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  • Walnut Creek, CA
  • United States

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newlydiagnosed's Discussions

Weave on regrowth

Started Jan 28, 2015 0 Replies

Hi All, So I have regrowth, yay! Its not as much as my original hair, but it's there...its thin and there still some patchy spots, but it is about 3-4 inches long, am thinking to get a weave sewn in…Continue


Started this discussion. Last reply by Mary122184 Dec 9, 2014. 16 Replies

I need someone to talk to who understands what I am going through...and no one seems as miserable as me..they took away chat which sucks, .I am getting uglier and uglier and it is getting harder and…Continue

Help with human hair wigs - itchiness, custom

Started this discussion. Last reply by Rose Marie' May 1, 2014. 3 Replies

Hello I finally bought a Prosthesis quality human hair cost me $2100 after taxes + a head. Prior to that I had a synthetic (Norico) that stopped looking good after a month. When I first got…Continue

Parents, do your children have alopecia?

Started this discussion. Last reply by Andrea May 30, 2014. 7 Replies

I am the first one in my family to have alopecia and am 29 years old, just diagnosed recently.  I pray that my son and future children will never develop it, the thought  of it breaks my freaking…Continue

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Comment Wall (8 comments)

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At 3:29pm on September 18, 2014, JeffreySF said…

It was good!

At 1:44am on September 18, 2014, JeffreySF said…

Sorry you couldn't make the meeting tonight.

Maybe next time!


At 1:56pm on June 21, 2014, Tallgirl said…

Summer starts! A good weekend to...go to the mall and get a free Clinique make-over, go try on wigs at a salon, shop for hats at a tourist hat store, take a friend to try on must-have vintage funky dresses or designer consignment tops, lounge at an outdoor cafe with outrageous sunglasses on and something with fruit and whipped cream in front of you, dance to Zydeco or whatever in the den with your child, cook up or grill something tasty, hang 5 new pieces of art, plant basil, stroll through an open-air market, watch funny animated movies and photograph your laughing child (actually, your could get pix taken during ALL the above to remember the day), paint your nails in an unaccustomed color...just because!

At 8:56am on February 27, 2014, I am just me said…

I 1st found out from my primary Dr as I showed her the blister like bumps I was getting. I thought it was acne or  psoriasis. She told it was serious and my scalp was already scarred.  The dermatologist did a biopsy and started treatment. I then waited almost 2 years to see a top specialist in the  for scalp disorders. He re-confirmed the diagnosis.  This was before everyone had home computers and the internet was just really starting.  I could not find anyone with info. The specialist was clinical and wouldn't answer questions. He also wanted to put me on medication that could cause problems if you got pregnant.  I stopped seeing him.  I struggled with finding knowledgeable dermatologist for years.  Last year when I attended a support group which I now co-lead was the 1st time I had met anyone else with scarring alopecia and LLP. I  recently cut my hair almost off as I am so tired of trying to hide my spots.  I fix my hair and it looks terrible by the time I get to where I am going.  The short hair is easy to keep and I really don't care if people see my spots any more.  I struggle with what I feel is the lose of the feminine side of my looks but I refuse to let it prevent me from doing things.  I just booked getting my eyebrows tattooed and between the hair lose and no eyebrows, it has aged my looks. The shorter hair helps me look younger.  I also come across stern looking without the eyebrows. Meeting other people going through this has been huge - 25 years alone just sucked.  You really do not get it unless you live it.  My mother in law compared me cutting my hair to Sinead O'Connor, I laughed, she couldn't understand why  the comparison meant nothing to me....   

At 10:12pm on February 11, 2014, Nammer said…
Are you on fb??
At 2:27pm on January 30, 2014, Yariely said…
At 10:55pm on January 24, 2014, Nammer said…
Hhiii and welcome
At 12:27pm on January 23, 2014, LeslieAnn Butler said…

Hello and welcome!

How are you today?

Leslie Ann



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