• Female
  • Austin, TX
  • United States

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Emz's Discussions

Not knowing how far it will go

Started this discussion. Last reply by Emz Apr 15, 2014. 5 Replies

Soooo...since the onset of my AA, i've noticed a few things. Obviously, I'm losing my hair. One way I can tell that more sections are about to go is that I get this weird tingly feeling on my scalp,…Continue

Tags: symptoms, universalis, itching, areata, aaaaaah

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Relationship Status:
In a Relationship
About Me:
All my life, my hair has been extremely thick and long, down past my waist. The only time I ever cut it short was in the 5 th grade and that was it. In August 2013, i noticed a small dime sized spot missing in my hair. I didn't really think anything of it until it began to spread. I won't bore you with the trial and error of *that* journey, trying to figure out what was wrong with me. But lo and behold, I figured it out. Alopecia. To someone who has used her hair as a shield, both psychologically and physically, this was devestating at first. I live my life with a massive sense of humor in any situation and for the most part, have unfailing positivity. So I can't allow myself to get too down about it. So the story goes, that i have a huge patch of missing hair (the original ground zero patch I noticed in Aug '13) plus about 6 others, all of which are growing back white in the center and all of which are spreading at a rapid rate. I can tell through the weird alopecia itchy numbness that the entire left side is about to go as well as most of the back. Whew! It's gonna be fun, folks. So, I've decided that once it gets to where I can no longer hide the bald sections of my head, I'm just gonna shave it all off. Actually, I might rock a short mohawk for a few days just for fun and then get rid of that as well when I have to go back to work. This is all pretty new and I've only had about a week to wrap my head around this diagnosis but with my annoying positivity, I know I can handle this and come out the other side just fine, if a little hairless. That's not to say there haven't been moments of panic but that's pretty normal, it's how you jump off from those moments that makes the difference. I know I will probably cry when I have to shave my head but I will make it a cleansing experience. Lots of ancient spiritual cultures used haircuts and shaving their heads as a way to express grief, major life changes, starting life anew or leaving unwanted parts of their past behind them, so I will do the same.
I know my situation isn't as advanced as a lot of yours yet, but it's advancing along at a rapid pace. Either way, I hope to lend as much positive support to you guys in your rough times and I hope that maybe you can lend me the same when I may be in need. Peace, folks!
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (3 comments)

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At 9:31pm on March 6, 2014, Susan Innes said…
Thank you for the invite, and peace to you as well! Susan
At 8:18pm on February 24, 2014, Susan said…

I spent some time when I was alone, like when I was driving and what not to visualize the process of shaving my head and what it would feel like to do regular things and see people for the first time afterward. That really helped keep it from being a traumatic experience. Your attitude is going to help a lot! 

At 11:50pm on February 22, 2014, LeslieAnn Butler said…

Hello and welcome!

How are you today?

Leslie Ann



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