Barbara Bruckenstein
  • Female
  • Flushing, NY
  • United States
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Barbara Bruckenstein's Friends

  • LeslieAnn Butler
  • JeffreySF
  • Maureen
  • Lee
  • Jera
  • rj, Co-founder

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Profile Information

Relationship Status:
Single
About Me:
I have Alopecia Universalis..it has taken over my life. I really keep wondering if there is anything that can bring back my hair. I hear of people with regrowth and over the last few years I don't take anything to try to bring my hair back. When I did have Alopecia Areata I did everything and now I have lost hope. Hoping to hear from people and what they are doing with Alopecia Universalis .. Thank you
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes
Your Website (Leave blank if you don't have one):
http://www.alopeciaworld.com/profile­/BarbaraBruckenstein

Comment Wall (14 comments)

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At 12:52am on February 8, 2009, Lee said…
Hi Barbara,
Sorry it took me so long to reply. I love my vacuum wig. I would highly recomend one ; )
As for United Health Care, I spoke too soon. I just talked to them yesterday, and they are only giving me $500 for a $4,000 wig. I have really had it with them. Now, I have to go through my job to submit a second level appeal. ; /
At 7:31pm on February 3, 2009, Maureen said…
Hi Barbara, Put on eyelashes I can't even pencil eyebrows lol! I am not very good at that stuff so i think i am going to tattoo my eyebrows and as far as the eyelashes there will not be any lol! Hope you are having a snow less night. We have been snowing all day!!! I am really ready for SPRING!
At 8:17pm on January 30, 2009, Maureen said…
Hi Barbara, It is just about a year now since i have lost all my hair to AU and so far not a new stand in sight. Sorry to not have more encouraging news. I live here in NY too but on Long Island.
At 6:26pm on January 30, 2009, Lee said…
Hi Barbara! Thak you! you look great also. I try to put lashes on and I usually fail lol. I wear them once in awhile...special occasions. How did you make out with United Health? They give me $500/ yr towards it....but being that I have already bought two vacuum wigs this yr, $500 doesn't do much.
At 3:12am on January 29, 2009, Lee said…
Hello...just wanted to say hi...I am in Astoria! AU also. How long have you had it?
At 9:45am on December 28, 2008, Roger said…
Welcome.

Roger.
At 9:04pm on December 27, 2008, Cheryl, Co-founder said…
Hi Barbara, I wanted to take this opportunity to welcome you to Alopecia World. I have been living with Alopecia Areata since 1991 and know full well the struggle it can be. I look forward to getting to know you. Cheryl, Co-founder
At 8:30pm on December 21, 2008, LeslieAnn Butler said…
Great, Barbara!
Let me know how you like it!
Hugs in the meantime...
At 3:14pm on December 21, 2008, LeslieAnn Butler said…
Hi,
I know how hard it can be. I have universalis, too -- I've had alopecia for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" It might make you feel better. Check it out on my page -- and let me know how else I can help.
LeslieAnn
At 10:42am on December 21, 2008, Christina said…
Hello Barbara Welcome
Just Wanna Say hi to you.How are you?
 
 
 

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