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Frida Rupert
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- New South Wales
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Frida Rupert's Discussions
www.deox.com. Anyone tried and were you scammed?
Started this discussion. Last reply by Frida Rupert Aug 1, 2018. 4 Replies 0 Likes
Hi, I am starting Xeljanz soon (bloods being checked etc). While looking online like we all do I came across this website offering it in a topical. I like many Alopecians are vulnerable to a scam,…Continue
Tofacitinib from overseas part 2
Started Jun 23, 2017 0 Replies 0 Likes
In addition I forgot to mention currrntly doing ddcp treatment, and have had oral steroids in 4 week pulses to no avail. Also take biotin, zinc, vit d, silica and collagen vitamins too.
Getting tofacitinib from overseas
Started this discussion. Last reply by Frida Rupert Jun 23, 2017. 2 Replies 0 Likes
I just joined the group after being in a bit of denial. I have had 3 episodes of AA - my first at 22, second at 26 and now at 34. I was very lucky the first few times and recovered in 6 months back…Continue
Tags: Tofacitinib
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"Hi Ross, just placed my order with Shamiul, he also requested a prescription from me which thankfully i had, i note it is the first time Beacon have asked this from my experience. My last order was ages ago, but i have ordered so many times from…"
"Thanks so much Kevin- i hope you are well! "
"Hi guys, i am struggling to get in contact with Beacon (my last order was a year ago as i had stockpiled enough to last for a while). Could anyone advise a recent contact for them. I am Australian based and have been on Beacon tofacinix for many…"
"Hi Sunshine, see my reply to Nat, though again not sure if being in Australia means a different process. I think something will be approved soon, but caution that this will be a Jak inhibitor- so while it will be easier to get a prescription and…"
"Hi Nat, i don’t know if it’s an Aussie thing but i just set their Hong Kong bank account as a payee and can do it all through internet banking. It means adding 25 bucks for the transfer fee’s which a bit of a rip but worth it for…"
"Hi Nat, i set up an account transfer through my bank. I pay a small fee, then i just email the payment receipt. I think it takes a few days to get there but it worked as recently as a few months ago. "
"Hi Sunshine, been ages since i was on here, due to busy life, and life events. I have been on beacon tofacitinib for over 4 years, lucky to get full regrowth. I think hair fall after any bad infection is common. Body ramps up it’s immunity to…"
"I may have misunderstood but reading his comment I think he meant that he had AU for six years prior to starting treatment. I think we have flares, where the disease is so strong a shed happens, this require either patience and nerves of steel to…"
"Hi NewJack, hope you are well. Thanks for this bit of info. What I’ve heard is pretty similar - they are testing on RA rather than Alopecia, RA always have a prognosis that is worse than ours, as the disease is often attacking other internals.…"
"Kevin has been one of the longest standing contributors on this forum, also o e of the only people posting to have used baricitinib - he was also the one who actively undertook testing on beacon generic tofacitinib, and has been involved in…"
"Hi Kevin, mostly I’m on 15 mg these days, I drop to 10 mg when life is pretty stable and health good, but up it when stressful occurrence happen, mainly cause those tend to trigger flares in my hashimotos (I feel hot all the time, lose weight…"
"Well I can’t say 100%, that said it could be BUT I think there is still a market, even if FDA does pull the pin. It might become something that isn’t necessarily prescribed anymore - just like some peptides these days, basically the user…"
"It’s an RA study, while concerning, RA have risk factors we don’t, in addition Jaks inhibitors are now finding a place, albeit small, in treating severe covid, so that could help motivate continued production.…"
"Hi Maree, I think the main thing is to just plough through. I haven’t had covid but I imagine it is probably similar to having something like glandular fever or any fever really, it can cause a flare, but in other cases most recover from…"
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Comment Wall (1 comment)
- At 10:57am on January 1, 2020,
Anisha said…
Hi Frida, Starshine told me you have been taking Tofacinix from Beacon Pharmacy in Bangladesh. Do you recommend this? My insurance company just cancelled my Xeljanz coverage and I'm looking for a more affordable alternative. Would love to hear about your experience with thi drug. Thanks!
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