bugzmom
  • Female
  • Hiddenite, North Carolina
  • United States
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  • Maygensmom
  • Melody
  • Cherylnz
  • LeslieAnn Butler
  • Carol
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Relationship Status:
Married
About Me:
I am Amelia's mom, and she was recently diagnosed with alopeica areata. Amelia is five years old, and I have a son Logan who is nine.
Do you have alopecia?
I do not have alopecia
Are you age 18 or older?
Yes

Bugzmom's Blog

Older brother...

Posted on December 18, 2008 at 9:41pm 1 Comment

Today, my son got off the bus crying, and very upset. He said that his sister was on the bus and that her hat fell off when she stood up. His friends began asking what is wrong with your sister, and I guess that he didn't know what to say or do. I never thought about how he was going to deal with his sister having alopecia, I was just worried about her. After talking to him and trying to console hime without crying myself, I think he felt better. I guess that we are going to have some really… Continue

MRI today

Posted on November 18, 2008 at 5:55pm 1 Comment

Today Amelia went for her MRI, and we had to go to Charlotte to Carolina's Medical Center. Everyone there was helpful and friendly. I called the doctor, and he said that the everthing was normal in the pituitary gland. We have done blood work, and now this, but still no answers. The dermatologist hasn't been much help either, but she did prescribe some foam to put on the scalp. It was spots but now more hair has come out, and we are almost to the point of shaving. I cry at just the thought, but… Continue

Comment Wall (7 comments)

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At 7:30pm on November 19, 2008, Maygensmom said…
Hi! Thanks for asking. She is continuing to loose hair, I would say she has about 40% remaining on her head. She isn't loosing as much though....of course there isn't as much to loose anymore. A couple of weeks ago I was in the car with her on the way to her doctor to try and see if we could get her appointment moved up for the specialist. I had cried and she could tell that I was very sad. She said, "Mom, why are you so sad?" I replied, "because you are loosing your hair and I just wish I could give you all of mine." She asked me to please stop being sad and so I looked at her and said, "Sis, how do you feel about what is happening to you right now, loosing your hair, living with alopecia?" She thought for a long ,silent moment, and then replied, "I suppose that a part of me is thankful for having it." I almost fell out of my seat!!! WHAT THANKFUL????? Obviously she could tell I was shocked by her response, and then went on to say, "I feel that the alopecia keeps me humble. It keeps me being the kind of person that I am. I could act like those other girls and be a snob or think I am smarter or a better athlete, but I don't. I know that, although I am good at many things, I am not perfect, and it is okay. I like being me, being who I am." So let's just say that as a mother, women, and human being, I continue to grow and develop in realizing the things that are most important in life. My daughter has taken many opportunities to be my teacher!
At 12:19pm on November 11, 2008, Melody said…
Hi! Welcome to Alopecia World!
I am from Charlotte, NC. I am hoping to get a support group together sometime soon, so I would like to add you as a contact!
Please let me know of any questions you have.

Regards,
Melody.
At 3:12pm on November 5, 2008, LeslieAnn Butler said…
Hi,
It's nice to see you here. I hope you're finding support. Sometimes it's harder being a parent of a child with alopecia than it is for the kid!
Hope you are doing okay today!
LeslieAnn
At 2:51am on November 5, 2008, Cherylnz said…
Hi bugzmom,
Welcome to Alopecia World
At 11:15am on November 4, 2008, Cheryl, Co-founder said…
Hi Amelia's mom, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder
At 10:44pm on November 3, 2008, rj, Co-founder said…
Hi, Amelia's mom. Welcome to Alopecia World! This is a great place for great people, so be sure to make your positive presence known. :-) - rj, Co-founder
At 9:21pm on November 3, 2008, Carol said…
Welcome to Alopecia World! I enjoyed out little chat, hope to do it again sometime! :)
 
 
 

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