautiful work and know that you are a beautiful w/ or w/o hair.

Knitty

Jul 22, 2009
Shannon

Hi Orbit. Your pics and page are inspiring. I've been dealing with alopecia for three year. I'm still in the process of trying to use what I have to cover what I don't have. Could you tell me where you get your great headscarves and wigs?

Sep 21, 2009
Erin Barber

hello, I am new here. I was recently diagnosed with alopecia. I am so glad I found this support group. It really does help. I want to get a wig or 2. I never realized how hard it would be to pick out something that will be perfect for me. Yours are really nice. where did you get them? Thanks!! Erin

Sep 24, 2009
Roger

Hi =)

Nov 10, 2009
kastababy

Hi Orbit!

I haven't heard from you in quite some time; and to be honest, I've been something of a recluse myself for the past few months, but I wanted to take the time to see how you were doing and wish you a happy Spring!!

Mar 28, 2010
sas

Hey...i really like your wigs...where do u get ur wigs and scarfs from
Also how much do they cost?
thanks

Apr 27, 2010
Dotty

Happy Birthday!!!!!

Jun 19, 2010