68

LeslieAnn Butler

Female

Portland, Oregon

United States

Profile Information:

Relationship Status:: Engaged
About Me:: I'm an artist and author living in Portland, Oregon. I've had aa for about 45 years. My award-winning book, "If Your Hair Falls Out, Keep Dancing!" is still available at a number of online sources including Amazon and Barnes and Noble. Written a few years ago, it's not completely up to date on medical findings, but these are readily available on this site.

Here are a couple of reviews: This "how-to" book provides a much needed text on dealing with emotional and cosmetic aspects of hair loss, whether from alopecia areata or chemotherapy. It details where to find and how to use products for compensating with this loss. It is written in the same bold and bright style that characterizes LeslieAnn's illustrations." -Janet Roberts, M.D., Portland Oregon

"This book is helpful, hopeful, funny and fabulous. It's full of practical advice about wigs, intimate encounters, the inappropriate questions from strangers, and other issues you face when every day is a bad hair day. Women with alopecia, LeslieAnn Butler is your new best friend " -Margie Boul , Columnist, The Oregonian ..

"An essential read, whether you've lost hair, or care about someone who has. Leave it to Leslie Ann to bring humor and glamour to a difficult topic. She is a living testament that the lack of flowing locks is no reason not to live your most glamorous and joyful life. Be inspired and uplifted by this remarkable woman's personal journey." -Nita Lina Howard, Author of A Woman's Journey is Her Legacy

I wrote "If Your Hair Falls Out, Keep Dancing!" to help other people -- particularly women and girls --and it's one that I wish I had been able to find when I discovered I had alopecia years ago.

I have stumbled through all the stages of grief (feeling guilty because, after all, there are worse things than alopecia), figuring out how to look normal, bouncing from one treatment to another, buying and ruining or rejecting dozens of wigs, losing every single hair on my body, figuring out how to tell guys I was dating, living in fear of the wind and someone touching my head…all in all, going from heartbreak to acceptance to joy and confidence. And it's all in the book, along with experiences of others, advice on wigs, makeup, products, treatments -- and how you can celebrate your life with alopecia areata, go after your dreams, and know you're not alone."

Hear a live interview at http://www.insidescooplive.com/author-pages/Butler-LeslieAnn-readin....

Visit my artist web site at www.leslieannbutler.com.
Do you have alopecia?: Alopecia universalis
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://astore.amazon.com/ngp-20/detail/1933449586

Comment Wall:

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soniamarry

Thank you so much!you are too sweet. Thank you for your continued support. You are truly an amazing woman!

May 12, 2010
soniamarry

Yayyyy! My book has finally arrived. It's happy reading for me! hugs!

May 14, 2010
Robbi

Thank you for the warm welcome! I have been on this site many times before finally joining, and am so glad to have finally took the plunge. I am aware of your book, have not read it yet, but am really looking forward to it. I must tell you I love the front cover; you are truly talented. Take care.:)

May 16, 2010
Sarah-Jane Snowden

Hi LelieAnn, thanks kindly for that and your lovely comment. You wont be too surprised when I tell you I'm sooo envious - you look absolutely gorgeous!

SJ xx

May 16, 2010
penny rankin

Hey Leslie,,,I did get your message on my voice mail but by the time i got it it was too late to call back!! Hope we can talk soon! I just wanted to tell you also that i just ordered your book off of amazon last night so it should get here about the 26th!! I cant wait to get it!! THANKS AGAIN!! :)

May 23, 2010
Mia

Hi LeslieAnn,
thank you so much for your lovly comment and the warm welcome! :)
I´m doing good. It´s just not that easy for me to accept my new look with AT :)
I hope your doing good as well.
I just got to know about your book -it has a beautiful cover- and I am really excited to read it!
Have a nice day :) Mia

May 24, 2010
Day Steel

Hugs from Day Steel Author himself .., SWEDEN ...

May 26, 2010
Day Steel

Hugs from Day Steel - Author SWEDEN

May 26, 2010
Melanie Maurey

Hi, LeslieAnn! We are fine and had a beautiful day in Bavaria. I think that I am doing this correctly, I have never been part of a chat/support group before and don't really know where to begin. I just scrolled up and saw your info...I will definitely look into your book. I think my husband may need to read it more than me. I am becoming comfortable with my bald head but he still thinks that there is something I should do to make things change. He loves me but he thinks that I have something to do with this hairloss (if only I was that powerful, I would put it back in all the right places). Anyway, thanks for the welcome.
Melani

May 26, 2010
Sofie Pilarte

Red Ribbon

May 26, 2010
Lisa-Lynn Marini

Hi leslieAnn,
Thanks for the add :)
I have read your profile, I am going to find your book this week-end, it sounds really interesting because right now I feel this is the worst trial I have been faced with my whole life.
I just finished my teachers aid course in hopes to work in September as a teacher's assistant, but I feel that wont happen with the way I look, its scary i guess because i'm afraid of folks talking behind me .
I'm glad I found this site

Have a wonderful day and thanks for listening :)

May 27, 2010
Ellen Burns

I just ordered your book!! I cannot wait to read it :)

May 29, 2010
Ellen Burns

Hello!! Yes!! We ARE neighbors :) And I should be receiving the book in 2-6 business days... I have finals next week so as much as I know I'm going to want to read it IMMEDIATELY, I think I'm going to save it for the car trip back to South Dakota :) I will definitely let you know what I think!! Hope you are having a great Memorial Day weekend!!

May 30, 2010
Jennifer Zymantas

Thank you so much LeslieAnn...you are beautiful! I appreciate the support and encouragement. I will order your book asap!

Jun 7, 2010
Katerina

Hi LeslieAnn. Thanks for the welcome. I was diagnosed with alopecia areata in January this year. It has been very difficult. I was always so obsessed with getting my hair done and how it looked...and then to find out I was losing it was just too much! I didn't go out much for months. I just wanted to hide in my house. I thought everyone could see it. It started with a quarter sized spot on the left side and quickly turned into more like 4 quarters! About a month later I saw another dime sized one on the top of my head and then another on the back. Now I see small spots all over the back. The one on top has started growing back and the one on the side is filling in. I seem to have thinned a little all over my head. The nape is really thin! I used to wear my hair clipped up every day. Do you think this could have something to do with it? The spots are all in areas that would have been pulled at by the clip. But then I've also had a lot of stress and my scalp was aching...so I don't know. I think its great that you've written a book about your experience! I'll have to find it and read it.
Kat

Jun 10, 2010
Marjorie QUello

hi. where can i buy that book.

Jun 19, 2010
Shea Giordimaina

Wow that's amazing where can I get my hands on a copy?? I'm a dancer and a dance teacher and it has never stopped mr from doing what I love!

Jun 20, 2010
simret birru

hello leslieann,thanks for the welcome.
i've had universalis for most of my life.i'm in my forties now married with two lovely kids and a cat.i suppose i'm doing ok.but latley i've began to think ok is not enough anymore and started exploring.i've never discussed this part of my life with anyone so its a really all new to me. i'll look forward to reading ur book which i plan to buy.again thank you and bye for now

cheers
simret

Jun 23, 2010
silly valerie

Thank you for your Welcome and your comment about my drawing.....it's especially nice to hear from a renown artist and writer as yourself. You are awesome.
Valerie

Jun 23, 2010
Jacqui Atcheson

thank you.
My friend never discusses this.
2 of her oldest and dearest friends knew and now she just told me (she is 60.
She does not seem open to conversation.
I knwo she is depressed due to this.
While she has been married twice and has 2 children, she did mention her very poor choices in men due to this. (end of conversation)
Any suggestions on how to bring up the topic of your book.

thanks, Jacqui

Jul 3, 2010
Vinichuk Oksana

Hello....Thank your interest in my profile .. I do not know English, and sometimes can not quite grasp the meaning of the writing. One thing I realized - you wrote a wonderful book you want. It is a pity that this book is not in Russian ..

Jul 4, 2010
VALERIE ANN RYCZEK

I'm sorry about your husband,too- it sounds like he didn't appreciate what he had! & I don't knowa dog alive who likes fireworks!!! Try to have a good day.

Jul 4, 2010
yogi

Leslie Ann,
Hi and thank you for your kind greetings, it is highly appreciated. I hope your well and had a fun weekend.
I am fine and look forward to communicating with you.
Once agai n thank you for the warm welcome.
Yogi

Jul 5, 2010
Sara Linder

Hello Leslie Ann,
Thank you for your comment. Yesterday I had a long talk with my man and now I have accepted that I have AA. So this morning I shaved of the rest of my hair. Feels great! But I will go and see if I can find your book.
And thank you for the welcoming.
Sara

Jul 5, 2010
vanessa edwards

thanks am just starting to tell close friends .will definately read your book

Jul 7, 2010
Anna Urrutia

Hello LeslieAnn,
We are doing fantastic. I commend you on your book, I will be picking it up on Sat.
Anna

Jul 7, 2010
june edwards

hi sorry it took a while to get back to you, getting to grips with this site. havent read your book but will defiently be ordering one. My eight year old wrote a short book about her sister, for her starting school, and now has her own website about it www.mysisterandalopecia.co.uk or through our facebook page of Bald but beautiful/my sister isla

Jul 15, 2010
june edwards

thanks for the welcome . much appreciated, will defiently look to your book sounds fab and i think my daughter would like it

Jul 15, 2010
Rebecca Strobel

Hi Leslie! Just checking out your pictures - (gorgeous!) and loving your book! Thank you! It's full of everything I need to hear. I'm at the Broadmoor Hotel with my hubby and actually went without my wig for a short while. Feels weird - people stare and I just know they are wondering if my cancer is in remission? :) Love to be able to tattoo ALOPECIA GIRL on the back of my head. :_) Take care - have a great weekend! Yours, Rebecca

Jul 16, 2010
Gigi Peterson

Hello, LeslieAnn. I'm new to this site but have found it very refreshing. I've had vairous stages of alopecia for over 35 years and feel I handle it very well. I've never heard of your book but may check it out.

Jul 18, 2010
E Ski

Thank you so much! I am doing great, how are you?
Congrats on all of your successes on your book--I actually do own it and my mom and I have read it. Alternative medicine has been great for me... a long road of a couple years, but I have hair everywhere now. Pretty unbelievable. Just have to pray that it's not a fluke and will stay with me :)
Thanks again and hope you have a good week!
-E

Jul 19, 2010
Nichole Christian Durand

I am fine today Thank You. Thanks for the message got me to your pag sourcing a copy of you book now. I have AA. I first realised a small spot when i was 19, now I am 30 and I have lost the hair at the back of my head and at my temples.
It is still a bit tough I am a News Reporter Presenter with the local station in my island and image means a lot you know.
Coping but I am getting through it.

Jul 28, 2010
Lori

Hi LeslieAnn,
My day wasn't so great (thanks for asking), but this evening I'm feeling better thanks to the lovely people here on AW. I think it always helps to vent and know chances are someone will "get it." How great you wrote a book, I'll definitely check it out. Congratulations on the awards. Thanks again, and I hope you have a really good day tomorrow. BTW -- love the photos!

Jul 29, 2010
Ellen Burns

LeslieAnn,

How are you doing? Hope all is well! I just wanted to let you know that I think/thought your book is/was fantastic!! I read it on the way back to SD for a visit, and I learned quite a bit!! Thank you!! :)

Ellen

Aug 3, 2010
Lisa M

Hi Leslie Ann,
I just received your book. I can't wait to read it!
xxx Lisa

Aug 7, 2010
Pat

Hi Leslie,

Thanks for your note. Yes, I have your book. Paid a pretty penny for it given I'm in Canada (shipping, etc.) but it was worth it. Wish it was in my local Vancouver Public Library. There just aren't enough resources. It has over 2 million items but only 2 books on alopecia. I found your book helpful and I thank you for writing it.

Aug 8, 2010
Djuna

Hi LeslieAnn,

Funny you should be the first one to greet me on this site. I just finished your book a few days ago. It's been a long time since I've laughed that hard. And was able to laugh and cry about this condition all at the same time. I've had AA for many years and it has now progressed to AU. It feels a little bit like starting all over again with excepting it. But your book was a great help and has many great tips. Thanks for that. Thinking about a wig for the first time. And actually having fun picking out eyebrows;-)
~Djuna

Aug 8, 2010
Sheila Pinder

Hi Leslie, I am doing good. I have Scarring Alopecia and have had it for 12 years. After years of hats and braids, and various products to mask the hair loss I decided yesterday that I would shave my head. I do not wear wigs, so this is a big step. I plan to travel to Florida this weekend and have my sister do the honors. I have read some interesting comments on your page and will look further into your book. Anything that will make me laugh will be needed. Thanks for the 'welcome hello'.

Aug 9, 2010
Sarah Eisenhardt

Hi Lesslie,
Thanks for the warm welcome. I can't wait to read your book. My son is only 5 so I'm not sure it is for him, my neighbor however, is almost 30 and she also has aa her aa is a bit unusual because she lost a large spot of hair on her head and both eyebrows but its not close to au. anyway i look foreward to chatting and finding more support for my son. take care,
sarah

Aug 9, 2010
Dana Vidal

Thanks for the welcome hello. I actually just discovered this site. My business partner and I are starting a blog related to "all thing hair" called Bad Hair Beautiful. We hve not launched yet still gathering content and various information. I have had Alopecia for appx. 6 years and my partner Stacy as born with incredibly baby fine hair. We wanted to create a blog site that would be informative and give true emotional support to woman.

I would love any input or comments from you. I notice you have written a book. Would you be open to having it feaured on our blog?

Aug 11, 2010
RobynCS

Hi Leslie,

Good to see you on here. I have your book on my nightstand and it has been soooo helpful esp. when i least expect it. Great to revisit sections of it. My HS kids have friends in and out of the house all the time and they are wondering why Cameron's mom wears beanie caps in this heat....maybe it's time we tell more people. idk.

Hope you are well. What part of the country are you in? ttyl

Aug 12, 2010
Sarah Knight

Hi LeslieAnn, thanks for the warm welcome. I have had aa since I was 7 but have been almost symptom free for 25 years until recently so I am just coming to terms with being an adult with alopecia. It looks like this is a great community website and it has already inspired me to come to terms with having alopecia. Your book sounds really great.

Aug 12, 2010
Nicky

I am doing fine. Thank you! I am getting the hang of it. I am learning more and more things everyday. How are you? Next time I am at Barns In Noble I will get your book. I already read a book about alopecia called The Girl With No Hair. It inspired me to start writing about my feelings.

Aug 16, 2010
Kimberly O'Donnell

Hi LeslieAnn, I am enjoying all your photos, and I just realize that you wrote a book! I will order it for my daughter!! It looks like you are living life to the fullest!! And what a gorgeous head of hair!! is it PKS???

good day! Kim

Aug 17, 2010
Teri C

I am very good today. Thanks for asking. I just had my first doctors visit since I have been diagnosed. I actually had some hair growth. I also told my friends about my disease today and quit trying to cover it up. It felt good. Sounds like you have a great book I need to read!

Aug 19, 2010
Sylvie la maîtresse décolle

Hi Leslie, thanks for your message! How are you. I'm fine. I'm a singer for the children in Swizerland and it's fantastic! ;-) I dont have any problem because i have no hair. I'm happy as i'm!! I'm sorry, i dont speak english very well but i try!! Can you say me if your book has ben translated in french? Have a good day, Sylvie www.sylvie-kids.ch

Aug 22, 2010
Dana Vidal

My address is:

25 Highland Park Village #100138
Dallas, TX 75205

Thank you and I look forward to reading your book.

Aug 22, 2010
donna hanley

Hi Leslie Ann,
Thank you for my welcome message. I have had alopecia universalis for 25 years and until recently didn't know these sites existed. It is so nice to know there are lots of ladies out there, not just me.

I am desperately searching for posts on cyber and vital hair wigs, I have a freedom one at the moment but have recently struggled wearing it due to the heat, so I am looking for lighter alternatives, also for ones that haven't got a hard rim all of the way around.

I am just going to see if I can find your book on amazon :-)

Thanks again for your welcome message
Donna xx

Aug 24, 2010
Sylvie la maîtresse décolle

Hi Leslie! Thanks for your answer. For me it is " If Your Hair Falls Out, Keep Singing!" ;-)) It's beautiful to know that you can hear me in the USA! Internet is magic!! I would like to can read your book but my english is poor... ;-(( I hope you have a great success!!
Sylvie xx

Aug 25, 2010
Kelly Fletcher Hughes

I am good, thanks. I was looking at your pictures and your hair is beautiful. Where did you get it? What kind is it? It looks so natural!! Also your eyes and eyebrows look very natural too. I would like to get some tips. I will have to look for your book.

Aug 30, 2010

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