Kathleen's Blog – January 2010 Archive (1)

Why can't we?

Hi All,

I have been thinking about all of the lack of research/treatments/cures for our disease. There are so many great people on this site. Why can't we start something that raises money devoted to find a cure? I know two people who have a child with a condition (not alopecia and fatal unfortunately) that have devoted so much time and effort into raising money for a cure....and both work full time. I was just thinking if we really put some thought into this, could we make a difference? I… Continue

Added by Kathleen on January 3, 2010 at 7:03pm — 2 Comments

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