Comment

Comment by Kathy on September 15, 2014 at 8:49pm

I wish I was at this point yet. It has been almost one year since I got AU and I think I am having a harder time with it now than I did the first six months. I am 59 years old and have a great husband that is SO supportive, but I still have been feeling terrible lately. Any helpful tips?

Comment by David B327 on July 13, 2012 at 8:23pm

If you feel this, and others as well, then it is a sign that attitudes are changing - and about time too.

I find this inspiring, as I have my own personal battle in getting people to appreciate diversity. Too many people see just the disability, and not the person beneath that has learend to live with it.

The positive vibes you send out are, as always, uplifting, and long may that continue.

Comment by Tallgirl on July 1, 2012 at 11:39am

Sheena, like I always tell my students, when someone is pointing at you, three fingers are pointing back at her/himself. Heads and brains were on HER mind, naturally, so that comment just had to spill out! People think and feel from the inside out, so many times their comments are really transparent about their OWN fears, jealousies, embarrassment of choice, failures, and needs. This is in regards to your June 15, 1:31 am story.

Comment by Cheryl, Co-founder on June 25, 2012 at 12:49pm

Cindie, I can see your point. In all cases, we must do what we feel is best for us. But I also think that we may choose to deal with our professional lives in one way. But our personal lives can be a whole different area. I know of many professional woman who chose to wear wigs to work, but also among friends and family have the freedom to sit comfortable in their own homes, backyards or other setting without a headcovering, if that is what they want to do. Freedom works all ways. Including freedom to wear or not wear a headcovering.

Comment by Cheryl, Co-founder on June 25, 2012 at 12:42pm

I think that alopecia is on that doorstep. I very seldom have to explain what alopecia is anymore, most people know. I think that Norm is right and seeing a bald woman is not so "shocking" anymore.

I think that is why I was SO excited when I saw that Alopecia World was going to be so visual. Then when everyone started uploaded photos (many for the first time), I knew this was a great thing for alopecia. Now I see it not only on the pages of Alopecia World but other public forums like facebook. I love to see people using their freedom. The photos have been amazing. Whether it is parent and child, or professional wedding photo's. All these things add up. For example, this wedding photo on Kelci's Page. I don't know how many people where at that wedding. But if they did not know about alopecia, I do know they all left with an impression.

Comment by Bald and Fabulous AKA Terri on June 24, 2012 at 12:36pm

Tallgirl...this is amazing. This what I have been striving to do. To make alopecia areata more well known to the public. Yes we can be embracing and accepting to our own battles and support others with it as they go thru this journey of alopecia. But to let everyone know what this disease is, is also very important. To have this disease called alopecia spoken of as is cancer, as in MS, diabetes, as in all the other diseases, and conditions of the world. It was very long ago that depression was still considered something you just got over. After reading Carrie Fishers' "Wishful Drinking" and hearing her battles and finally getting the right diagnosis, do we as society finally understand how important awareness is (for me anyways, I would not presume to think for others)

Comment by Tallgirl on June 24, 2012 at 10:40am

Terri: How is this for coming out and promoting public awareness?
.
The Official Barry Corbin Site | La Remuda | Barry and Alopecia Areata

Barry has graciously extended his assistance to NAAF to help raise public
awareness of alopecia areata as well as funds for research. Please join us at the ...
http://www.barrycorbin.com/remuda/alopecia.htm

Comment by Jaclyn on June 22, 2012 at 7:45pm

In a lot of ways, I'e been feeling like I "don't belong" here on AW, because I honestly feel like I have complete freedom right now. My hair is about half an inch long, but the bald patches are still highly visible, as the regrowth that has started is entirely unpigmented. I tell people who comment that it's "leopard print" hair. :) I just don't care, and honestly don't think much about the way my head looks anymore. When my hair was falling out, it was tragic. Shaving the rest off just liberated me.

Comment by Bald and Fabulous AKA Terri on June 22, 2012 at 11:08am

I agree with you Cheryl. More and more often I dont think of my alopecia and baldness. And I find that society is growing more accustomed to seeing bald people. Or more likely its me that tend to not notice the questioning stares and/or comments. I still work extremely hard on raising awareness for I still believe that this disease should have more public attention and awareness.

Comment by Tallgirl on June 19, 2012 at 1:02pm

P.S. I am in the process of creating a travel itinerary to the coast for the end of summer. This gives me an idea to also plan for what to do with my head! ;) In my satchel and agenda should be choices, tools, hats and adornments for all the milestone photos with unique scenery and new people I will encounter!

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