Frrankie
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  • Dublin, CA
  • United States
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Frrankie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I made the switch. For me it is ok/good. I also take oral monoxadril and get monthly steroid shots. Before they restricted the dose on xeljanz I was having my best results. After the restriction my results diminished considerably. So olumiant was an…"
May 31, 2023
Frrankie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Well, topical is demanding. I can't seem to keep a protical. Oral works better for me overall. I have had AA for a very long time. I believe I need to adress the disorder in any way possible. Studies show it has an effect on AA."
Nov 10, 2022
Frrankie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Current picture20221027_052631.jpg"
Oct 27, 2022
Frrankie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Xeljanzjourny, I have a thickening of my facial hair including eyebrows. Scalp hair has also thickened. I believe I have male pattern baldness so growth is primarily on the slides of my head. Olumiant allows someone to see alopecia spots on my…"
Oct 27, 2022
Frrankie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Yes, and no! I waited till my prescription needed a refill. Then started the new medication the day after getting the prescription. If there was an overlap it was hours not days."
Aug 22, 2022
Frrankie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Here is my updated.  My doctor has increased my prescription from 2mg to 4 mg. I am just waiting for my current prescription to run out. Visually it appears to still be holding after the prescription change. It should be noted the change is…"
Jul 30, 2022
Frrankie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Well funny you should ask. Just today I took this picture to upload on this forum. My goal was to document 1 week after changing to Olumiant. Then when my dose increases to 4mg take and post another picture.   I had/have the opinion my…"
Jul 21, 2022
Frrankie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have not suffered any real hair lose changing from 10mg  xeljanz to 2mg olumiant.  I have only been on Olumiant for a week. If I start to lose I will update."
Jul 20, 2022
Frrankie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I just started Olumiant.  I have kiaser  and it doesn't appear to be an issue. Currently at 2mg a day but expect to move to 4 mg in a few momths."
Jul 19, 2022
Frrankie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"my doctor said due to someone with RA having a heart attack the most she could subscribe was 10mg split. FDA thing."
Jul 13, 2022
Frrankie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"That is amazing. What is your dose . I am on xeljanz 1 pill 10mg split . I had better growth on 2 pills a day but had it reduce for safety. I am very greatful with what I have achieved. I wonder just how much better your compound could be. Exciting…"
Jun 2, 2022
Frrankie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"American studies i have checked state responsiveness work well/good for severe alopecia. Yours sounds sever.  FYI,  I have had alopecia universalis for 46 years. Xeljanz makes a difference with little to no side effects with me. Check my…"
Jun 2, 2022
Frrankie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Just felt like sharing a comment my dermatologist made. She said the new jac inhibitors look to work better than xaljanz for alopecia. With that said let's see. This disorder is individually  different from person to person.  I have…"
May 24, 2022
Frrankie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Could be random chance why it got flagged at customs.  It may also have to do with people buying off label prescription drugs to fight or prepare for covid. Probably just bad luck.  Sorry for the BS."
Sep 28, 2021
Frrankie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I can't say I  that I know if Rogaine works but I know there is an oral monoxadril that may be more beneficial. "
Aug 30, 2021
Frrankie replied to eve of horus's discussion Boss asked me if my hair was real
"I don't take satisfaction in my comment. I suggest you do your best to cope with those outside you social cercal unaware of your Alopecia.  I have has alopecia totalis for 45 years. I can't tell you how many times good but unaware…"
Jul 18, 2021

Profile Information

Relationship Status:
Single
About Me:
AU from age 5 about 15 years ago using DPCP received good growth but stopped treatment do to lack of coverage. Currently 46 and about to start xeljanz. Not sure what to expect.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older
Your Website (Leave blank if you don't have one):
http://frankie_norcal@yahoo.com

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At 1:23am on March 17, 2017, Cheryl, Co-founder said…

Hi Frankie,  

I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Be sure to check out "10 tips for getting the most out of Alopecia World” which include a few tips to get you started!

Cheryl, co-founder

 
 
 

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