Hi Leslie Ann,
Thanks for the welcome. I am struggling so much with this diagnosis. So much scares me but the cost of a good replacement for the rest of my life is what currently has me down the most. I don't have the same diagnosis as you but rather Androgenetic alopecia. This is a diffuse thinning of your entire scalp but particularly on the top. Does your book have anything in it that I may be able to relate with?

Thanks, Jodi

Hi Leslie Ann,
I recently received your book as a gift and I absolutley loved it! Thanks for all the tips, funny stories, and resources for finding makeup, wigs and such. I also love the cover. Great choice!
Michelle

You wrote a book? about alopecia? Ohmygod, I love you! lol c: It's really inspiring though! :)

Hi Leslie!

I met you and bought your book at marchs' alopecia support group in Lake oswego- you also welcomed me to AW. I havent made any other friends yet- I dont know how it works, really...do people read yourcomments and then decide if they want to be your friend?

I couldnt go to Aprils meeting because I had an operation and am recovering very well. Hopefully i will be able to get to the one in May

Hope you are having a great day!

"Aural"

thanks for the comment - new to this forum, so still finding my way around
but finding it all very interesting - will take a look at your book too!..

We are taking it one day at a time. She has one spot right now that we are treating and hoping will not turn into more spots. It is just so difficult to constantly fear the next spot coming or turning into complete hair loss. At this point I have been trying not to focus on the worst case scenario but is that just avoiding the inevitable? I'm probably in denial but isn't it true that for many people it can just be a few spots that end up going away and possibly never coming back?
Reading this site has been heartbreaking for me so not sure I want to share it with her at this point. I have been trying to teach her to live for today and try not to think about what could end up happening. Hopefully that's the right approach. Your book sounds awesome. You are an inspiration and wonderful example of how you can live a fulfilling successful life in spite of this frustrating condition. Thanks for responding.

hi,thank you for your comment. My english is not so good but I'll try.I saw your pictures,did you write a book? I am very curious,it looks interesting. Found Aworld by accident on the internet,feels good to know
that I'm not alone... Greetz

Hi Leslie! Thank you so much for your comment! I'm doing great. How are you? I looked up your book and I am so excited to read it. It is so amazing to know that there are people out there like you who are there to offer their support. :)

lol!! that's a nice way to look at it. I wish I could be as open as you are about my condition. I feel it will help me to reach out to other women out there in India who are having alopecia.BTW, u look stunning in all your pictures :)

Hugs!

Hello LeslieAnn, I've been wanting to ask you about Brenda Kay's up in Portland. Have you ever purchased a custom wig from her that you were able to wear pulled up into a loose knot in the back and still have it look relatively natural at the hairline? Or do you know of a wig that can be worn that way? I miss wearing my 'hair' off my neck the most. The wig I have now looks ok in the front but looks like a a wig in the back when I pull it loosely off my neck. Is there such a wig?
I also enjoyed your book very much. It was such a gift to be able to have some of my concerns and questions addressed. Thank you for getting us out there.
I'm almost ready to spend my vacation this year in Portland just so I can see what Brenda Kay has available. I just would be much more comfortable being able to find a really good wig business down here. You would think someone could recommend a salon in San Francisco at least. Wig (human/custom) shopping is much more involved than I had thought it would be. It's too much money to make mistakes. Any help you might give me would be greatly appreciated. Thank you, Judy

After reading your blog I ordered your book from Amazon. I didn't put it down until I finished. It was great to learn that my phases/stages/emotions/reactions are all normal. You would think after 20yrs of AA I would understand it more, but there are days when it still beats me. Thanks for a great, easy to read book.

Hi, Leslie Ann

How are you? I can't believe it's been 5 months since I've been on this site! I wanted to let you know that I told the woman I get my wigs from about your book since she has a table of books and other literature, mostly relating to cancer, in her shop. She bought one for the store and gave me one as a gift! I read it in 2 days and found myself on nearly every page. It's a great book and I love it! Thank you for writing it.

cheers,
Maryanne

Thank you for your interesting page. I have had AA for maybe five months so it is all pretty new to me. I am feeling rather lucky as although the patch is getting larger, there is also new hair growth. I am keeping optimistic and not too worried at this stage but enjoy the contact I am having from this website. Your book sounds interesting and if my condition deteriorates then I would like to purchase your book to gain information from other sufferers.
Thank you again.

Hey Lesile,

Thanks for the warm welcome. Im well, thanks hope you are too. I was diagnosed with AA about 3 years ago. It started with a few patches that would grow back, now it seems I'm losing it all slowly. It's difficult to accept and frustrating. Then, I see all of the brave women and men on this site and I'm inspired! I'm looking forward to purchasing a copy of "If your hair falls out, keep dancing!"

Thanks!

Hey Leslie,

Thank you for the warm welcome. Im doing well, taking things day by day. Hope you are well. I was diagnosed with AA about 3 years ago ann it started out with patches that would grow back. Now it seems I'm losing it all slowly. It's
difficult and frustrating to face AA alone. I am grateful I found this site with so many inspirational people, including yourself. I look forward to reading your book!

Thank You,
-Jenn

Leslie,
Thank you so much for the welcome. It is so kind of you. I have AU diagnosed when I was 2. I don't remember it but my mom told me. She said my hair started coming out when I was 2 and it was completely gone by age 4.
I am so glad I found this sight. I really don't discuss my condition with anyone so I find this site very helpful. It also helps me to know that I am not alone and I want to learn how others cope, what products they use, and what kind of systems they wear. I am looking for an alternative to the systems I have now. They start off looking great but wear down very quickly and they are really expensive.
I don't have the kind of money I use to so I really need to find a more economical alternative although I don't want to sacrifice quality. My cake and eat it too so to speak.
You look fabulous and your hair is simply exquisite. I would really like to get feedback from you on your experiences, everything from products to relationships. I don't know anyone personally that has any form of alopecia so hearing all the feedback from here really helps!

Again, thank you for your welcome. It is so greatly appreciated.
Stephanie

Hey Leslie just saw your book won TWO NATIONAL AWARDS: I just wanted to Congratulate you on your Book... i don't get on here much so i'm behind a lil lol... but I am going to be buying your book ASAP.. thank you so much for writing a book so informative. it really does help and helps people understand about alopecia.. just read that comment you wrote about the fear of the wind blowing off your wig that's me all the way lol i worry non stop.. and i'm so greatful to have the support of my b/f ...JUST WANTED TO SAY THANKS AGAIN LESLIE

i will let you know just ordered my book lastnight so i'm excited to get it... and ya i'm a huge animal lover don't have children and this is our family and it gives my 2 yr old niece cousins to play with when she comes over lol

im looking foward to reading your book! i just purchased it! i think what you do is wonderful and inspiring! i too love writing and art but sometimes because of things that happen in relation to health and conditions lack inspiration and motivation, if you ever need anything you can count on me. :) looking foward to see how you have managed through your work!

Oh wow! Good to hear that! This one is for you then...

“Every tomorrow is determined by every today.”
― Paramahansa Yogananda

God bless you Leslie!
Hugs! :)

Dear Leslie Ann, I read your book review... wow! I am soon going to buy a copy of "Keep Dancing"! Thank you so much for doing what you are doing! You must have touched and (definitely) changed the lives of so many people (rather, changed the way they look at life) and I am going to be one of them! I thank God with all my heart and soul for bringing people like you to this world and pray that you keep growing and glowing and have all the happiness in the world!

Love, light and everything bright!
*hugs*

Hey LeslieAnn. I am well. Thanks for the welcome. I can't wait to get my hands on you book- it sounds great. Have a blessed day xxx.

Hi Leslie,
Thank you for your welcome. I am on vacation and I have to read your book.
I will tell you more about myself when I came back.
Grazyna

LeslieAnn,
Thanks for your hello. I'm pretty new to all this so it's nice to hear from someone. I'm going to look for your book. Have a great day!
Stephanie

Hi Leslie Ann,
Thanks for saying hello - I'm very well thanks - just going to buy your book!
Take care.
Elaine

Hi Leslie,

Thank you for acknowledging me and inviting me in. I look forward to reading your book.
Hoping Marianne and I can help everyone.

Barb Khttp://www.Barbkellywigconsulting.com

I am fine today and look forward to reading your book. I am a makeup artist and your makeup and hair are awesome.

Yours, Barbara

Thank-you for the welcome I am so happy to see a site like this to see I am not the only one. Im definitely going to order you book!

Thanks for the welcome, LeslieAnn. I look forward to checking out your book.

Hello Leslie, Thankyou for welcoming me to the site. I look forward to communicating with other women who suffer with alopecia in particular those suffering from Fibrosing Alopecia. Let me know about your book. Yours, Chris.

Hi LeslieAnn, thank you for the welcome, really looking forward to read your book!! It is so great to find people who understands what we go through. I have had AA since I was 17 years, and the first time, I lost a whole year of my life, because I just couldn't face it. Life goes on and I'm doing a lot better!!

I would like to read your book to see if we can use it for our blog,have started recommending books,where can I find it?
chira

Hi Leslie
Thank you. I am eager to read your book. Yes, I saw that you have AU also. I am doing well and really enjoying living in Portland.
Marsja

Thank you so much for the welcome LeslieAnn:) I appreciate it!. Your book looks truly wonderful...and so do you!:)

Best, Christine

Thank your for the welcome. So, I am very knew to all of this, and read on your page that you have written a book. Considering I used youtube.com for basic and preliminary tips for wearing a head scarf and how to draw an eyebrow, I look forward to obtaining and reading your book. Thank you.

Thats great! Do you find it helpful? I researched one in my area and plan to meet with her at the end of this month. Thats wonderful that you wrote I book, I plan on purchasing a copy. By the way, you are very beautiful! Have a good day!

I can't wait to check out your book. My friend Susan Auten recently published an e-book, YA romance/coming of age about a girl with alopecia. It is titled "Becoming Bailey". Her little girl has AA and she interviewed me to understand what her character might be feeling at different stages of the game. It was refreshing to see someone address the raw emotions we go through.

Thank you for the kind welcome! I'm looking forward to bonding with others are this forum. Your book looks great!

hi thank you for the warm welcome you gave to me... im still searching you're book i really want to read it.... well im doing well... thank you...and nice to meet you..

Good day, i will search for you're book im so eager to read it...
thank you so much for giving a confidence to my self.
thank you again and God Bless

shizuma

Hi LeslieAnn,
Thank you for welcoming me. I bought your book. So excited to read it. I have thought of writing one myself. I have been coping for so long with this. I feel like I have a lot to offer others going through the same thing. I applaud you for your pro active approach to this disease. You are the light that shines the way for everyone going through this. It is a pleasure to meet you :)

Thank you Leslie, we are both fine. My granddaughter is only two years old so she is not yet aware of her hair loss. I hope to learn the best way to help her cope as she get older. Hope to find your book soon.