• Female
  • Los Gatos, CA
  • United States
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  • OnlyChild1213
  • shedding hair
  • OneBaldMother

GardenJess's Discussions

Only white hair?

Started this discussion. Last reply by sydap Apr 8, 2021. 5 Replies

I'm back to being curious as to whether other people have hair like mine. Surely someone must! My scalp (and some body) hair pretty much all fell out around 7 years ago, when I was in my 40s. I had…Continue

Tags: white

Tweens and teens reactions to parent's alopecia?

Started this discussion. Last reply by Ginny Dec 18, 2016. 27 Replies

My question is probably either too general or too specific, but I am preparing to share my alopecia story with my son's 5th grade class, and the only thing that worries me is, that by sharing, my…Continue

Hair color for passport -- I know this has come up before

Started this discussion. Last reply by Cheryl, Co-founder Feb 9, 2016. 1 Reply

I used to have brown hair. My driver's license shows me with a shoulder length brown wig and says my hair color is brown. I need to renew my U.S. passport and the application asks for hair color. I…Continue

Did your white hair stay white?

Started this discussion. Last reply by GardenJess Jan 4, 2015. 31 Replies

I know there have been many questions about regrowth, so I apologize if this is redundant. Most of my hair fell out over the past couple of years, but I have had some regrowth. Currently I have thick…Continue

Tags: white, regrowth

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Latest Activity

sydap replied to GardenJess's discussion Only white hair?
"I've been on ritlecitinib for just under 8 months and have full regrowth on my head.  Currently about 40% of my hair is the original color and 60% remains white.  My hair color is continuing to return, and I've noticed that once…"
Apr 8, 2021
Baldie replied to GardenJess's discussion Only white hair?
"Hi Jess.  I've been on Baricitinib for over a year.  I had salt and pepper hair until I lost everything to alopecia universalism.  Like you, I now have very thin, and snow white hair.  Several docs told me that AA attacks…"
Nov 5, 2020
GardenJess replied to GardenJess's discussion Only white hair?
"That's great that your hair has grown back! My white hair is more of a permanent condition than a transitory one. I used to get one or two dark roots, but I haven't noticed those in a while."
Oct 16, 2020
Alo-mom replied to GardenJess's discussion Only white hair?
"You are surely struggling with this wig or no wig issue. I have found that many women struggle with switching into wigs because they have not found the right one. There are so many bad ones out there, too dense, not natural looking, too big, too…"
Oct 16, 2020
Cocopuffz17 replied to GardenJess's discussion Only white hair?
"I have grown almost all my hair back. It started exactly like yours is currently. It came in very thin and white. I slowly gained thickness and pigment. It is almost 100% back now on my head. The rest of my body is slowly but surely coming…"
Oct 14, 2020
GardenJess posted a discussion

Only white hair?

I'm back to being curious as to whether other people have hair like mine. Surely someone must! My scalp (and some body) hair pretty much all fell out around 7 years ago, when I was in my 40s. I had had vitiligo for several years by that point. Over the course of years, my hair grew back to cover my head with only white hair. It's very thin and seems to be staying that way, but I welcome it as an alternative to wigs, and much as I want a full head of hair, even thin white hair has had the…See More
Oct 13, 2020
Jack William commented on GardenJess's blog post Confused head
"We do face these problems from time to time and get a lot of confusion regarding it. The motivates a lot of people in that way they start doing good work after it."
Dec 29, 2019
Jack William commented on GardenJess's blog post Confused head
"Great work."
Dec 29, 2019

Profile Information

Relationship Status:
About Me:
I had at some alopecia as a child, a few spots through my 20s and 30s, but only in my 40s did most of my hair fall out. With three young kids, I don't really have time for hair or lack thereof.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

GardenJess's Blog


Posted on October 9, 2015 at 8:30pm 1 Comment

It seems a bit crazy to be excited by one, tiny, half inch long brown hair, a hair so inconspicuous that I thought at first it must have come from our new kitten, but there it is among the white hairs. And as I stared at the top of my head, losing and then refinding that minuscule hair, I realized that the sides are undeniably filling in more. I know it is a bit far fetched at this point, but I can almost imagine getting a hair cut, a short, close to the head hair cut. And the funny thing…


Are you a girl?

Posted on March 15, 2015 at 5:14pm 3 Comments

I'm not sure why I was so blindsided by the question. I mean, I know it has been asked before of women who lack hair, and this was just the person to be asking it, a wide-eyed, blonde-bobbed young girl who was also waiting in line to use the bathroom at the campground. I replied a cheery, "Yes, I am," and that was that. Only it really wasn't because I am still upset by it. 

I was having a fine weekend, my sense of self confidence bolstered by my 9 year old's birthday party at a…


Dreaming of hair

Posted on February 16, 2015 at 1:19pm 2 Comments

I've had dreams where I was delighted that my hair had grown back, dreams where I just had long hair again, dreams where I "came out" as having lost my hair, but last night's was a new variation. I dreamed that my hair was just as it is now, and that I was out doing my dream business with no cover on my head. In the dream it was all very easy, as if weird hair was no big deal. A friend in the dream did get me past a security guard by saying, "Stress is bad for her, it makes her hair fall…


Flexibility or an uncertain identity

Posted on September 29, 2014 at 4:19pm 3 Comments

In an hour it will be time to take my three year old to a new session of her kiddie music class, and even as I pretend it isn't a big deal, I am stressed about what to put on my head. We last went to these classes 4 or 5 months ago, and then I wore my wig. Indeed the music class, a gathering of mostly mommies and their toddlers, was my personal testing grounds for a wig as part of my identity. It was not, however, an ideal environment for wig wearing. Dancing around with a two year old's…


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At 8:52pm on May 2, 2014, Cheryl, Co-founder said…

As time goes by, you will figure out what feel right for you.  I struggled with that decision for years before I was finally able to commit to what felt right for me.  It was definitely is small baby steps and gradual.  I didn't just wake up and was totally ok with my baldness.  Allow yourself some grace and go at your own pace.  Wishing you the best.

At 12:47am on April 29, 2014, Cheryl, Co-founder said…

Hi Jess,

I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Be sure to check out the “10 tips for getting the most out of Alopecia World” which include a few tips to get you started!

Cheryl, co-founder

At 5:18pm on April 22, 2014, LeslieAnn Butler said…

Hello and welcome, Jess!

How are you today?

Leslie Ann



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