Pat's Blog (21)

Rite of passage

I'm 71. In a few years I'll be bald half my life. I don't even think about it growing back. Most of my friends decided to stop colouring their hair when Co19 hit. Sometimes I feel I'm missing out on a rite of passage.

Added by Pat on July 21, 2021 at 12:54am — 2 Comments

Back to wearing Freedom wigs again and loving it

20 years ago I bought my first Freedom wig and I was in raptures. The hair was absolutely beautiful with great movement and the fit was awesome. I did everything in it, but unfortunately I worked outside most of the day in the heat and after two years I decided it was just too hot to keep wearing it. So I put it away only bringing it out on rare occasions which I switched to lace wigs, then to thin skin wigs which became my favourite because it stayed on without glue or tape much like the…

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Added by Pat on September 16, 2018 at 3:16am — No Comments

Having a tantrum and feel like a 2 year old

Well, what can I say? I hang my head about my shameful, childish behaviour today. What a tantrum I had. Even threw my wig over the balcony into the garden 2 floors below. The reason? I have washed it 3 times in the last week trying to get it not to bunch up in the back. I don't know why it is doing this, it rarely happens. It is a remy hair wig and usually I don't have this problem. I am over it!

Since I lost (and found) my virgin Freedom hair wig I have felt so insecure about myself.…

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Added by Pat on May 21, 2017 at 3:55am — 12 Comments

Reasons society doesn't talk about alopecia?

I was asked a question by a friend of mine who has her own over 50s blog. Her last blog was about women's hair going grey and her next blog will be about women losing their hair. Until she met me she'd never heard of alopecia. I too had never heard of it before I got it. Then I read somewhere that there are more people with alopecia than there are people with red hair. To me that was amazing.

I would love to hear others thoughts about why alopecia isn't well known. Is it because most…

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Added by Pat on February 6, 2015 at 8:36pm — 8 Comments

Approached a bald woman

Hi all, well a bald woman sat down with her daughter at the next table in a cafe this week and I went over and asked if she had alopecia...no she didn't, she had been treated for breast cancer. I always find when I do this the person has cancer! Anyway I explained that I thought she had alopecia as I did and she said oh my hair will grow back soon. I said fantastic, I've been bald for over 20 years and wigs don't bother me anymore. Her eyes opened wide. We chatted some more and she's tossing…

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Added by Pat on December 20, 2013 at 1:00am — 6 Comments

Other women's reaction to my alopecia

So a couple of women came along as visitors to my Toastmaster's meeting the second time in a row. At this meeting I was wearing a new wig and both of them commented on my new look...actually the style is pretty much the style I always wear but the colour was much darker...so I said matter of factly that I was wearing my new wig and explained I had alopecia. They both said they would never know it was a wig and that if I didn't tell anyone no one would know. Just then the meeting was called…

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Added by Pat on December 14, 2012 at 2:02am — 16 Comments

John seriously ill

Hi all, for those of you who know my husband John he is seriously ill right now in the ICU at hospital. He's made some good friends here and I thought you all should know. I haven't been on AW much lately so I may not be here again for a few days. Love to you all....

Added by Pat on November 25, 2012 at 3:40am — 12 Comments

Grumpy n irritated

Call me grumpy but I am extremely irritated with my aa right now as I had to have treatment on my neck today which means lifting up my wig a little so the nurse can get to the right area and I felt so vulnerable, exposed and even embarrassed to some degree. Nothing was said and today I lacked the confidence to be upfront. I'm sure this is because whenever I'm not well my aa bothers me more than usual and I feel miserable and then annoyed with myself for feeling this way. So just getting it off… Continue

Added by Pat on May 4, 2012 at 3:00am — 10 Comments

Awkward situations

So I'm having lunch with a few of my girlfriends sharing little anecdotes about our lives, as you do, when one starts to tell what happened at work. Now she's a nurse in an aged care facility and one old gentleman who has dementia has started doing strange things like peeing in corners of the room etc and he happens to wear a toupee. The toupee is getting more and more ragged looking and the nurses had been plotting on how to take it off him as he's pretty attached to it [no pun intended].…

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Added by Pat on February 2, 2012 at 10:30pm — 7 Comments

My social phobia can still raise its ugly head

Today we were in the mall and I was checking out the boots at different shops. Once when my social phobia was rampant I could never have done that so I've come a long way. BUT as I went from shop to shop, unable to make a decision about which boots I wanted to buy my husband John joined me and said, "see any you like? What about this pair" I was indecisive going on about oh I don't know, are they too plain/fancy/anything? Then he said try them on and lets see and immediately I felt better. I… Continue

Added by Pat on June 6, 2011 at 1:32am — 5 Comments

"You stuck to your guns and...."

"You stuck to your guns and....." was the topic given to my husband to deliver an impromptu talk this morning at our Toastmasters club. He began by describing his dismay at seeing my newly coiffured hairdo on our wedding day 42 years ago and compared it in derogatory terms to how he loved how I usually wore it which was long and straight. Could he go through with marrying a woman with a beehive? Then he stated how he stuck to his guns and married me anyhow little knowing that 30 years later… Continue

Added by Pat on May 11, 2011 at 12:30am — 5 Comments

People who give advice and won't let it go annoy me

Why is it when others give advice about so-called treatments ie special diet/acupuncture/holistic/chinese herbs etc and I don't immediately say hey that's a great idea I'll try that today, they get that look or tone that says you poor closed minded woman you aren't open to any help so it's your own fault if your hair doesn't grow back! I've had this conversation so many times it's getting old. These days I just nod politely and move on. However, some people don't know when to back off. Even… Continue

Added by Pat on April 29, 2011 at 9:30pm — 14 Comments

Posted bald pic on Facebook

Well I just changed my profile pic on facebook. Bald, for all to see. Why? I was sitting here after a challenging phone call by my daughter thinking of the trauma she has lived through and is still going through and by association my hb and I as well when suddenly my hairloss didn't seem important anymore. Why am I hiding this? A lot of people I know know I'm bald. I gave a whole speech on it for god's sake to a crowd of people, some I associate with regularly. I outed myself publicly. So...… Continue

Added by Pat on April 20, 2011 at 2:26am — 14 Comments

I did it...first time bald in public!

Went to the beach yesterday, weather hot, water divine. I was bobbing about as I usually do with wig and hat firmly in place casting envious looks at those who let the waves crash over them when I suddenly thought to hell with it I'm taking my wig off! Checked first with my husband - wanted him to feel okay with it too - he was yeah go for it, so off it came. OMG it was heavenly to be able to go under those waves the way I used to so many years ago. Whether anyone noticed I couldn't have cared… Continue

Added by Pat on March 2, 2011 at 11:38pm — 16 Comments

I won second place in speech contest!

Woo hoo!!! I placed second in an Area Toastmasters speech contest. Gave my alopecia story and the best thing was afterwards quite a few congratulated me for being to courageous to speak about it and a couple had family members or friends who were dealing with it or had dealt with it in the past. So all in all I feel I managed to get some awareness of alopecia out there and also its affects on our emotional health. Without the support of alopecia world and the inspiration I get from reading… Continue

Added by Pat on October 17, 2010 at 9:20am — 10 Comments

Giving a speech about alopecia at conference

I'm giving a speech at a Toastmaster Conference about my experience with alopecia. I've done one before at a club level and used a diagram to show the various types of alopecia but in a bigger venue I'm not sure the diagram would work well - not so intimate an atmosphere, on a stage etc. Part of the criteria of the speech is that it has to have a message. I'd love some input from you people as to how to get a message across and what that message could be. I suppose for me the message of… Continue

Added by Pat on October 3, 2010 at 11:26pm — 1 Comment

Prednisone

I've been diagnosed with polymyalgia rheumatica and the only treatment that works is Prednisone...I know this is also used for an alopecia treament but I have never read a post yet where it has worked in the long term and the side effects for short term gain has not been worth it. I'm not sure what to do, to go ahead and use it or to live with the pain I am in daily. I'm feeling very overwhelmed right now. I have the tablets at home but am afraid to take them. The doctor said I wll be on a low… Continue

Added by Pat on August 28, 2010 at 8:16am — 4 Comments

Mum's hands

This was a poem written to me by my wonderful daughter, not about alopecia, but other traumatic events in my family. My interpretation is below the poem. I share it because my daughter is so special to me and through her own terrible experiences has gained insight into my family's pattern of disfunction.



The edges perceived

A shaded circumference

Round staged lives

An inherited image

Seen stagnant and solid

Made mortal and mean

Through matriarchal… Continue

Added by Pat on May 23, 2010 at 11:42am — No Comments

to survive alopecia

Hi everyone, thought I’d share the following with you...some words of wisdom I found on the internet not about alopecia particularly but it applies just the same.





“What does it mean to survive? The word itself is a combination of sur+vive. These words have French roots meaning sur (on) and vive (life). The word literally means to "get on with life".



What does it mean to "get on with life"? To me it does not mean to simply exist. Merely existing does not convey living… Continue

Added by Pat on July 18, 2009 at 2:03am — 2 Comments

newspaper interview

Ivonna, another alopecian, and myself were interviewed and photographed by our local newspaper and the article was in today's daily paper. I was very impressed by the size of the article which took up 1/3 of the two pages. We even looked good in the photos - we kept our wigs on but showed a before alopecia photo as well as our present ones. Hopefully it will get some awareness out there. Just this morning I showed the article to a woman at a local coffee shop and she told me her husband had aa… Continue

Added by Pat on May 26, 2009 at 12:36am — 3 Comments

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