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Sometimes I forget I have alopecia
I don’t know if it is just me, or if there is a real shift happening in the world. I just know I have not blogged lately because I really have a difficult time thinking of something to blog about.
Few things in my everyday life remind me that I have alopecia areata. I can’t remember the last time that someone asked me why I am bald. I seriously cannot think of one instance in 2012. In fact, these days I find myself looking for opportunities to share.
My husband saw a woman with alopecia universalis in a store a few months ago and I approached her. But I can’t remember the last time that someone came up and asked me what has happened to my hair. I don’t remember the last time I received a snicker, a stare or even a double-take.
Is it just me? Or, are there others who are experiencing the same thing?
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Comment by Mary on June 13, 2012 at 5:29pm
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IT'S NOT JUST YOU! I'm so glad to hear you say this. I haven't been posting/blogging/reading as much on AW lately, either...NOT because I don't love AW or care. I just don't think about my alopecia areata as often. I'm so busy with life, and basically I feel like I've moved on.
I, too, am mostly oblivious to the fact of my baldness. I only remember that I'm "different" when someone says something like "hope you're feeling better soon", etc....I don't feel like I get stares or double-takes. I think I maybe never did get as many as I thought I did.
These days, except for those "cancer" questions or comments I still get, I really don't think about it. It's just who I am. I wish this state to all of you who are still struggling. If you haven't given going out in public bald a try, you have a great opportunity coming up on Saturday, August 4 - International Alopecia Day 2012! Join the Group.
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Comment by Liz on June 13, 2012 at 5:48pm
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I'm so glad others are feeling this way too! Maybe it is a shift in my perception, but I'm just not as bothered or questioned by others about my baldness. Now, is this due to my age or the way society is viewing me?
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Comment by lovelyjan on June 13, 2012 at 8:07pm
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Ladies, I agree. What use to matter to us doesn't anymore. We have learned to accept and love ourselves.
@Mary,You are right only when someone says awww sorry,hope you feel better,sorry your cancer is back and the look on one face when I say no I don't have cancer. lol
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Comment by Tallgirl on June 13, 2012 at 8:56pm
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You have definately made the transition with going out bald. I have made it with wigs, because no one really asks if it is a wig anymore...I get toppers that look natural with bangs, rooted color and tri-tone. What do I think of during the day instead of hair or baldness? Summer heat, laundry, dishes, job applications, childrens' drama, news, music, outings, my new diet, other doctor appointments (non-alopecia), bills, lawn care, finding an air-conditioned place to read, art shows, friends...so MANY other things that there is no time to think about my head. Except maybe for my February run-in with a coat hook. Brain scan soon...
Besides, I long ago learned where NOT to go, even in a wig!
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Comment by Karen's Wigs on June 13, 2012 at 11:31pm
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Cheryl - we are seeing more people who do not display the angst and fear that we have seen in the past. We still conduct ourselves with the utmost patience and understanding. I hope this a sign of good things to come.
-Peter
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Comment by Nicole on June 14, 2012 at 8:36am
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I have been experiencing the same thing. I am always asked what stylist does my hair. I believe this is happening because we have finally crossed the bridge of truly accepting what we have and are able to walk around with true happiness for all to see. I love sharing my story with others especially with women who are struggling with their looks and confidence.
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Comment by alamogirl/ aka Judy on June 14, 2012 at 4:16pm
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Awesome, Ladies!!! I am having and easy time with wigs and maybe someday I will go sansa as well. I have a really goofy looking head which makes me laugh every time I de-wig, I sat out on the deck today bald and got a sunburned noggin! Isn't that funny? No more angst for me. I love your posts, your energy and positive attitudes.
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Comment by Susan P aka DGADBS on June 14, 2012 at 10:51pm
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I was feeling bad about not posting too, I'm so glad to hear we're all in the same boat. There's nothing like having Alopecia Universalis in the summertime;)
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When I teach my weekly dance class, the sweat pours off my head...can't imagine having anything on it!
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Comment by Sheena Tha Cody on June 15, 2012 at 1:31am
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At the salon i work at people ask all the time. They don't always ask me but they ask their stylist if i am ok or what happened. It was pretty funny when this woman who comes in every 4 months or so to get a color just blurted out, "What happened to your head?" Really loudly across the whole shop. Later i found out she had brain surgery not that long ago. So i guess its a good thing i didn't overreact.
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