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Why I'm Not An Alopecia Sufferer
Early on when I was first impacted by Alopecia and I wanted to explain it to the few people I told. I would say that I had an auto-immune disease called Alopecia.
One day someone stopped be as I verbalized this and told me not to ever profess/claim a disease with my mouth or in my mental thoughts.
His position was that are words and powerful, almost as powerful as our thoughts. And that we should all be particular of the language we use to edify our lives.
I took this advice to heart and changed my language to say that I have a condition called alopecia that impacts my ability to grow her sometimes.
This radically changed my posture and how I felt when I shared my story. It was like the omission of that one word gave me sooo much power back!
Fast forward to today and I noticed how often I read or hear the term "Alopecia Suffers." I thought to myself, "I'm not a sufferer." I am a conqueror! Maybe we should start a movement to change this term to "Alopecia Conquerors."
I don't claim any suffering!
Just Sayin'
What do you think?
My Best,
Kristie Howard
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Comment by Kristie "IronDoll" Howard on November 20, 2015 at 6:51am
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I like that even better Aimee, thanks for your comment!
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Comment by GardenJess on November 24, 2015 at 3:22pm
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I think I tend to say I have an autoimmune "thing." Your post makes me stop and think about "sufferer." I don't think I would ever say I was an alopecia sufferer or that I suffer from alopecia. It just is, and I deal with it, mostly by ignoring it. The message I tell myself is that, if losing my hair ruins my life, then I'm not living the life I need to be living. If I have time to devote themselves to suffering, I should get a new hobby.
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Very powerful statement GardenJess! Thanks for sharing and replying.
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Comment by Cheryl, Co-founder on December 10, 2015 at 3:41am
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I am a conquerer! I love that!
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all those fundamentalist Christians who advise others not to claim something are the first ones at the doctors and then cryin the blues out loud to every I am sorry but I have had alopecia 30 years and describe it as my immune system attacks my hair follicules PERIOD some of that so called Christian advise is phony shit and I say that as a practicing catholic JUST KEEPIN IT 100
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Comment by alex on June 11, 2016 at 1:12am
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I never said it out loud but they has been a big concern... I didn't get sick till years after I had him... I don't want him to get it but I understand it's in my genes.. There for his since I'm his father... I wouldn't want him to get it because because it does take a toll on you as a Hispanic... Might be the same with everyone else but I don't know thAt Because I am Hispanic and nothing else... I literally have been hurt by many people for there comments but nothing as bad from getting that from out spoken Hispanics.. It hurts and it leaves no where to turn even though it's just from people who speak there mind with no filter.. We really aren't allowed to talk feelings as a male... Very old fashioned.. So this topic is big in my heart even though I don't say anything... All I really want to say this lives in everyone.. We never want are kids to live a hard life... It may come but we try to protect them as much as we could... That's understandable.. All we can do is pray or hope for the best
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