Well my hair line in the front is now gone =/

I came out to another person the other day...Why do they always argue...They always come back at me that it is caused by stress...and bleaching my hair too much...Do they really not understand that I have been to a Dr. They never trust me when I tell them it is a condition. They always blame it on me and my life style. Bad eating habits...wearing hats...even after I explain it to them...They keep arguing. It makes the whole coming out process so much more difficult.

And about the babies part,
This condition being thought to be genetic, if you don't already have kids, has it made you think twice about having them?
This conversation came up the other day between me and a friend of mine. It was a huge slap in the face. I am 23 and single so thinking about kids has not been a big part of my life, but it really got me thinking. Knowing the possible risks, I would never be able to live with my self if my child were to have to go through this. I would not wish this on anybody, especially my own child.
But it is not proven that it is genetic, so there could be no problem having kids. Tough subject. But it really brought me down thinking about it, I was wondering how all of you feel.
Those of you who have kids that do not have the condition, or those of you who do that you child was affected.
When I found out about this condition, my mom reviled to me that she has no eye brows(I never noticed because she has thick bangs and I don't talk to her face to face often)
Is it wrong that I am mad at her? I try not to blame but the list of autoimmune diseases that have made my life a huge struggle are piling up. She is full of them to. I try not to, but deep down, I blame her. But my sister has none! None who at so ever. Was it luck of the genetic draw, or nothing to do with it? The million dollar question.

Views: 19

Comment by Lindsay on March 19, 2011 at 4:04am
My friend wasn't doubting, just got brought up and got me thinking =)
I am pretty accepting of my hair loss now. It's been a year now.
I think your right about displaced anger. I just am more angry with her because she made me feel diseased when I first showed her my head, then later told me she had a problem with her eye brows I guess. We have never gotten along. She is not supportive of my hair loss at all. Perhaps she is not accepting of her eye brows and when I had a similar problem It made her face it. I hadn't thought of that.
I'm am really just more thinking out loud =)
Just always curious how other people feel. It keeps me in perspective. I have always wanted children. I wish they knew more about this condition. Hoping for the future =)
Comment by Karen Smith on March 19, 2011 at 9:40am
My daughter has AU and we have no history of it in our family. I really hope she has children and that they inherit her wonderful beauty, sweet disposition and wonderful outlook on life. If they get AU along with this then they will deal with it as graciously as she has. She wastes no time feeling sorry for herself. I cannot say the same, I have spent alot of energy being devastated. She inspires me. I would not let alopecia stop you from having the children that you want.
Comment by Dominique Cleopatra on March 19, 2011 at 1:07pm
No one else in my family has alopecia, I'd be more worried about my kids inheriting my neurotic personality than my hair loss ; )
Comment by Lindsay on March 19, 2011 at 4:16pm
Haha So true! =)
It doesn't seem to be too genetic to me then. I wonder where they got that from?
Comment by Dominique Cleopatra on March 19, 2011 at 6:24pm
Yeah neurosis on the other hand runs positively rampant through my family tree!
Comment by Kate on March 19, 2011 at 7:22pm
Hi there- my sister has alopecia ... there are 7 of us and she is the only one - no history of it in our family...she has two beautiful kids - no sign of alopecia at this point. I do know that she was concerned about passing it along to her kids, but it didn't stop her from having them. I do know that she thinks about it from time to time, but is just hopeful that it won't strike them. I understand where you are coming from as far as being concerned, but hopefully when you do want a family you will be at a place where you will just move forward and have a wonderful family. Just wanted to share a little about my sister's experience in hopes that it might help..:)
Comment by Lindsay on March 19, 2011 at 10:08pm
Thank you for sharing your sister's story Kate, That does make me feel better. It is not like a terminal illness, and it is no where near guaranteed to be passed on. I am sure when I find that special someone to share my life with, I am hoping my own hair will be back and will be so ecstatic to have kids it will be a much smaller thought in the back of my mind. I am still new to it so it is still a huge issue for me daily. I am waiting for that to wear off a bit. I unfortunately think I worry about it too much daily and makes it worse. I am a very stressed individual. I need to learn how to calm myself down. I hate taking meds, but maybe its time to try something lol I am a very organic type anti chemical type person but calming tea just aint cutting it no more haha.

Valerie, I am all for keeping those pie holes shut! =D
Comment by Tallgirl on March 20, 2011 at 12:52am
Same genes as in rheumatoid arthritis and diabetes, so look for a side that has those. See July 2010 research on July links here (list to the right) on AW for the gene article.
Comment by Tamera on March 20, 2011 at 3:53pm
I have 3 sisters and I am the only one in my family to have AA. My whole family(aunts, uncles, grandparents, distant relations...ect..) participated in a family history study at the University of Minnesota with Dr. Maria Hordinsky when I was younger, and they found no links geneticly for my AA. I never gave a second thought to having a family. I have two boys and a girl, no one shows any signs of AA and I hope they never do. That being said if my kids should have any form of alopecia in their lives than we will deal with it, I would not trade being a mother to our beautiful kids for a bunch of "maybe's and could be's", life is unpredictable. As for unsolicited advise from friends/family/strangers some people just can't help themselves, or they simply don't have an "off" switch!

Comment

You need to be a member of Alopecia World to add comments!

Join Alopecia World

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service