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How are you?
Tracy
http://books.google.com.au/books?id=shP_ZfPRrUkC&pg=PA19&lpg=PA19&dq=alopecia+twins&source=web&ots=61rrO6bf7G&sig=C_t9P7RGNmID3UaVwYv4IV0BdUM&hl=en&sa=X&oi=book_result&resnum=1&ct=result
Thanks for thr reply. I am looking forward to reading your advice.
Karen
I have been reading your page for the past few months and have wanted to message you to ask a few questions. If you read my page you would see that I have a daughter who is turning five in three weeks and she has alopecia. She is now in the shedding phase and what will happen....who knows...
I have come to terms with the fact that she may have to live with this for the rest of her life and now I am pretty much OK. I still have my days but on the most part, I am content.
What I am concern is the school matters and what would it be like for her when I am not around. I feel like you would be the perfect person to ask since you have grown up with this condition and have bloomed into a beautiful woman.
Was it hard for you? How did you deal with the issues (especially the teen years)? What about wigs? Were you bullied? Did your parents talk to the school about your condition? Did you go to a private or public school? Was it easy for you to make friends? I guess you would now what I am leaning towards. I really want to know firsthand what it may be like so that I can help her steer her life through it.
Any guidance from you will be worth more than money.
Karen
I'm really tired of being carded at bars, though. :P
I think getting a Freedom wig was definitely the best solution for me. My first wig was synthetic and I found that very hot and the hair kept getting matted - not nice. The next wig I had was a human hair but obviously very processed hair because it tended to mat as well. My Freedom wig can be a little hot - I sweat a bit under the cap on hot days but if I have the hair up off my neck in a ponytail it's not unbearable. After all, on 30+ degree days, my own hair used to feel hot as well!
I find it very comfortable, it did feel a little weird at first but it didn't take that long to get used to it. Another thing that I had to get used to is getting it in the right place when you put it on. When I first got it, it would take me 3 or 4 tries to get it on right.
It definitely won't come off at the wrong moment - I've been swimming with it on (although I prefer to swim bald or in a bandana because the hair gets quite heavy when wet) and I've been on a 'slingshot' ride wearing it (where you get flung way up in the air & turn upside down etc.)
I can't think of anything else to tell you at the moment, but if you have anymore questions at all, I'd be only too happy to answer them.
I love my hair colour too! It's so close to what my own hair was. Funny to think that growing up, I didn't like my red hair and now when getting wigs, I won't settle for anything but red! I just don't look right any other colour.
Karina.
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