jennifer
  • Female
  • Mount Shasta, CA
  • United States
Share on Facebook MySpace

Jennifer's Friends

  • Cheryl, Co-founder

jennifer's Groups

Gifts Received

Gift

jennifer has not received any gifts yet

Give a Gift

 

jennifer's Page

Latest Activity

jennifer commented on Cheryl, Co-founder's video
Thumbnail

This has been one of my fears with treatments like Olumiant

"I’m so sorry for what this person is experiencing. To grow hair only to lose it again is so traumatic. My son has been on xeljanz for 1 1/2 years. He’s doing well, but he never fully grew back his forehead hairline. I have seen in my…"
Feb 4
jennifer liked Cheryl, Co-founder's video
Thumbnail

Responds to "If he had hair he would look hawt"

Feb 4
jennifer commented on Cheryl, Co-founder's blog post Winning the Emotional Game of Alopecia
"Dave I agree! My 17 year old son has AU which progressed from AA age 9 to AU at 13, smack in the middle of 7th grade. He’s handled it quite well, but it changed him. He wears a beanie all the time except when sleeping. My happy boy who loved…"
Jun 27, 2022
jennifer liked Cheryl, Co-founder's video
Thumbnail

Alopecia World in the News - Cheryl Carvery-Jones

May 8, 2022
jennifer replied to San's discussion Stopped Xeljanz and hairs are falling again. Need help
"Oh that's the deuroxolitinib trial.  I'm familiar with that.  I think that's phase 3 safety trial right? Hopefully an FDA approved med may be available by next year.  Great to see your success!"
May 5, 2022
jennifer replied to San's discussion Stopped Xeljanz and hairs are falling again. Need help
"This is wonderful technology!  Thank you for posting.  Your hair is growing so even and so quickly. How did you get involved in the trial and do you know if they are taking research participants?"
May 5, 2022
jennifer replied to San's discussion Stopped Xeljanz and hairs are falling again. Need help
"I am so sorry you’re going through this! Xeljanz is not a cure. It only works while taking the medication. There are a lot of JAK inhibitors being researched at this time for efficacy and safety for alopecia. A few have been fast tracked by…"
Dec 24, 2021
jennifer replied to AA Journey's discussion AA and the Pandemic
"The vaccines have not killed 4 million people worldwide and the CDC does not say the vaccines have killed more people than the virus.  This is far right "so called" news sources that are spewing this falseness.  The vaccines do…"
Jul 18, 2021
jennifer replied to AA Journey's discussion AA and the Pandemic
"I had the same concerns with my son. He’s 16 years old and has alopecia universalis. He, my husband, and I decided it was best for him to get vaccinated, especially when thinking about a possible cytokine storm reaction from the virus. Prior…"
Jul 18, 2021
H left a comment for jennifer
"Here's the information you asked…"
Feb 10, 2021
jennifer replied to chris_s's discussion Tofacib - commerically available topical xeljanz Tofacitinib cream
"I am using topical xeljanz on my son.  We got a Rx from a Stanford Dr who orders it through a chemistry RX in Philidelphia (a compound pharmacy).  It cost $334.00 for a 30gm tube.  After 5 weeks my son is seeing small, white hairs on…"
May 7, 2019

Profile Information

Relationship Status:
Married
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (1 comment)

You need to be a member of Alopecia World to add comments!

Join Alopecia World

 
 
 

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service